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Cant sweat!

Started by Tivia, May 05, 2014, 03:58:02 PM

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Tivia

Well its that time of year again...hot 8) The last 2 days temps were in the low 90's and I found out a very disturbing thing...I cant sweat no matter how overheated I get. I get drier in my skin if thats possible, and start turning red but no sweat. This will be dangerous in the summer if your body cant cool by sweating you will suffer heat stroke. Needless to say why cant I sweat? I mean all my skin layers are dried up, but shouldnt I still be able to sweat, does this disease actually destroy our sweat glands? Is there anyway to get them back? I have to be outside many times in the extreme weather, so I have to be able to sweat.  :-[

Jasper

#1
Tivia ..... Of course, I don't know for sure  why you are not sweating, but I do know that lack of sweating can be a symptom of  Autonomic Neuropathy, and Autonomic Neuropathy can occur in people with Sjogren's. If it were me, I would let my Rheumatologist know and also see a Neurologist for a neurological evaluation.

"Autonomic dysfunction occurs in up to half of patients with Sjogren's syndrome, manifesting as pupillary abnormalities, orthostatic hypotension and/or hypohydrosis/anhidrosis (low sweating or lack of sweating)."

That quote was from an article in Medscape entitled, "The Neurology of Sjogren's Syndrome and the Rheumatology of Peripheral Neuropathy and Myelitis."

Here is the link:

http://www.medscape.com/viewarticle/821884

I know you already have a full plate so I hope you do not have Autonomic Neuropathy, but it would be best to have it evaluated. Wishing you the best.
ANA 1:160; SS-A+; MSG +; Plaquenil, Rituxan infusions, Restasis, HRT, Curcumin, Calcium, CoQ10, NAC, Resveratrol, Whole Omega, Omega 3, R Lipoic Acid, Acetyl L Carnitine, Krill Oil, Mag. Threonate, Bio-Collagen UC II, NAD+, & Vit A, B, C, D, E, K 1 & 2.

Pinkfish

I don't sweat much either, Tivia. And when I do it itches like crazy. I think I'm allergic to myself. I live in NJ and it doesn't get too hot here, so I can't really help you.   :'(

anita

I agree with Jasper that this is more then likely neuropathy, not just Sjogren's (but of course the neuropathy is from Sjogren's, so still indirectly Sjogren's).

I see you mention nerve damage in your signature line.  You should tell your neurologist about this and have them do a skin biopsy for autonomic dysfunction and it may also confirm your nerve damage in your legs/feet as SFN.

And yes, heat stroke is very dangerous, so you must be mindful of your body temp and stay cool, even when your body can't adjust it's own temp.

52 yr old SjS, APS w/strokes, Autonomic Neuropathy, PN, Nephrogenic DI, (CVID) IgG def., Cushing's, Asthma, Gastroparesis.  Sero-neg w/+ lip biopsy.  Meds: IVIG & pre-meds, Arixtra, Aspirin, Plaquenil, Cardizem, Toprol XL, Domperidone, Nexium, Midodrine, Symbicort, Fentanyl, Percocet, Zofran

Madison Granny

I don't sweat either.  If I get too hot I start to itch.  I was just diagnosed this winter with Autoimmune Neuropathy.  My blood pressure is not stable.  I have overactive bladder.  And I just learned here that not sweating is neuropathy related too.
Primary SJS, dRTA, Osteroporis, OAB, stage 3 kidney disease, hypothyroid and high blood pressure.  Medicine I take are plaquenil, bicarb, prolia, synthroid, toprol and amolipine, citracal and vitamin D.  I use Arex and Azasite and Prolia.  I also have Reynaud's and osteoarthris of the toes

gemini052377

I never really sweat before my Sjs diagnosis. At the most, just a slight sheen on my forehead and that would only be after riding my bike on an extremely hot day.  Now I only get cold sweats from my Evoxac, day or night-winter or summer and never when I would need it!
Mary-Primary Sjogren' s, Hashimoto' s Auto Immune Thyroid, Fibromyalgia, Chronic Fatigue Syndrome, Reynauds, and busy mom of 4 kiddos :)

wildforwater

Tivia, I don't sweat either...or very, very little.  My sports nickname has always been "NoSweat[insert my last name]."  Interesting that it's neurological.  Never knew that. I also have numbness/tingling in my hands and feet and mild essential tremor. 

I think a visit with a neuro would be a smart thing to do, probably for me as well.  Keep us posted.

Hugs,
Maria

p.s. I'm in New Jersey too Pinkfish.  Whadda ya mean it doesn't get too hot here! ;D

Sjogren's; Hashimoto's Thyroiditis; Raynaud's Syndrome; GERD; Barrett's Esophagus; Gilbert's Syndrome; Tremors; SFN; Osteoporosis; Osteoarthritis; Lyme 2003 & Lyme/Babesiosis 2010; OB; Plaquenil; Evoxac; Restasis; Prevacid; Synthroid; Prozac;Estrace Cream; Vitamin D.

Pinkfish

Quote from: wildforwater on May 06, 2014, 01:34:46 PM


p.s. I'm in New Jersey too Pinkfish.  Whadda ya mean it doesn't get too hot here! ;D

Where in Jersey?! I just moved to Hunterdon county from Middlesex.

Well, it definitely gets hot here, but probably more humid than hot. Not desert hot!

Bob Marley's "Girl I Want to Make You Sweat" runs in my head every time I see this thread title.


SjoGirl

I don't sweat either. Staying hydrated is critical. I dress in layers because I can be sweltering outside then freezing inside.

You might look into purchasing a Frog Tog which is a towel that will hold water. You can cut it to various sizes and put it on your neck or elsewhere to help cool your body.

They have been watching me for MS for several years because heat intolerance is a symptom. My neurologist goes back and forth about whether he thinks I have it. He keeps putting of a tap I think because it's still invasive. I have an MRI soon, if I have more spots or they are more organized a tap could be next.
Raynauds, sero-negative RA, Primary SjS, osteopenia, degenerative disc disease, disc protrusions,stenosis, Carpal tunnel,  poly neuropathy, myoclonus, hiatal hernia, esophagitis, viral infection, Leukopenia. Restasis, Vitamin D, B12, Evoxac, Lanzoprezole, calcium acetaminophen.

wildforwater

Pinkfish,

Love that song!  Ha!  I'm in Morris County.  Near Chester, if you know where that is...and true, not desert hot.

Maria
Sjogren's; Hashimoto's Thyroiditis; Raynaud's Syndrome; GERD; Barrett's Esophagus; Gilbert's Syndrome; Tremors; SFN; Osteoporosis; Osteoarthritis; Lyme 2003 & Lyme/Babesiosis 2010; OB; Plaquenil; Evoxac; Restasis; Prevacid; Synthroid; Prozac;Estrace Cream; Vitamin D.

machenza

I noticed that too. Since I got dry, I cannot sweat, except when I take Salagen but not on my armpits. They just get itchy :-\. The problem is that my cement apartment gets like 110 and it takes hours to air-condition it. I have no idea how I am going to survive the summer.

Nellie


stillinshockwithsjogrens

Me, too.  I also have low blood pressure, so if I eat something salty, and drink water, I can start a little bit of a sweat.  Evoxac makes me sweat a bit also.  Otherwise, I just get really hot.

gemini052377

Pinkfish and Wildforwater, I am on NJ too!
Mary-Primary Sjogren' s, Hashimoto' s Auto Immune Thyroid, Fibromyalgia, Chronic Fatigue Syndrome, Reynauds, and busy mom of 4 kiddos :)

quietdynamics


I stopped sweating too.
Dress in layers and drink a lot of water.

Sometimes I wake up and my armpits smell a bit strong?

Pilocarpine gives a bit of sweat, hardly worth mentioning, even in the female area..

Telling you... we are all going to turn into Cranrasins...lol.
Sjogrens ANA 1:640; SS-A/B+; Fibro; IBS; Neuro symptoms,Thyroid Anti-bodies; Ocular Rosacea, Livedo reticularis,

"You can't have a positive life with a  negative mind"

Pinkfish

Quote from: gemini052377 on May 06, 2014, 09:28:53 PM
Pinkfish and Wildforwater, I am on NJ too!

OMG, maybe there's something in the water here?!