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My Husband the Imperfect, Perfect Caretaker

Started by Ripvanann, April 24, 2014, 05:56:51 AM

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Ripvanann

Hi Lovelies,

Adam, my husband,  wrote this article about taking care of me when my SjS got bad and then the Cushing's hit.
http://www.youandmemagazine.com/articles/the-imperfect-caregiver The magazine gives a plug for my Cushing's article, but it mentions SjS just as much as Cushing's (I think more).

Anyway, this is my husband. Hate to say how much he rocks, because people who brag about their husbands and their marriages,  well,  next thing you know, they end up with their love on the rocks!! So I will just say, he's for real and we've been blessed.

Love you guys!

Peace and blessings,

~Andrea
Primary SjS, Steroid Induced Cushing's Syndrome, RA, Thyroiditis, Hyperparathyroidism, Raynaud's, Autonomic & Small Fiber NLeuropathy, Fibro. Osteoporosis, & other fun stuff associated w/ the afore mentioned. ~Meds: prednisone, Plaqu, Citracal D & Pain Meds, Compazine, phenergan, Iberogast.

finallyadx

Wow - what an amazing article and what an amazing man.  You are both truly blessed. 

I must admit I felt a small sense of envy when reading it - my husband does not get it and does not even try to get it most days.

Sending positive thoughts your way.
Primary ss dx 2013, plaquenil, vitamin d, iron supplements, vitamin b12, d-mannose for chronic UTI's, magnesium for heart palpatations and Zinc

litliwlowa

Wow, Andrea.

Brings me to tears, and yes, your husband is truly an amazing and loving husband in the full sense of the word.

Hugs

Amanda
SJS-Primary; Hashi's, Post surgical hypothyroidism, Hypoparathyroidism, Spondylolithesis, L&C Facet Arthropathy, Fibro, gluten intolerance, TBI, Radiculopathies, Neuralgias, Osteopenia, GERD, Asthma, Allergies. Sphincter Dyssynergia. OSA, Fasciitis, Cervical Spondylosis, Cancer, etc etc etc

quietdynamics

Sincere Thank you to your husband for writing about his experience, living and growing in this journey!


For 'us' it was and is paramount not to lose ourselves and let this consume us.. keep it as a facet of who 'we' are', not the sum total.

Blessings to you and family.
Sjogrens ANA 1:640; SS-A/B+; Fibro; IBS; Neuro symptoms,Thyroid Anti-bodies; Ocular Rosacea, Livedo reticularis,

"You can't have a positive life with a  negative mind"

sassygal

A wonderful article and a testament to true love! We never know what is in store for us in our life's journey and it is refreshing to see that your husband had the faith and courage to meet the challenges head on. Blessings to you both!

Gail

Carolina

Dearest Andrea,

A Lovely article by your imperfect perfect caregiver!

Just asking myself NOT TO COMPARE, just share......   

sometimes very hard.  oh well, we don't always get what we want.   

You got a marvelous caregiver, and a bunch of horrible conditions.  We all get what we get, and we practice patience persistence and acceptance.

Still, just saying, we need some 'clones' of Adam.

Slightly envious hugs,  Elaine

Female-Elaine,83-CVID-pSJS-WMD (Eylea)-COPD-Inter. Cys-PN-CAD-Osteoarth-SFN-Erythromelalgia-SIBO-PMR-Adrenal Insufficiency-Hearing Loss-Achalasia-Bacteriurea-Power Chair-IVIG Gamunex 50 gm-Medrol-Wellbutrin-Buspar-Gabapentin-Atenolol-Salagen-LDN-Lipitor-Premarin-Nexium-Om.3-Repatha-KLOR-CON-Maxide

kimberly64

Andrea,

You are so very blessed. A wonderful person Adam is.  This uplifted my spirits today.
Kimberly
Sjogrens, Evoxac, Restasis , Omega3

nannysbaby

Wonderful article from your wonderful man who loves you.  To experience that type of loving commitment and caring is truly a gift.

All the best,
Nancy

Primary Sjogren's, Fibromyalgia, RLS; Methotrexate, Hydroxychloroquine, Vitamin Supp., Thera Tears

jpd54

I am speechless.  That was so wonderful.  The love he has for you.  Best wishes to both of you.

Thanks for sharing!

                Jennifer
SJS, Fibro, Osteoarthritis, Osteoporosis, GERD, Rosacea, TMJ

Celebrex, Gabapentin, Lasix, Potassium,Hydroxychloroquine, Lexapro, Lisinopril / Hydrochlorothiazide, Linzess, Metoclopram, Nexium, Oracea, Savella, Simvastatin, Vitamin D, Voltaren

Cassi307

I was really touched by this article. Thank you for sharing it. I tried to raise my son Adam to be sensitive. Hopefully he will turn out to be like your husband some day. I have tried to talk to my son about Sjogren's  and how it affects our lives. He will not ask questions and seems like he is avoiding it.

You are truly blessed. You should also be so proud!
Sjogren's, seronegative RA,  ckd, hyperparathyroidism, asthma,  osteoporosis,  Meds:  amlodipine, low dose Prednisone, calcium, sodium bicarbonate. Also, multivitamin and B complex

Jasper

I was also very touched by this article and by your husband. He sounds like a wonderful man.

Thank you so much for sharing this with us.
ANA 1:160; SS-A+; MSG +; Plaquenil, Rituxan infusions, Restasis, HRT, Curcumin, Calcium, CoQ10, NAC, Resveratrol, Whole Omega, Omega 3, R Lipoic Acid, Acetyl L Carnitine, Krill Oil, Mag. Threonate, Bio-Collagen UC II, NAD+, & Vit A, B, C, D, E, K 1 & 2.

Ripvanann

Thank you all. He got the short end of the stick, that's for sure. =) We're a goofy pair, but I guess we're working so far. Like I said though, I never go bragging about "My Man" ....seems like the kiss of death. I am happy that he got his article printed though. Thanks again.
Primary SjS, Steroid Induced Cushing's Syndrome, RA, Thyroiditis, Hyperparathyroidism, Raynaud's, Autonomic & Small Fiber NLeuropathy, Fibro. Osteoporosis, & other fun stuff associated w/ the afore mentioned. ~Meds: prednisone, Plaqu, Citracal D & Pain Meds, Compazine, phenergan, Iberogast.

gemini052377

Andrea, I learned so much about you in the article you shared. It is very difficult to bare our vulnerabilities to educate others but you did with such style and grace. I appreciate you writing and sharing your story. I will shout from the rooftop for you accolades to your husband! A true and genuine love, God has truly blessed you with blessings in disguise.

Take care,
Mary
Mary-Primary Sjogren' s, Hashimoto' s Auto Immune Thyroid, Fibromyalgia, Chronic Fatigue Syndrome, Reynauds, and busy mom of 4 kiddos :)

Velcro