White Brain Lesions

[cccourt1942]

I would have to go thru reams of medical notes to find what the MTHFR factor is.  I do have a seizure disorder and associated with it is positive for the MTH,etc.  (can't recall all the letters in order).  anyway, I was given a strange B vitamin # ??  I believe it was 12.  It cost a lot.  This was to "stop progression" of the condition...and the way the progression was tracked was by blood work.  It is a genetic condition.  I took this supplemental B  12 (?) for over a year.  My numbers decreased where they were supposed to increase.  The neurologist actually panicked.  After spending an inordinate amount for something which apparently was not doing it's prescribed job, I refused to take it any longer.  One of the reasons is my age. This was over a year ago when I stopped taking it.  The neurologist agreed with me. 

I am 75 now.  I told him I figured whatever happened (I forget) with the progression, couldn't be damaging my body more rapidly than advancing age.

btw: I was told this is discovered thru ordinary battery of tests done with people with seizure disorders.  NOT associated with Sjogren's.  The MTHFR (if that is correct) is rather common was my take.

Hate to be vague about all this, yet thinking back, no one could adequately explain the numbers on the tests, the actual harm this does, nor what the B 12 did. btw: you can buy b12 from Amazon...and I was told the amount is infinitesimal.  The supplement I took ( I WAS TOLD) was 100s of times more powerful.  I ordered this from a source given to my by my neurologist as discounts were given at that particular location. 

Good luck,
c3

[irish]

I haven't read all the posts, but vitamin b12 can be bought at any pharmacy or grocery store or Walmart, etc. It is a common vitamin and is not expensive. It is the vitamin that is used to treat pernicious anemia. I don't know quite what you are referring to. Maybe I misunderstood. Irish

I just re-read your post and it may be that your dosage was so large that this is what caused the price to be so high.

[MarieB]

Way2dry, Thanks for posting.  I'm wondering the same thing.  I'm told I'm having TIAs which do run in my family, and they are leaving 'marks' or something on my brain.

[wendyoh]

way2dry, you got me thinking, I had an MRI in 2012 and my doc just said it was normal as well, I think I will try to get the original report after reading what you said.....I hope you are ok, let us know if you find out more

[Nymph]

Tomorrow I am having an EEG to look for possible partial seizure activity. We may follow up with an MRI if there is a high degree of suspicion. Does anyone else have seizures related to these lesions?

[cccourt1942]

This is a very old thread..but has been renewed and I am attempting to discuss lesions in the brain and seizure disorders. 

Nymph: I do have partial onset seizures controlled by medication.  It was identified bu EEG over two years ago. When I explained to a neurologist my experiences, he nailed it immediately.  I was stunned.  I did have a subsequent MRI w'out any brain damage detected. Your major concern is the seizure itself where mine was to explain my "lost" time.  The seizures themselves last for seconds (according to the doctor).  The confusion which follows depends where you are.  I identified those which occurred when I was in a car.  The longest confusion period I had was less than 10 minutes.  Usually they will last less than five minutes.  In your home, I have been told many instances I "forget" why I walked into a room, etc , can actually be one of these seizures and your recovery response time is shorter due to so much being familiar surroundings.

Returning to an earlier discussion of a supplement prescribed which  are identified as a medicine "food".  It is called Deplin and used to treat depression and a blood factor of MTHR.  I was on a high dose.  I forget.  It was 15mg...and dr. wanted to up it to 30 when I refused to take it any longer (I took it for a year with no change in my bloodwork).   When I took it I found it excessively expensive for what I considered a "supplement" with a fancy name.  The MTHR factor is a genetic condition.  Again, it was prescribed for the factor yet commonly used to treat depression.  I tried to recall this, and finally remembered the name of the drug.  It has now been decreased in price.  I would believe the price resulted in a lot of people rejecting it.  You can now get it online @ less than 200.00 for a 3 month supply. 

A cursory cross reference on Amazon to compared amounts of mg. of B12 available in vitamins follows:
Gummy bear B 12 vitamins - 500 mcg (Amazon or drug stores)
Deplin- 1 mg, 7.5mg, 15mg, and 30mg (online)

There are 1000 micrograms in one milligram.

If you wish to know more about Deplin or treatment for MTFR, please google Deplin

Thx,
ccc

[Nomad]

I had that show up on an MRI years ago.
The neurologist simply said it wasn't in the area of the brain associated with MS and didn't seem to discuss it anymore.
I have issues with migraines and some of those patients have told me they have had white brain lesions show up on their xrays in a similar fashion.

[litliwlowa]

The MTHFR gene has to do with the body's inability to detox. There are different variations of this gene. I came to awareness of it via a support group for breast implant illness, ad it also applies to other implantable devices such as the birth control devices that over time release toxins. Those with the MTHFR gene have a much more difficult time detoxing the residual toxins once these devices are removed. you might find additional info on this via healing breast implant illness dot com. Some women with this defect have found the gerson detox protocol helpful. But of course always check with your medical team.

I would have to go thru reams of medical notes to find what the MTHFR factor is.  I do have a seizure disorder and associated with it is positive for the MTH,etc.  (can't recall all the letters in order).  anyway, I was given a strange B vitamin # ??  I believe it was 12.  It cost a lot.  This was to "stop progression" of the condition...and the way the progression was tracked was by blood work.  It is a genetic condition.  I took this supplemental B  12 (?) for over a year.  My numbers decreased where they were supposed to increase.  The neurologist actually panicked.  After spending an inordinate amount for something which apparently was not doing it's prescribed job, I refused to take it any longer.  One of the reasons is my age. This was over a year ago when I stopped taking it.  The neurologist agreed with me. 

I am 75 now.  I told him I figured whatever happened (I forget) with the progression, couldn't be damaging my body more rapidly than advancing age.

btw: I was told this is discovered thru ordinary battery of tests done with people with seizure disorders.  NOT associated with Sjogren's.  The MTHFR (if that is correct) is rather common was my take.

Hate to be vague about all this, yet thinking back, no one could adequately explain the numbers on the tests, the actual harm this does, nor what the B 12 did. btw: you can buy b12 from Amazon...and I was told the amount is infinitesimal.  The supplement I took ( I WAS TOLD) was 100s of times more powerful.  I ordered this from a source given to my by my neurologist as discounts were given at that particular location. 

Good luck,
c3