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Inside 23andMe founder Anne Wojcicki's $99 DNA Revolution

Started by lighthouse33, October 14, 2013, 01:35:54 PM

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A66eyroad

Female, 61
Sjogrens, UCTD, and subacute cutaneous lupus. Flu-like symptoms, mouth & nasal ulcers, itchy rash, high cholesterol, headache, earache, tinnitis, dizziness. Hangover-like nausea, especially in the a.m.
Plaquenil, Atabrine, DHEA, Aleve, Evoxac, Allegra/Benedryl, esomeprazole.

Ripvanann

They may be a horrible company and up to no good at all.  Not so long ago however, the public would of taken care of them. Post articles, word of mouth and no more 23 & me. I see no reason for government oversight here. Law and order does not stretch as far as what I choose to spend, invest and even waste my money on.

I don't know how many people decided to post on this thread but all of us made informed and personal decisions about whether or not we wanted to do this. None of us need(ed) the government to "help" us. They have no place here.
Primary SjS, Steroid Induced Cushing's Syndrome, RA, Thyroiditis, Hyperparathyroidism, Raynaud's, Autonomic & Small Fiber NLeuropathy, Fibro. Osteoporosis, & other fun stuff associated w/ the afore mentioned. ~Meds: prednisone, Plaqu, Citracal D & Pain Meds, Compazine, phenergan, Iberogast.

Velcro

I guess what I'm confused about is that when I went and read everything about their test, when this thread first started, I didn't feel mislead by anything.  Everything I read said they were offering me a risk assessment, not a diagnosis.  I found that no different than my Doctor asking about family history and then telling me I had a 50% chance of developing Diabetes because it's rampant on both sides of my family.  He wasn't saying that I was going to get it...just that I had a higher risk than someone that doesn't have it in their family, so something to pay attention to for me.  I also read the whole section where they said they were going to sell to third parties for medical research, etc.

Who knows.  They may be the biggest scammer ever.  I'm just always leery of someone that files a lawsuit on stuff like this.  I think people are so sue happy now that it makes it hard to know when someone really has a legitimate case versus people just trying to make some easy money (a.k.a. McDonalds Hot Coffee lawsuit).  I'm not a very trusting person of people anymore.

Velcro

P.S.  I didn't say anything about the FDA because I don't trust them either.  One day something is ok, the next not...then it is...then it's not.....pssssshhhh

A66eyroad

I think the lawsuit is more about what the company does with our medical and personal information after they do the testing than about what they're actually testing for.
Female, 61
Sjogrens, UCTD, and subacute cutaneous lupus. Flu-like symptoms, mouth & nasal ulcers, itchy rash, high cholesterol, headache, earache, tinnitis, dizziness. Hangover-like nausea, especially in the a.m.
Plaquenil, Atabrine, DHEA, Aleve, Evoxac, Allegra/Benedryl, esomeprazole.

wisconsin41

I paid the $99 and I knew they were using my dna for research.  What is the big deal. It is a for profit company...
Eyes:Restasis,Alrex; Plaquenil,Evoxac(sort of), Nexium, Zolpidem, Naproxen

Carolina

Interesting Article in the NYTimes today.

The author had her genetic profile done by three companies.  With three different sets of results!  Some of them were completely contradictory.

http://www.nytimes.com/2013/12/31/science/i-had-my-dna-picture-taken-with-varying-results.html?ref=science

Buyer beware!

Hugs, Elaine
Female-Elaine,83-CVID-pSJS-WMD (Eylea)-COPD-Inter. Cys-PN-CAD-Osteoarth-SFN-Erythromelalgia-SIBO-PMR-Adrenal Insufficiency-Hearing Loss-Achalasia-Bacteriurea-Power Chair-IVIG Gamunex 50 gm-Medrol-Wellbutrin-Buspar-Gabapentin-Atenolol-Salagen-LDN-Lipitor-Premarin-Nexium-Om.3-Repatha-KLOR-CON-Maxide

sassygal

I don't think the FDA should be involved. In my opinion, The kit is not a "medical device" and does
not diagnose anything.

The goverment just wants control... they are chomping at the bit to get the genetic information into their greedy hands and don't like the idea of someone else profitting from it.

I look at 23 & Me as something more akin at this stage as talking to a phone psychic. If it hadn't cost $99 that I didn't have, I would have liked , out of curiosity sake, just to see how close they come to medical conditions I ALREADY have.

Kinda pissed that the GOV/FDA got involved. Americans have the right to spend their money however they wish. Merely putting a statement out there like they do for supplements With the disclaimer "not FDA approved" would have been enough for people to make their informed decision. No lawsuits needed.