Random creepy crawlies and zingers..Sjogrens?

[babsinga]

Hi Everyone,

I have been getting the feeling that I have bugs crawling on the top of my feet. I also get zingers in my feet and wrists that feel like electric shocks.  I am 48 and perimenopausal so I figured it might have something to do with this.  It is not Restless Leg Syndrome based on my extensive internet research (LOL). I do have carpal tunnel and have had surgery already for this.  I also had a 2 level cervical fusion  5 years ago 4/5/6 so I do suffer from osteoarthritis and DDD already.  The problem is this feels different and it is freaking me out.  I know that Sjogrens can be neurological and cause neuropathies. How many of you have these problems?

Babs in GA
DX UCTD, Sjogrens Sero positive SSB, severe GERD, Elevated ACE test,  200 mg plaquenil, 40 mg Pantoprazole, 300 mg Ranitidine,  1mg Lorazepam, Vitamin D deficient and popping 5,000 IU's to get my numbers up.....

[Skylar]

Sounds like it's peripheral neuropathy - have you been checked for that?

[quietdynamics]

Hello babsinga...and welcome.

I was getting 'zaps when I walked, a anti-depressant (works on neuro-transmitters) helped with this and pain.

Later under the care of a Neurologist with more severe symptoms an anti-epileptic med @ low dose helped in my case with "mostly right hand..I am right handed feeling like a tuning fork" and headaches, etc.  With this med if I feel a bug on my foot or ankle ..it is real...lol.  Swat.

With these meds I weaned on them by taking at night...to avoid any chance of a side effect...as the level built in my body. Per advise of Dr.

Take notes of what is happening, what you are doing when it occurs  and present this information to your GP and Rheum.

I find that times of stress and fatigue heighten these symptoms.

[Carolina]

Welcome babsinga,

Sounds like PN to me, too.

I have profound PN in my legs and feet.  Cymbalta helps with the discomfort to some extent.

Because my PN is so profound and my Sjogren's isn't, the Rheumatologist thinks it may be an antibiotic I took that caused the PN.

However, all autoimmune conditions can attack any organ.  So PN is possible.

For me, at least, I don't think the PN is progressing, tho' I would like to have it retested to be sure.

I had the Nerve Conduction Study done 3.5 years ago, and will try to get a referral for another one.

I have severe cervical DDD, but it isn't affecting my arms and hands, at least not when it was tested a year and a half ago.

It's always something, and then it's something else!

Hugs

Elaine

[Dolly Dimples]

  Yes Babsinga, I am the same,  Its like  hot sparks are flicking on to my feet or other parts of my body, it lasts only seconds,
   worrying anyway. I also have osteo arthritis of the spine. I will report this at my next review which isin till December,   
    to quote Elaine, it's always something!  Dolly

[tiffferoni]

I have that hot spark feeling in my back sometimes...not very often though.

[ktfabian]

I vote for peripheral neuropathy, too. Mine started over a year ago as terrible itching at different times in my feet and ankles. At first, I swore to my husband that I was being attacked by spiders that were so small we couldn't see them but caused me to scratch myself bloody.

Now I'm in the bee sting, tingling stage. I've been tested for it and don't have Restless Leg Syndrome. I have a spinal fusion from L3/4 - L5/S1 but this started long after the fusion. I haven't had an EMG but my rheumatologist feels confident given the way the symptoms have progresses that it's PN. I'm weaning off Lyrica and onto Neurontin. My family doctor doesn't want me to take both because she's afraid I'll blow up like a balloon (or one bigger than I already am, my words not her)

ELAINE,

May I ask what antibiotic you took that caused problems? My former family doctor handed out Levaquin like it was candy. My new dr. didn't want to use it but I'm allergic to so many antibiotics that she finally did and my right hand has never been the same. I'd had carpal tunnel surgery and a joint replacement in the thumb of my right hand, but since that dose of Levaquin, I've had carpal tunnel-like symptoms, swelling, trigger fingers on my middle and ring fingers and pain whenever it feels like it.

Any chance Levaquin was your antibiotic?

I hope you find relief from your creepy crawlers and zingers, Babs

Tracy

[Dee]

Yes I have the creepy crawlies from time to time, usually top of head but sometimes all over including feet and legs and last night I had it and woke this morning with bruise on foot, for which I started another post.  Do not know if these two incidents are related but it seems like it.

Sometimes the back of my calf feels wet like water had or is dripping on it, this has happened quite a few times. Once in a store and I kept looking up at the ceiling for a leak and on the floor for a puddle. 
I guess I should mention my leg was dry.

It is crazy making, at least for me.

Dee

[gurs]

I have this all over all the time..I know its the PN, but mine started when I went into instant menopause and my hormones are so off. I think its a combo of the SS/lupus and hormones.
I think its all related to our vascular system and blood flow.
Gursie

[SjoGirl]

I'm in process of figuring out something similar. Don't usually feel bugs crawling, but do get the electric shock feeling.

I'm having an EMG next week because I've also started to have significant issues with muscle weakness. Having trouble with my hip flexors and thighs not wanting to engage.

Like others I have degenerative disc disease, however, mine is upper spine and neurologist said that would not affect my hips and legs.Then again I have stenosis as well (which many people of my age or older do) and it may be affecting new parts of my spine.

MS is another possibility. Have you had an MRI of your brain? Many of us are being watch for MS as it has overlapping with SjS.

[Rabbit63]

Hello,  I was searching older posts and found this discussion on weak hip flexors.  I recently noticed that I no longer can lift my legs while sitting or lying down.  It came on suddenly, I could not get my right leg out of my car.  I believe it has happened before, but I thought it was just my peripheral neuropathy acting up.  My PT says it it my hip flexors and have given me exercises to try to strengthen them.  I am just wondering what other folks found out.  Thank you.  Rabbit63