Energy plug - pulled! and terminology!

[Joy]

Hi all,

Please could you confirm some terminology for me, when people say that they are having a 'flare' is it when the symptoms from Sjogrens 'flare' up and become more prominent than normal! Yes? Don't suppose there is any rhyme or reason for it is there?!

This morning I tried to get up out of bed and my entire body felt like a sack of potatoes. My hands, feet and body had this strange feeling, not tingling, but just a wave of something, heavy and like the power socket had disconnected and power was draining out of me. Felt tired all week and this was the culmination. I also feel like I can't concentrate so well. As I have busy weeks coming up I do hope that this will pass for me soon, guessing everyone is different but I had this about 9 mths ago for a few days, as Sjogrens progresses would this be something that comes on a more regular basis or not. I know that many of you on this forum are so knowledgeable that I needed your help with this question.

Thank you in advance for any help you can give me.

[Velcro]

Yes. A flare or flare-up of the disease.  My Rheumy says when I'm flaring, the disease is more active causing the symptoms to get worse.

[Joy]

Thank you Velcro. I hope this passes soon.

[Velcro]

I hope it does too.  When I'm in a major flare, that goes on for several weeks, they have me take huge doses of prednisone for a few days, then taper off over the next week to kill down the flare. My linear Morphea does the most damage to my tissues and muscles when I'm in a continuous flare. The down side is that the prednisone makes me feel worse for a few days until it knocks the flare down.

[Joy]

Please excuse my ignorance, what is 'linear Morphea?

[Velcro]

It is a rare form of scleroderma.  It eats my skin, tissue and muscle on my left arm.  My type only strikes one area and it was my arm.  I have a bound down groove from the atrophy and other than that, it causes the similar symptoms of the other autoimmunes. Fever, fatigue, joint pain, etc.

[Velcro]

It's hard to describe. Here's a pic of my arm. The line you see running down my bicep, is the groove where the tissue/muscle are missing and the skin has bound down.

[Joy]

Oh! thank you. Never seen this or heard of it before. You learn something new every day.

Thanks 

[Velcro]

You're welcome