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Thank you for being such a wonderful support group!

Started by mshistory, April 23, 2013, 05:22:38 PM

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mshistory

 I'm sorry if I'm posting this in the wrong place, but I'm a member of another forum for my lupus, but I haven't been a member there nearly as long as I've been here. Even though most of my current problems are SLE related, I still prefer coming here because this forum is so welcoming and KIND and that's a rare treasure to find on the internet! I know sometimes messages can be misinterpreted in writing, or sometimes, we just have a bad day, but there is always an atmosphere of support and willingness to help here that I wish more forums would (or could) adopt.

So thank you members for being respectful and supportive of others, and thank you staff for keeping our forum that way  :)
SLE and SjS with PN. ANA >1:1280 speckled,
SS-A >8.0, RF positive. Botox for migraines, Clonazepam, Zoloft, Imitrex for migraines, CellCept 1000 mg, Plaquenil 200 mg, Restasis, Zofran for nausea, Gabapentin, Evoxac and Norco for pain.

lori

Ms,

i think this is the greatest forum too!!!

i always get a response and there is alot of supportive  folks here-

thank goodness we have eachother cause doctors sure arent alot of help most of the time.

I have an aswesome rhuemy but as we all know there are alot of " extras" that com e with autoimmune and doctors just dont know about half of it.

lori

Carolina

Female-Elaine,83-CVID-pSJS-WMD (Eylea)-COPD-Inter. Cys-PN-CAD-Osteoarth-SFN-Erythromelalgia-SIBO-PMR-Adrenal Insufficiency-Hearing Loss-Achalasia-Bacteriurea-Power Chair-IVIG Gamunex 50 gm-Medrol-Wellbutrin-Buspar-Gabapentin-Atenolol-Salagen-LDN-Lipitor-Premarin-Nexium-Om.3-Repatha-KLOR-CON-Maxide

Skylar

I agree - everyone here is so helpful and supportive. Plus it's wonderful to come and find others who share a lot of the same health issues and tips on how to handle the day to day annoyances.

long time dry

I certainly agree with the posters above and had been thinking of posting a similar thread myself.  It's so good to know about things others have found helpful and to have the emotional support as well.  Sometimes I take things very seriously and don't always recognize a joke, but I have found nearly everyone to be polite and kind.  This forum has answered many of my questions and for that I am very thankful.  I've learned a lot here.

harrigan

Absolutely agree! I use another forum for the technical stuff to do with RA, but for friendship across the miles, support and company, I have never found a community like this. 

To all those who work hard behind the scenes and those who post regularly and make sure no one's posts are left without a thoughtful response, thankyou so much.

I love the tag line under Bucky's posts, about sitting a spell ...  I feel we really do this and it is the next best thing to sitting round each others' kitchen tables.

Ailsa xx
Female, 54
Diagnosed with Sjogrens March 09; Rheumatoid Arthritis February 2010
Meds: abatacept, Methotrexate injections , Folic Acid, Amitriptyline, Ozepramole, Tramacet, Glandosane & Viscotears.

Liz D.

I do not post often here, but I do check in everyday and I agree it is the best!!  Thank you, too.

Liz D.
60 year old female
Sjogrens Syndrome (diagnosed 2004), Hypothryoidism, Asthma, Osteoporosis
Meds:  Plaquenil 200 mg; Levoxyl 100mcg; Evoxac, Symbicort, Flonase, Protonix 40 mg.,  Prozac 40 mg. Naproxen 500 mg., vitamins, calcium, flaxseed/cod liver oil, L- lysine, iron

Jellyb

This site has become part of my daily life. I can't usually talk to any of my family and friends about my sjogrens issues, but I have all if you, and for that I am incredibly greatful...

Katybarstool

Thank you for starting this thread MS. I agree 100% with what you say.

I've not posted very much recently, but I do try to read the boards as often as I can.

Blessings to all our Sjoggie friends.

Kathyx

gmomjuju

This forum is the greatest. I love it and it always makes my day when I pop in to see what is going on.

Everyone is very friendly and compassionate!

Judy

aussie mum

I agree :D 

I have found the people on this forum very welcoming & helpful with my many questions regarding my daughter's SjS. Gosh, I've gained more knowledge here than from the Doctors.

I have also received a lot of great advice and support regarding my own, non SjS issues.

Thanks to everyone involved in running and contributing to this site.
Daughter - SJS, Lupus, Underactive Thyroid, Wolff Parkinson White Syndrome & Insulin Resistance.

Me - Ankylosing Spondylitis, Total Thyroidectomy, Endometriosis, Adenomyosis, High Blood Pressure, Hiatus Hernia, Dry Eyes & Mouth, Stomach Issues, Enbrel, Thyroxine, Atacand, Pariet, Krill Oil, Vit D

ellenkerr

 Just "Ditto" what everyone else said!  I just hate it when people post before me and use up all the good words and clever sayings!!! Seriously, I appreciate all the caring and thoughtful people on this site.  It makes a sometimes rough journey seem easier when your walking with friends.

4Kids

Yes, all of you mean so much to me during my days. I have learned so, so much here. Thank you all from the bottom of my heart.

Jackie
Plaquinel, Restasis, Salagen, Arthrotec, Cod Liver Oil, B Vitamins, Palafer-C, Plaquinel, Metformin, Spironlactone, Biotin

Cricket

Yes I agree!!  This is the best boards, people helping each other in loving ways and sharing their experiences and knowledge.

Thank you everyone!
Cricket~
Female 64 yrs. old with:~Lymphoma ~SJS~, Fibro, Neuropathy, Spinal  Stenosis, Degenerative Discs, Shingles Arthritis, Hypo-thyroid.
Rituxan, Synthroid, Lopressor, Vasotec, Zantac, Zyrtec, evoxac, Lexapro, Neurotin, Ambien, Zanaflex, Voltarm, Vicodin, fish oil, Centrum vit.,  CoQ10, vit. D, Miralax

A66eyroad

Female, 61
Sjogrens, UCTD, and subacute cutaneous lupus. Flu-like symptoms, mouth & nasal ulcers, itchy rash, high cholesterol, headache, earache, tinnitis, dizziness. Hangover-like nausea, especially in the a.m.
Plaquenil, Atabrine, DHEA, Aleve, Evoxac, Allegra/Benedryl, esomeprazole.