blisters on the roof of the mouth

[Jackie]

The sores could be caused by a yeast infection. It is normal to have yeast on your skin, but it can grow out-of-control if you have SjS and cause canker-like sores in your mouth and even down your throat. You can also get pink eye for the same reason.

I was getting these sores on a regular basis, which motivated me to do so research on possible causes. This led to my diagnosis of SjS. I now suck on a anti-fungal lozenge called Clotrimazone every day or so to prevent the mouth sores. It works very well and I haven't noticed any side effects. If a major event occurs, I go on a week long course of Diflucan, but I haven't had to do that for several years.

I highly recommend checking into this. I was very miserable and lost a lot of weight (the only good part) because I couldn't eat. Even drinking water hurt. You have my full sympathy. Good luck to you!

Jackie

[reesatay]

Another thing you can do to help keep your mouth healthy and help heal your sore is to use a mouth rinse like Neutral.  It is a Supersaturated Calcium Phosphate Rinse which prevents and treats the painful symptoms associated with oral mucositis. 

[Reanne]

Thanks for the suggestions. I will try some and see what works best for me.