Sjogrens Patient Conference...anyone?

[SjoDry]

Are any of you going to the Sjogrens Patient Conference in April?

[McKorky]

What is it?

[Ark mom]

I did not know there was one.  Answering your question, it depends on how close it is to me.  Where is it being held?  Thanks for the heads up.

[SjoDry]

Sjogren's Patient Conference in Bethesda, MD. April 12-13

http://www.sjogrens.org/home/get-connected/patient-seminars

Looks like it will be a good one, I've decided to go.

SjoDry

[lindaneall]

Yes! We love these conferences and find them so helpful. The best thing is being with others who UNDERSTAND what you are going through. If you see us, please come up and introduce yourself. We are easy to spot....at least while standing, as my husband is 6'8".  I hope a lot of you are able to come.

[slccom]

One of my hearing loss support groups used to set up a meet-up at National conferences. Maybe you could do that here. Ask the conference organizers if there is some way you could do that.
Sharon

[prunella]

If I were to attend the conference, I would have to admit that my sero-negative self really does have Sjogren's!   

[Tammy]

I live in Ohio and am planning to attend with my husband.  I was just diagnosed with Sjogren's in August of 2012, so I am looking forward to attending this conference and learning a lot more about this auto immune disease.  I was just filling out the registration form before I got online here, as I was wanting others information about Prednisone.  I just starting taking it a few days ago, and I think it's going to help (along with Plaquenil, Salagen, Celexa, etc.!)

[warmwaters]

Won't be able to go, but recommend it as very useful.  I attended the one a few years ago that was held near San Francisco.

[quietdynamics]

I would like to go for one day. I just do not think I could do two.
I don't see an option for one day only...am I missing something? Not looking in the right place?

I would hate to register and not have the energy to go...that is just the way it has been lately.
DH keeps asking me if I have registered.
I told him he could drive his motorcycle down and go for me...

He is considering it...

Do people who attend receive printed information/lecture, can it be posted or is it copyrighted?

[SjoDry]

Don't know if they allow it to be posted, doubt it since the Sjogren's Foundation sells all of the information from the conference in their store.

SjoDry

[quietdynamics]

Just called their 800#
So you have to commit for the 2 days. If you stay at the Hyatt and say you are going to the SJS conference they will charge  $129/night.
Not sure what other hotels in the area charge. If you have AAA or ARP ? other discounts.

[Fantine]

I live so close to Bethesda, it would be crazy if I don't go.  I'll be there for both days.

[Cryssann]

I would love to take my daughter. It might actually help her understand. But Maryland is a little too far for us. I do hope that others will attend tho. I hear they are very helpful!

[Fantine]

Just called their 800#
So you have to commit for the 2 days. If you stay at the Hyatt and say you are going to the SJS conference they will charge  $129/night.
Not sure what other hotels in the area charge. If you have AAA or ARP ? other discounts.

That is a good rate for Bethesda. Hotels in Washington, DC itself would be much more, so it's nice that the conference is being held in a less expensive area.