An exciting opportunity

[ktfabian]

Kathyx,

Congratulations on being asked to speak. I don't know how soon you're scheduled to speak, but I have an information packet put together by the Sjogren's Foundation to be handed out to doctor's offices here in the States as part of the Sjogren's Ambassadors program. Ambassadors are Sjogren's patients who are willing to take information into the offices in their area and Kathy Ivory is the person who oversees the program. I'd be happy to send you one of the packets. You can email me by clicking on the email icon in my profile if you're interested.

Good Luck with your talk!
Tracy

[Katybarstool]

That's a very kind offer, KT, but I'm going in on Wednesday, and I'm in the UK. I've got some information for them now, and hopefully, will get more opportunities in the future.

Hugs
Kathyx

[Katybarstool]

Hi

Sorry to have taken so long to get back to tell you about the session - my laptop screen got broken, so I've been waiting for a replacement.

The session lasted about two hours in all, and consisted of 6 groups of students coming into a consulting room, in turn, and asking about my respiratory symptoms. They were 3rd year medical students and were being supervised by fifth years.

It felt a bit daunting at first, and even more so when I realized they were doing mock exams. However, once I got the gist of it, I quite enjoyed being an 'expert patient'. They were interested in my brochiectasis and asthma.

Although I didn't get a lot of chance to mention Sjogren's, two fifth years, who are currently doing a 'boring' rheumatology placement, were very intersted in my Sjogren's information, and were delighted to take it away with them. I briefly mentioned fibrosis being linked to Sjogrens. Apparently, they are having their year end exams in April so hopefully, I will be asked to go back in then. If I do, I'll keep you posted.

Kathyx

[SjoDry]

Katybarstool,

Good job. So glad you were able to do it! I too had Bronchiectasis & had 2/3 of my r.lung removed for it.
I am now convinced that all of my childhood medical issues are connected to what I am living with now.
I hope you will be invited back.

SjoDry

[Scottietottie]

one Kathy!! 

[Bucky]

However, once I got the gist of it, I quite enjoyed being an 'expert patient'.

Although I didn't get a lot of chance to mention Sjogren's, two fifth years, who are currently doing a 'boring' rheumatology placement, were very intersted in my Sjogren's information, and were delighted to take it away with them.

Good job, Kathyx!  Sounds like the students got some information from talking to their 'expert patient', and you got to pass along some Sjogren's information too.   

I hope you do get an invite back.

Bucky