hello i am new to this forum

[Scottietottie]

Hi Mindy 

Welcome to Sjogren's world. The youngest person ever mentioned in this forum was 4 years old and we had an eight year old who used to participate, so its a bit that doctors want to restrict diagnoses to middle age.

I hope you find the site useful. You will certainly find its friendly and supportive.

Take care - Scottie 

[Seeker]

Howdy mindytyson3, glad you found us. 

Seeker

[star723]

Mindy you will be so glad you found this site!!

[mindytyson3]

Thank you all!

[CMNK12]

Mindy,
  My first visit? Hmm...From what I can remember, a paper gown so he could look at all my joints, I had my range of motion checked, all my joints checked, a detailed history taken, and lots of blood drawn. I knew him already so it wasn't so strange. I worked in a hospital so I saw him there.
  Keep a journal of your symptoms...it will help you keep it straight. how long do they last? What makes it better? Do you have joint swelling/redness? Do your legs swell? Do you or have you had any rashes/ where? Do they itch? Are they related to sun exposure? If you get a rash..take a picture of it because sometimes we can't get to the docter before it goes away. Just some thoughts. Do you have cold hands and feet that change color?

   Good luck with your appt and let us know.
  Oh... I take meds you don't want to take yet. Currently on cellcept and high dose prednisone. Don't let that scare you. You will probably never need those and I am hoping to not need them in the future. I started out with Imuran with my diagnosis but it was complicated...had alot going on. I think standard treatment is plaquenil these days but I am not a doc . CK

[mindytyson3]

Mindy,
  My first visit? Hmm...From what I can remember, a paper gown so he could look at all my joints, I had my range of motion checked, all my joints checked, a detailed history taken, and lots of blood drawn. I knew him already so it wasn't so strange. I worked in a hospital so I saw him there.
  Keep a journal of your symptoms...it will help you keep it straight. how long do they last? What makes it better? Do you have joint swelling/redness? Do your legs swell? Do you or have you had any rashes/ where? Do they itch? Are they related to sun exposure? If you get a rash..take a picture of it because sometimes we can't get to the docter before it goes away. Just some thoughts. Do you have cold hands and feet that change color?

   Good luck with your appt and let us know.
  Oh... I take meds you don't want to take yet. Currently on cellcept and high dose prednisone. Don't let that scare you. You will probably never need those and I am hoping to not need them in the future. I started out with Imuran with my diagnosis but it was complicated...had alot going on. I think standard treatment is plaquenil these days but I am not a doc . CK

Ok thank you so much for your help! Why do I need to say no when my doctor does the tender test? I have read on here somewhere people said to tell them no that it don't hurt. Why? Thanks.

[CMNK12]

  They are probably referring to the 16 point test for fibromyalgia. The doc will check a series of areas to see if they are "tender" .. these are classically tender in fibro patients. Tell the truth. These areas have not been tender for me. google it. CK

[mindytyson3]

  They are probably referring to the 16 point test for fibromyalgia. The doc will check a series of areas to see if they are "tender" .. these are classically tender in fibro patients. Tell the truth. These areas have not been tender for me. google it. CK

Ok thanks so much!

[McKorky]

Hello Mindy!
Welcome to the forum. So glad that you have a diagnosis!
Also glad that you have been doing research on this disease.

I was diagnosed when I was 19 and im now 20.

If you have any questions ask away on here!!

Cori

Nice to meet you and thank you! I am glad I was diagnosed too! I was tired of hurting and not knowing what was wrong with me when I knew something was wrong!

I was misdiagnosed for 7 years, having joint and muscle pain nonstop. when I started having pain in my lower back, they did blood work to see if it was lupus, but found out I had sjogrens instead.
I was to the point where doctors were thinking it was all in my head.

[MaryBee7]

Hi Mindy, I've been on this site a short time, and have gotten such great support.  Welcome!

I was diagnosed in May of last year after having finally a positive ANA and ssb during a 27 pound weight loss flare and blepharitis.  Feel blessed to have a positive dx as so many do not.  Had been tested on and off for about 4 years prior.  Good luck and God Bless!

[mindytyson3]

Hello Mindy!
Welcome to the forum. So glad that you have a diagnosis!
Also glad that you have been doing research on this disease.

I was diagnosed when I was 19 and im now 20.

If you have any questions ask away on here!!

Cori

Nice to meet you and thank you! I am glad I was diagnosed too! I was tired of hurting and not knowing what was wrong with me when I knew something was wrong!

I was misdiagnosed for 7 years, having joint and muscle pain nonstop. when I started having pain in my lower back, they did blood work to see if it was lupus, but found out I had sjogrens instead.
I was to the point where doctors were thinking it was all in my head.

Well I am glad they figured it out for ya.

[mindytyson3]

Hi Mindy, I've been on this site a short time, and have gotten such great support.  Welcome!

I was diagnosed in May of last year after having finally a positive ANA and ssb during a 27 pound weight loss flare and blepharitis.  Feel blessed to have a positive dx as so many do not.  Had been tested on and off for about 4 years prior.  Good luck and God Bless!

I have gotten great support as well! Everyone has been really great and has gave me answers to all my questions I have posted! Thanks Everyone! Gosh! Good luck and God Bless to you too!