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Be cautious when taking supplements

Started by gurs, January 14, 2013, 05:02:48 AM

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jazzlover

Essential oils is an option. Many of the high quality oils help inflammation,  fight viruses, bacteria, etc.
Mast Cell Activation Syndrome (MCAS), Salicylate Sensitivity,  Interstitial Cystitis,  gluten intolerance, Raynaud's, Sjogren's, A-fib; cytomegalovirus, mycoplasma,  recovered from Lyme disease

Myshkin

Quote from: jazzlover on January 15, 2013, 10:53:12 AM
Essential oils is an option. Many of the high quality oils help inflammation,  fight viruses, bacteria, etc.

They can have the same side effects and be highly toxic and cause allergic reactions also. Be very careful with those.
Newly diagnosed i 2012 with Sjogren's and feeling like crap. Just started Plaquenil and try to learn to live with the new me. Also joined by temporal lope epilepsy, auramigraines and PCO.

grammad97

Curious about chamomile tea? Is it ok for autoimmune folks or not?
Primary sjogrens, UCTD; osteoarthritis;osteopenia; HBP ;fibromyalgia;RX-plaquenil, butrans 20mcg patch ;flexaril;hydrocodone5/325;restasis, omega3, vit D, super B complex;s ;gluten free;lisinopril;moderate hearing loss

star723

Do any of you have a good website that just lists what is good and not good for us? I guess I mean a list of do and donts.  I love to grow herbs so I have tried different things.  I did not know about echincha.  Used that for years as a tea. My rheumy has started me out on different things so I feel OK with them.  But like someone said on here people are always asking if I have tried this or that.  The Biggie is "I seen this on Dr. Oz you should try it". ;D   I am with you on just licking the plate, most things I cant taste anyway it is all about the texture for me. Like can I get this swallowed!! :-\

Styx

Quote from: gurs on January 14, 2013, 05:02:48 AM

I also have lupus, and do take alot of steriods (20mg),


Offtopic: I know you may have no choice, but do you have any alternatives? Are you using a DMARD? 20mg over the long term is a little scary...

Styx

gurs

Well its official.....have the flu..just got home from the hospital.

I dont care....going to try taking the elderberry..guess I will up my steriod use?..not taking the tamiflu...scared to death of any prescriptions...

Gursie
52 years old.Primary SS, Lupus, Raynauds, POTS, Hormone issues from Hyster-menopause, systemic candida,osteoporosis,Gastroparesis, chronic neuropathy, migraines, sinus/dental issues. selective immune def/low t-cells.
Prednisone & medrol , plaquenil, diflucan, bio-estrogen creams,many supplements

Myshkin

Quote from: gurs on January 16, 2013, 01:18:45 PM
Well its official.....have the flu..just got home from the hospital.

I dont care....going to try taking the elderberry..guess I will up my steriod use?..not taking the tamiflu...scared to death of any prescriptions...

Gursie

But why take anything if you don't mind me asking? It's the flu - you can't do anything other than sit it out. Painkillers, hot tea and home to bed. It's a virus, I would never take anything for a virus.
Newly diagnosed i 2012 with Sjogren's and feeling like crap. Just started Plaquenil and try to learn to live with the new me. Also joined by temporal lope epilepsy, auramigraines and PCO.

reesatay

Tamiflu is an antiviral medication that is used to treat flu symptoms or used to prevent flu in exposed individuals that do not yet have the flu. It helps reduce symptoms and duration of infection.  Saves you about 1-2 days of misery. 

gurs

I may not take anything...but, from my immune system issues added to this (low t-cells, Immune def disorders) this could linger along time and possibly add another flu to it..thank god I dont have the stomach one etc.

I may just try a super low dose. I know it comes in a liquid, so I can just take a few drops or two? who knows..after not sleeping the last few days, Not thinking clear.. ha ha

Gursie
52 years old.Primary SS, Lupus, Raynauds, POTS, Hormone issues from Hyster-menopause, systemic candida,osteoporosis,Gastroparesis, chronic neuropathy, migraines, sinus/dental issues. selective immune def/low t-cells.
Prednisone & medrol , plaquenil, diflucan, bio-estrogen creams,many supplements

brooklyntina

Some natural anti virals are coconut oil, colidal silver, olive leaf and cilantro. Vit C and zinc too! I may have already posted this haha brain fog! Oh and RAW honey!

I have the flu too but not nearly as bad as my husband. I think bc I take all of the above plus I put peroxide in my ear when I feel something coming on. Also I try "oil pulling" a few times a day. It's definitely doing something!

Feel better!

Duchess

Brooklyntina  What is "oil pulling?"

Duchess
58 y/o, Sjogren's, Lupus, Raynaud's, Mitral Valve Repair, Asthma, Myofascial Pain. Plaquenil, Inhalers, Ibuprofen,Exovac, Vitamin D, Vitamin B-12, Omega 3, Eye Drops, Quinipril, Massage therapy.

Saundra

is there a list somewhere, I think we should compile a list so we can print it out put it on the fridge, medicine cabinet wherever.  I read about things like this thread and other threads but the chances of me remembering everything plus I know I don't know them all are slim to SO not gonna happen.  If one of you has even a partial list I'd really appreciate it.  I to had herbal tea last night n this morning thinking it would make me feel better during this flare     grrrrrrrrrrrr

XOXO
Ldy

star723

I agree with LdyMntneer~ I need a list.  My computer is about 10 feet from the kitchen but i forget what I am getting by the time I get there.  A List would be great..... Herbal tea.....Check,  Honey Check.... ;D

Sleepy In Seattle

I don't follow any of this perfectly, but have found the information in these websites to be mostly true for me. In the end, you have to judge for yourself - everyone's body is slightly different. Your body will tell you when something doesn't feel good...you can become better and better at listening to it.

http://thyroidbook.com/blog/autoimmune-gut-repair-diet/

http://memorable-meals.blogspot.com/2011/01/foods-to-avoid-on-autoimmune-focused.html

The following two websites/lists refer specifically to Lupus, but also apply to Sjogrens since there is such a close overlap of the processes and symptoms of the two diseases - and these lists come from extremely reputable sources:

http://www.hopkinslupus.org/lupus-info/lifestyle-additional-information/avoid/

http://www.lupus.org/webmodules/webarticlesnet/templates/new_research.aspx?articleid=2281&zoneid=3

I hope those help!
Sjogren's, Lupus, Raynaud's, APS
Fatigue, Brain Fog, Autoimmune Hearing Loss, joint/muscle pain, dry mouth, clots in retina, etc
GF, "semi-Paleo" diet, Supplements, Plaquenil 400mg/day, Aspirin 325mg/day (for APS), Methotrexate 7mg/2x per week, Prednisone 3.5mg/day

star723

Sleepy in Seattle ~ thanks for the website~ very interesting!!!  :)