News:

New to the boards? Start with "Welcome! What you need to know as a member of this community"

Main Menu

Update!!

Started by McKorky, January 04, 2013, 06:25:19 PM

Previous topic - Next topic

McKorky

Well today I went to the Rheumy doctor and he confirmed today due to the blood work that I have Sjogren's. Such a relief to have confirmation. He also started me on treatment. He was gonna start me on plaquinel but since i am already experiencing hair loss he is holding off on that for awhile. He did however start me on voltaren and eye drops. I go back in four months. thanks to everyone who sent good thoughts and prayers to me today as i was nervous! I'm so glad that i found this group!

slccom

I'm glad to hear the good news!
Sharon

Chrisb

I'm so glad the appointment went well! :)
My rheumy wanted to put me on plaq because my hair is falling out. He thinks it might help. So confused?

Christian

Cindy

If the hair loss is due to infammation plaquenil usually helps. It has helped mine.

Being disgnosed is a relief when you been searching for answers for a long time.

susanep

I am so glad to hear you got a diagnosis. It does help to have a name for what's going on.

Take Care
susanep :)
Sjogren's, Lupus, Rheumatoid Arthritis, Hypothyroid, Fibro, Sleep Apnea, Diabetes 2, Asthma, and Gerd.  (Meds I take) Omeprazole, Pilocarpine, Levothyroxine, Effexor, Cpap, Aspirin, Mobic, Prilosec,, Xanax, Restasis, Systane,Vitamin D3, Plaquenil, Gabapentin, Provigil , Advair, Nasonex, and Proventi

CMNK12

  Glad you had a good appointment, and wishing you well . Try to get plenty of rest, if you can and not stress too much. At college, right? What year? Wishing you well in all you do. My daughter is a freshman biology major. CK

MaryBee7

Having a dx finally is good news, McKorky!   :)

McKorky

Thanks everyone!

Quote from: CMNK12 on January 05, 2013, 08:23:46 AM
  Glad you had a good appointment, and wishing you well . Try to get plenty of rest, if you can and not stress too much. At college, right? What year? Wishing you well in all you do. My daughter is a freshman biology major. CK

I am a Sophomore in college and studying biomedical.

quietdynamics

Quote from: McKorky on January 05, 2013, 09:15:10 AM
Thanks everyone!
I am a Sophomore in college and studying biomedical.

Oh to be that age again...any overseas internships? Spread your wings and fly.
Sjogrens ANA 1:640; SS-A/B+; Fibro; IBS; Neuro symptoms,Thyroid Anti-bodies; Ocular Rosacea, Livedo reticularis,

"You can't have a positive life with a  negative mind"

gardenlover

Well, I hadn't really thought about Plaquenil helping the inflammation.  Makes sense.  I had huge hair loss and I was thinking the other day that for some reason it doesn't seem as bad lately.   Maybe it is the plaquenil?  I'm taking compounded Plaquenil (pure) as the other I couldn't tolerate. So far so good.  I'm increasing it at 25mg increments.  I'm at 125mg trying to get up to 200mg. 
I hope now that you have a diagnosis you can get some relief.  If your eyes are dry, I'd give Restasis a try!
Best

4Kids

I have PCOS and Sjogrens as well--the hair loss was due to low iron/ferritin and the pcos. Dr. put me on spirolactone and metformin and I am on Plaquinel as well. Can't say enough good things about the meds. My hair is on its way back.

Happy for you!
Plaquinel, Restasis, Salagen, Arthrotec, Cod Liver Oil, B Vitamins, Palafer-C, Plaquinel, Metformin, Spironlactone, Biotin

Tivia

Wow im sorry you have this on top of everything else, but at least you know now. This is the most frustrating illness, its constantly changing I never know what to expect. One day the top of my mouth is dry and my eyes on fire..the next my eyes are moist and my lower mouth is dry..and my feet and hands are tingling. How can it jump around so fast lol, its to the point I dont bother mentioning things to the doctor because they are here one minute gone the next.


McKorky


no overseas internships for me. will just be staying in my home state of Ohio

I want to become a doctor!

Thanks to everyone else. I have dealt with high blood pressure for 7 years and PCOS for 5 years. This is just another thing added on top to be unique I guess!!!

Hope everyone else is doing well.

eyeamdry

McKorky----I am glad you have a diagnosis.  That makes things easier as you no longer have to feel that the docs don't believe you.  I was told by one local rheumy that there was nothing wrong with me and I later realized he didn't run enough blood tests to tell.  He said he was "trying to save money."  Well I went to a University Hospital within two weeks and was diagnosed with positive bloodwork.  I was relieved.

Good luck with your college studies.  Lucy

CMNK12

  Good luck with everything.. wishing you the best. Go be the best doc out there. You can do it. CK