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plaquenil and nightmares

Started by Saundra, December 16, 2012, 11:41:59 PM

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Saundra

Its 2:36 am and once again I'm up due to nightmares.  I'm taking 200 mg @ x a day.  I itch which could be just dry skin, I have more headaches than ever and the past week or so the nightmares are pretty constant, anyone else have this problem?  I can't not sleep, I'm loosing more sleep to these nightmares than I can handle.

The only other new things I'm taking is the restasis and the fml drops 2 x a day.  Whatevers causing these has got to go.  Loosing this much sleep is not a fair trade. 

XOXO
Ldy

engy

How long have you been on it? My nightmares disappeared after 6-8 months of being on it and I take one in morning and one at lunch instead of at night.

I hope you can sleep tomorrow!
DX:Sjogrens w/mild Lupus overlap,Hashi,Celiac,Raynauds,Sm.Fiber Neuropathy,POTS,Fibro.,CFS,OI & other dysautonomia.
No thyroid
Fish/Shellfish Allergy

RX:Plaquenil,Synthroid,LCarnitine,CoQ10,ALA,Dribose,Tumeric/Curcumin, Milk Thistle,AdreneVive,Fish Oil,Flaxseed Oil,Magnesium,B12 shots,vit D & C

Saundra

I think 3 months now minus 1-2 weeks where I quit taking it. I do in the am and bedtime.  Not sure I can take 4 more months of this, I mean I know I can but I'm not seeing any reason to.  I stopped previously on my own because of these then after reading posts went back on it.

XOXO
Ldy

Jenny

My Rheumy said I could take both at the same time in the morning once the stomach issues stopped.
65 year old female with back, shoulder, neck and knee pain, dry mouth, losing teeth, dry sinuses,Blood test positive for Sjogrens. Fibromyalgia, Osteoarthritis .
Maloxicam, Lisinopril, Norco, misc.vitamins
4 discs in low back fused. Shoulder replaced 2015 & 2017 Need knee replaced.
4 hand surgeries

Saundra

so all 400 mg in the morning?  If i'm gonna keep trying 400mg I have to get some sleep, preferably at night time.  If I get any more run down with the holidays so close I know thats a prescription for flare up  :'( 

XOXO
Ldy

Sleepy In Seattle

I take both pills together on a full stomach no problem. At first I had nightmares and weird dreams, but like others said, after a while they went away. I guess I would rather live with the temporary nightmares for a few months than the daily nightmare of the autoimmune disease... :P

It might help to take them in the morning rather than at night...however, once you are used to it, it probably won't be an issue - I take mine right before bedtime now and it's simply not an issue anymore.

Are you a very small person? It could be that you need 300mg instead of 400...I believe it's okay to break them in half, but ask your doctor first.

I'm sorry you are having such a problem with it...I didn't have a ton of nightmares, but the ones I had were pretty memorable, extremely unpleasant, and unlike any dreams I have ever had before or since! If they had continued indefinitely, I would probably have stopped the Plaquenil - but they did gradually stop after about 4-5 months.

It may help to do some reading about lucid dreaming and/or relaxation techniques you can use to calm anxiety when you go to bed, and also when you wake up from a bad dream. Sometimes the anxiety of anticipating the nightmares can help trigger them - it's a bad cycle.
Sjogren's, Lupus, Raynaud's, APS
Fatigue, Brain Fog, Autoimmune Hearing Loss, joint/muscle pain, dry mouth, clots in retina, etc
GF, "semi-Paleo" diet, Supplements, Plaquenil 400mg/day, Aspirin 325mg/day (for APS), Methotrexate 7mg/2x per week, Prednisone 3.5mg/day

MaryBee7

I had absolutely no idea about nightmares & plaquenil....holy cow, no wonder I was troubled about this.  I am so grateful for your discussion and sharing about it, thanks to all!  I'm on 200 mg 2x a day....morning/evening.  Certainly hope this goes away soon as I was already a Weird Dreamer. 

Saundra

I have an appt tomorrow with my rheumy so I'll be good till we see what he says.  sort of

XOXO
Ldy

gmomjuju

Just saw my rheumy today.  I had been taking 200 mg in the am and 200 @ dinner.  She said to take them both together in the AM as you get more bang for your buck.  Come to think of it, I have had some weird dreams since I started plaquenil in late September.  I can't label them as nightmares though  (at least not yet).

Good luck with your dosaging.

Judy

sherrylovvorn

I have been on plaquenil for about ten years and now I am having horrific nightmares....sometimes 6 or 7 a night. Anyone else have this problem

Carebear

If I take Plaquenil in the evening I have violent nightmares, so I take it in the morning.  No more nightmares.
Sjogren's syndrome, RA,  Raynaud's phenomenon, Celiac Disease, Hashimoto's Thyroiditis, Grave's Disease, Fibromyalgia, Osteoarthritis, Osteopenia, Cervical Stenosis

Gabapentin, Methotrexate, Synthroid, Dexilant, Domperidone, Metronidazole, Pennsaid, folic acid.

BKreader

I had some pretty wild dreams when I first started Plaquenil but these seemed to dissipate after 3 months. I often thought I should write them down they seemed look good inspiration for movies or novels. I believe this is a common side effect that often passes eith time. I could be wrong, but I thought Plaquenil builds up in your system so guess I don't understand the idea of taking it all in the morning. I thought keeping in your system at consistent levels would be best. I take it at breakfast and right after dinner. I would discuss this with you doctor before changing your dosing schedule.

Plaquenil has been extremely helpful in making my life more "normal". My overall quality of life has improved immensely. I encourage sticking with it if you can, but your doctor may be able to offers other options of this isn't working for you. I know it can be diificult recovering from such rough nights. I also avoid any scary or highly stressful/ emotional TV in the evening = no Walking Dead, Break Bad or other similar shows they totally mess with my dream fodder.
Primary Lupus, secondary atypical Sjogren's, Recurring episcleritis, Esophageal spasms, Hashimoto's, GERD, Perioral Dermatitis
Levothyroxine, Liothyronine Sodium, Plaquinil, Prilosec
Salmon oil, Flax oil, Restasis, Tears Naturale

Emics

Hello, I would like to update this topic. I have been on Plaquenil for about one month and a half and in the last two weeks I have nightmares and very long and repetitive weird dreams. Other nights I am awakened and I can't sleep (like last night). I have never had sleeping problems.
Does it happen the same to you? I suppose I have reached levels on my blood and that is the reason why I have this adverse effect.
I am taking 200 mgr at breakfast and 200 mgr at dinner. I don't want to change this schedule because I have read it is the best way to reach uniform levels in blood.
Is it probably it will disappear in some months?

irish

You could take 1 pill am and 1 pill at noon if you don't want to take both pills at once. I took mine both at the same time around 2 PM. Never had nightmares though. I quit the med for 10 months due to reflux that got much worse when I took the pills. I now restarting and will do one pill at a time twice a day.

You will have to play with the dosage and you are the only one who can make the decision to change dosage times or quit the drug. Could also take just one pill in the morning and see if that helps at all. Irish

Deb 27

I had to stop taking it at night b/c of bad dreams. But it also gave me anxiety and depression.  I cut back to 200 once a day, so I am hoping it works for me. Good luck to you!
Sjogrens and RA,  Morphea (skin scleroderma), Hashimoto's, 
Nexium, synthroid, HRT, plaquenil,  Restasis, Maxi-tears supplement, L-glutathionne, CoQ10, folate, trintillex,  multi vitamin. lisinopril.