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It appears medical issues and I are getting too well aquainted..

Started by AAACGRL, July 23, 2012, 07:53:26 AM

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AAACGRL

So there has always been a question as to if I have had IC. Lately though I have been really uncomfortable. And it cannot be a uti as I have been on three antibiotics for a month. I am so embarassed to call my primary dr yet AGAIN. For yet another "issue".  I was curious if any of u have IC and what are your symptoms? I have read it can be connected to auto immune issues..

jazzlover

You need to call. Sometimes UTI's are hard to clear. I heard on the news the other day that there is a new type of e.coli that gets into the bladder and it can take up to 3 months to clear it.

I have IC and it involved intense pain 24/7. Like having the worst UTI ever.. and it never goes away. I am much better now, thankfully! It must have been directly related to my Lyme disease, because after long term Lyme treatment, the IC was 90% better. I only OCCASIONALLY have a flare... like once every 2 yrs or so!

I take D-Mannose twice a day to ward off infections. Works like a charm!
Mast Cell Activation Syndrome (MCAS), Salicylate Sensitivity,  Interstitial Cystitis,  gluten intolerance, Raynaud's, Sjogren's, A-fib; cytomegalovirus, mycoplasma,  recovered from Lyme disease

AAACGRL

Jazzlover- Well I went in today.  They said the urine is totally clear but will send it off for a culture. In the mean time, back to more antibiotics and some pyridium.
They said if the culture is fine then looks like I'm facing IC and back to the urologist.  I can say when they pushed on my bladder I jumped.  It feels like someone has been taking a bat to it.  So we'll see. Thanks for your info! :)

artistangie

Just pooping in to say I'm wishing you the best. Feel better soon!

jazzlover

Mast Cell Activation Syndrome (MCAS), Salicylate Sensitivity,  Interstitial Cystitis,  gluten intolerance, Raynaud's, Sjogren's, A-fib; cytomegalovirus, mycoplasma,  recovered from Lyme disease