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Poem in honor of Sjogren's Awareness Day, July 23

Started by Cheryl, July 21, 2012, 06:43:38 AM

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Cheryl

I have written the following poem in an effort to explain this syndrome.  You have my permission to copy and share it (for personal use only.)
Cheryl

Please Understand About Sjogren's Syndrome

My knuckles are bumpy
Aches make me grumpy
I'd love to feel 20 again
I hide from the sun
And most outdoor fun
Like a hermit since Sjogren's began

Bright lights make me hurt
Eyes feel full of dirt
Drops are my very best friend
The pill box is bursting
(even one for thirsting!)
But symptoms appear without end

Muscles are tight
Digestion's not right
My skin is all spotted and dark
Thyroid's gone whacky
Memory's lacking
(I can't even find where I park.)

So be patient with me
When I act differently
I'm not intentionally feeling this way
Symptoms may worsen
But I'm still the same person
And tomorrow I'll have a good day!

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Bucky

Good job, Cheryl!!  ;D Well put!  Thanks for sharing with us.

Bucky
Come sit a spell and join in live chat - we serve non-fattening, zero calorie goodies while discussing all kinds of things.  ;D

http://www.sjogrensworld.org/chats.htm   (find our chat times here!)

iraisin

ooooh! very nice!

I wonder if you are planning on contributing this to the Sjogren's Art League I am trying to set up for Sjogren's awareness?

Cheryl

Iraisin,
This has been on the burner for awhile, so I can't say that I wrote it specificly for that project :).  Will it be a non-profit publication intended to educate others?  You can pm me about it!
Cheryl
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lynnmarie219

You hit the nail on the head! Thanks for sharing this with us Cheryl...very nice! :D


Cheryl

Chat co-host on Thursdays at 8:00 Eastern time

Gayle

This is great! Good job!!!! I will be sharing!


Cdbhappy

What a poetic talent you have. I think you must know my symptoms like the back of your hand because I couldn't have described them better!
Cdbhappy
Lupus, fibromyalgia, sjogrens, bladder cancer.
One day at a time- learning how to mange my changing body.

Cheryl

Cdbhappy,
Yes, I know them well  :).    (Thank you!)
Cheryl
Chat co-host on Thursdays at 8:00 Eastern time

sass

I LOVE IT!!!!    you are very talented indeed!    ~sass~