Funny story about stupid people.

[nancylee]

I havent been around for a while. I have been having the same old same old health issues. If anyone remembers me, I have TTP, which is a rare blood disease that is fueled by Sojgerns and my other autoimmune issues. I have had blood transfusions, Rounds and rounds of IVIG, 5 rounds of Chemo, 67 days straight of Plasma exchanges. ( one time) and too many drugs to list.

So, a group of my girlfriends all go out to dinner and they have an intervention with me and want me to follow the diet that the tennis player, Williams is on since she is now cured and back playing tennis. "If she can do it, you can do it"

Are you fricken kidding me..??

[Joe S.]

While I understand that they are looking to help you, They are kidding themselves if thay think that is the solution.

[Gayle]

Amazing... guess it is nice they care... tell them next time ya'll go out it is strictly for the party!

Hope you feel better!!
Gayle

[jazzlover]

Yeah, if the patient doesn't get well, blame the patient.

[iraisin]

She's not cured. She had to bail out of her last match due to fatigue. Go look for my post from a couple of days ago titled, "Good info for newbies and old timers". There's a link in there that you can send your friends - it explains sjogren's pretty well.

I'm on the vegan diet, it has helped, but there's no magic bullet for this disease. I was down most of the week last week and am still hurting and whiney.

Good luck to you with this stuff. I find situations like the one you described very demeaning. They belittle what you are going through as if you are wanting to go through it. Give me a break. I'd much rather be spending my medicine money and doctor visit money on new clothes and new shoes and a vacation in the bahamas...on a jet ski.

[slccom]

I'm so sorry. Unfortunately, with chronic illness you find out who your friends are and are not. I see others say that they are "caring," but what I hear is "deaf." They don't understand, and they don't want to. They want you to accommodate them, not the other way around. It just doesn't work that way.

I hope you can find some new friends who truly care and try to help you, not bully you.

Hugs, Sharon

[jazzlover]

Give me a break. I'd much rather be spending my medicine money and doctor visit money on new clothes and new shoes and a vacation in the bahamas...on a jet ski.

-Amen to that!

[Sadie963]

Unbelievable!  All I can think of as a response to this "solution".

"If ignorance is bliss"...your dinner table was filled with some extremely happy campers! "


However I prefer to use this adage a little differently.

I try not to take ignorant comments personally and my bliss is unharmed but not unaware.             

[quietdynamics]

Wow...I don't think I would even want to be a fly on the wall during the planning sessions...geesh!

I would have handed them the tab for my dinner 

[Sleepy In Seattle]

I think it's great that people care enough to do research, and want to help enough that they are willing to alienate you with an "intervention" to do it.

If they love you that much, they should also love you enough to do some MORE research and realize that they can help you more by offering to help with things like running errands, bringing over food, rent a movie and come keep you company while you rest, etc....

As far as using the life example of a single person because they're a celebrity, if we all did that the world would fall apart. Celebrities are a bunch of whackos!!!!! 

[jazzlover]

Sleepy .. you are right!!

Nancy... what did you tell them???

[eye2dry]

Yeah.....they are freakin' kidding you!


eye2dry

[stephL]

I'm sorry you found yourself in such an awkward position nancylee, and in the middle of a restaurant, no less.

[Luna]

 That was stupid. Sorry you had to deal with that.

Luna

[mshistory]

Wow! With friends like these, ...

And on that note, I need to get ready for yet another doctor's appointment for yet another potential lung infection thanks to this lovely disease that Venus' superamazingallhealingdiet will supposedly "cure."