Sjogren's Awareness...that's us

[Linda196]

I'm glad you asked about protocols, because, as a registered non-profit organization, Sjogren's World must recuse itself as a participant in any of these activities. This means that any activities or projects you feel compelled to activate must be done as a separate entity, not as affiliates of sjogrensworld.org.

This site cannot take part in actively raising funds, either for itself or other organizations, nor can it act as a relay or holding site for any sales  or donation related activities. As you've probably all noticed, our fund raising is limited to a notice on our home page regarding the contributions made possible by Amazon.com by shopping there through our link, and one mention in the FAQ section regarding donations. These restrictions are to maintain our non-profit charitable organization designation.

[iraisin]

OK. Thanks for that.

So are we able to continue communicating with each other about this? Or do I need to find an alternate method of communication between us volunteers.

[iraisin]

Well, everyone. I'll make some calls to some folks I know who know lawyers and get that paperwork drawn up. I keep you filled in on that front.

and I guess Sjogren's Art League will be the name.

I had some ideas about the poetry and how to display it. We can have it hand written, then have it scanned, blown up, and printed like art for the exhibit. That would look really cool.

So start dreaming up art and poetry that describes Sjogren's: beit moody, via color, literal translations, whatever. have fun being creative. And teach people what this is.

I'll be back with more as soon as I call some folks.

[artistangie]

i just want you to was still alistenin' 

[Linda196]

I don't think communicating here would be a problem, it may even help some others find ways to promote awareness in their own area. You may find, however, that for any detailed planning or for communication involving the use of identities or specific locations, PMs would be better.

[iraisin]

Thank you, Linda. Will do.

Angie, I don't understand what you said. Please say it another way for my brain?

[artistangie]

that i havent left the thread, that i am still reading and watching and will still help    

[iraisin]

oh. Ha!

Thank you.

[iraisin]

There's a couple where I work that has set up a 501c. The wife is on vacation right now, but I will ask her about it all when she gets back.

Also, I understand I need a board of directors. Anyone interested? I will also ask my rheumy and my cousin who is a corporate lawyer to be on the board.

[Gayle]

I can, if you want/need me!

[iraisin]

Thank you, Gayle. Check your e-mail.

[sass]

count me in someway...

[sass]

I WANT TO JOIN THE SJOGREN'S AWARENESS TEAM...IS THERE A SURVEY OR SOMETHING THAT I CAN PUT MYSELF DOWN ON TO BE A SJOGREN AWARENESS WARRIOR.     you really rock lady and I have to commend your efforts...Don't you think so members???  Is there anyone else that wants to join me too?  So many changes are occuring and we have to be able to reach people somehow someway....I am wanting to support Sjogrens World and be  productive in a way that we can help everyone out there that needs it.  I am available to be on your board of directors if so needed.

I buy thru Amazon and Sjogrens World and I want to help with Sjogren's Awareness..What can we do iraisin???    ~sass~

[iraisin]

OKAY!!! You're in!

Yes, I need board members - but don't know how many.

I would like a lawyer, a writer, someone associated with an art museum, someone associated with a medical institution, and patients (an accountant wouldn't be bad either).

I want to make this world wide like Sjogren's World. I am just getting educated on this. So whatever info folks can offer to help guide me thru this would be helpful.

And as always, your love and support to keep me going as I'm sure I will face difficult times and counter productive comments/attitudes.

Thank you.

[Gayle]

Doing this From Texas require a minimum of 3 board members. There is no limit though one must be careful of having too many as it confuses the issues. Articles of Inc are a good start as is a fictitious name search, I sent you the number to call in Tx for that.
Gayle