Skeleton on fire

[ashewoman]

Not really, but it sure feels like it.  I wouldn't need a xray to tell you exactly where every bone is right now.  And they all hurt.  Granted some of them hurt worse than others but I swear even the last little tip on my pinkie fingers and baby toes hurt right now.  Oddly, I'm fairly sure I have no bones whatsoever in my ear lobes but both of them also hurt.  Pressure like I'm wearing really mean-natured clip on earrings or something.  I'm irritated too.  I'd like to pinch someone.  But I know it wouldn't help them or me so I'll forego taking pinching action. 

I think it is the humidity because it's been so muggy the last couple of days.  So I turned off the humidifier.  I'd rather have dry skin than this bone pain right now if I must have one or the other.  Besides the paraffin spa is really helping with the dry skin so I'm not sure I need a fogger in here.  Anyway, please forgive me for going on and on but gosh it seems to help deal with the feeling of endlessness to say (or at least type about) what I feel right now which is AHHHHHHHHHHHHHHH!  And I'm trying to remember that it will get better before it gets worse again. Even if it feels like this part is going to drag on forever.  GG

[Meld256]

Oh, I'm sorry every bone in your body is hurting so!  I and so many others can relate.

The weather seems to play havoc with us.  The cold winter weather makes my bones and muscles hurt, and the heat just makes me feel awful all over.     We have a hard time getting the weather just right to feel ok, but those days are wonderful when they happen!! 

I sure hope you being to feel better tomorrow.

[CindyD]

WOW!! You HURT too?? Is that Sjogrens? I have Fibromyalgia and Sjogrens Syndrome and I really dont know much about Sjogrens! Im sorry you feel that way and i can certainly sympathize!   And do you also find the weather plays a large part in it?? I do too but i thought that was Fibro?? I dont really know that difference. LOL  Buit just wanted you to know your NOT alone! Im NEW here and Just made my first post on the board trying to describe how I feel and symptoms. Hoping to meet people on the same wave length LOL.  I hope you are feeling better SOON!!!

[ashewoman]

CindyD--- Well I'm no expert, but from what I've been told often Sjogrens comes with RA and fibro.  My rheumy told me he put RA on my chart already because if I don't have it with all the bone pain I am developing it and they go hand in hand.  I was diagnosed with Fibro when I was 24 long before all the other symptoms made sense and combined to get the Sjogrens diagnosis.  In the beginning it was just muscles, then it was bones too.  How everything hurts.  LOL

Meld--- I went to ortho today and he gave me injections.  He said if it helps I can have more in more places.  Today he did my left knee and left hip.  And I go back July 5th.  At some point he will run out of spots to stick me but he said he can give up to three shots in each location ever so often.  We'll see how that helps.  My hip feels much better already.  But my knee kind of feels like it has a balloon inside it so it wobbles.  He said that will go away in a day or two and that's why he can't give me more than two shots at a time.  I don't know what is in them but they were different meds in each place.  I think getting the diagnosis in my chart is making some of the departments more open to giving me help.  WHich is good because IT's About Time Darnit!  LOL  I feel like sometimes half of my limited energy is going towards convincing them I need relief.  So it was good that today's appt didn't feel like a struggle.  Just help for what ails me.