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I hate the sun and heat....

Started by cremer, May 28, 2012, 09:24:36 AM

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cremer

It's been so hot here in the UK for the last week. At the weekend I had my son's football tournament, then the next day his award ceremony, all these were outdoors in 27 degree centigrade temperatures.

I lathered myself in factor 50 suncream, but still have been really burnt, I feel so drained it's unreal and my joints are really tender and hurting, also my head feels like it's going to explode and I have really bad itching all over.

I hate the sun, but it had to be done, now I've got a night shift ahead of me, great just what I need.

Cdbhappy

I can only agree 100%with you. The summer heat is just starting in Texas, and I am already feeling so much worse: nausea, fatigue, weakness.   I stay out of the sun, but the heat still just drains me.

Cdbhappy
Lupus, fibromyalgia, sjogrens, bladder cancer.
One day at a time- learning how to mange my changing body.

jazzlover

I'm a Texas girl and cannot take the heat either. (I"m currently living elsewhere and it's pretty hot here too) .. We go to TX every summer and driving in the car burns my eyes. I have to get some Noir sunglasses before we go this time.
Mast Cell Activation Syndrome (MCAS), Salicylate Sensitivity,  Interstitial Cystitis,  gluten intolerance, Raynaud's, Sjogren's, A-fib; cytomegalovirus, mycoplasma,  recovered from Lyme disease

cargillwitch

I have raynuads so I LOVE the sun and heat. It feels like finally my whole body can relax.

I have to admit that hot and windy days do play havoc on my eyes now though.
47 female, Sjogrens ,Raynauds,degenerative disc disease.Rheumatoid Arthritis, gastroparesis.

Tuurre

Hi Cremer

Which team are you supporting, i'm a chelsea fan, finally they won cl :) but i'm not a fanatic, most important is enjoying the game, have no problem if the other team win if they deserve it. Was in London in january for the first time watching Chelsea-Sunderland, i loved london and england.

Before i got i'll i loved the sun but now can't stand it! Shade here i come.

Regards Tony

cremer

I actually support Manchester United but in the champions League I was cheering for Chelsea.

I was born in London and I agree a wonderful city.

mshistory

Yep, the sun and I are not friends. I'm extremely photosensitive and will break out in rashes from the sun or exposed fluorescent lights. I just read that SS-A positivity is highly associated with photosensitivity and my SS-A is very high... I wonder how many of us who break out like this in response to the sun are SS-A positive?

BTW, I use SPF 100 and still react!
SLE and SjS with PN. ANA >1:1280 speckled,
SS-A >8.0, RF positive. Botox for migraines, Clonazepam, Zoloft, Imitrex for migraines, CellCept 1000 mg, Plaquenil 200 mg, Restasis, Zofran for nausea, Gabapentin, Evoxac and Norco for pain.

Tuurre

ManU a fantastic club to find and develop young cheap players and make them starplayers and they win too much..... ;)

cremer

Quote from: mshistory on May 28, 2012, 12:40:32 PM
Yep, the sun and I are not friends. I'm extremely photosensitive and will break out in rashes from the sun or exposed fluorescent lights. I just read that SS-A positivity is highly associated with photosensitivity and my SS-A is very high... I wonder how many of us who break out like this in response to the sun are SS-A positive?

BTW, I use SPF 100 and still react!

I'm high in SSA and react to sun and fluorescent lights, especially the ones at work.

Piebird

The heat drains me!!! and I am up in Canada so I dont know how you guys do it.

Hot days feel like I am walking in knee deep oatmeal.

quilt4fun

     I went to a Memorial Service at the cemetery at 8:30 this morning. I had to stand in my husbands shadow to keep out of the sun. It was only around 80;  but after about 15 minutes I headed to the closest tree and some shade---I was feeling dizzy and could feel my heart start to pound.
   What in the world am I going to do when it gets really hot??????? and humid here in South New Jersey????  You don't have to answer that---I know the answer. :(
Age 73. PSS, Gerd, Kidney stones,  dry eyes, dry skin, borderline high cholesterol, osteoporosis. lung scar tissue, calcinosis cutis.                Taking:  Plaquenil, Meloxicam, protonix, potassium citrate, ,calcium+D, Livalo, genteel PM,  Dry Eye Omega.and ,Xiidra and Restatis

Skylar

I find wearing an UV protective shirt and hat make a big difference, staying in the shade and if necessary, under an umbrella. Carrying and umbrella means I can make my own shade.

On a happy note, you must be proud of your son.


cremer

Very proud indeed they finished runners up and he got man of the match so well worth being I'll for.

quietdynamics


Did some minimal tidying around the patio.
Waited until 6pm to trim some low branches from a magnolia bush............whoa...felt dizzy...major headache....tried topamax ....no go.
I was only out there maybe 30 minutes/ temp was 88 in the shade.... :(

This is the 4th summer of heat/sun intolerance at this level.

Maybe I should have worn sunglasses? Felt like a butterknife above my right eye and has lasted for hours.

Got Dear Husband a pair of Manchester United socks for Christmas ...he hung them ?  Mascot?
Sjogrens ANA 1:640; SS-A/B+; Fibro; IBS; Neuro symptoms,Thyroid Anti-bodies; Ocular Rosacea, Livedo reticularis,

"You can't have a positive life with a  negative mind"

Luna

Im like everyone else. The heat drains me. Makes me sick most times. The sun burns my skin. I cannot be in it long. I actually got a slight sunburn Saturday even though i was covered with umbrellas. Hubby made sure i was covered. was out only 4 hours ..

Luna