Could Use a Hug Today

[ohiolady]

Daisy,

You are in my thoughts and prayers.  I hope we can all be a source of love and support for you.  You are such a brave, kind and special woman.

Sending a big hug your way.

Anna

[Skylar]

Sending you a humongous hug - and healing vibes. I wish I could do more.

[lolo1979]

BIG BIG BIG HUGE HUG!!

For what it's worth, I just started a supplement a few weeks ago called Honokiol.  I found a ton of research on it saying that many oncologists are now considering it or already including it as a supplement to standard cancer treatments - supposedly it helps make the cancerous cells more vulnerable to apoptosis (cell death).

I wouldn't take it without running it by your treatment team, but it's certainly worth bringing it up to your docs to see if they think it'd be worth a shot.  Print out and bring the research and let them decide.  Perhaps it could help your chemo work better this time around. 

Here's the link to some research about Honokiol and cancer treatment:

http://www.ncbi.nlm.nih.gov/pubmed/22126780

http://cancerres.aacrjournals.org/content/67/10/4894.abstract

Feel better soon!!

[Gayle]

Dearest Daisy,

I am new but have loved reading all the posts and you always seem to touch me. I am sending bright white lights to surround you, massive prayers and hugs. Just remember this... all you are dealing with is tough... it is nasty and mean... but you are tougher. You and your husband will get through these challenges and the champion you both are, will shine!
xoxo
Gayle

[mylife]

Hi Daisy:  I am new and have really enjoyed the board and everyone's thoughtfulness to each other.

I am sending angels to surround you with peace and comfort and prayers also.

mylife--Katie

[rnathans]

Sending hugs, prayers and healing thoughts your way. hang in there!

[Bucky]

My dearest Daisy,

I've been "seeing" you online when I've been here at different times of the day/night these past few months and was hoping that this round of chemo was making a difference for you.  I'm so sorry to hear about the roadbumps you are going through.

You are never far from my thoughts, especially when I'm here at the computer as "my daisy" is right here next to the computer.  Like I told you way back when . . . this daisy at my computer, is for you.  When I see "my daisy", I can't help but think of you.

When a married couple has been together for 21 years, like you and your husband, you have shared many things.  The older vows at a wedding were, "in sickness and in health".  I'm sure the two of you took those vows to heart.  Your husband taking this year off work to help you on your journey to get well was done with his utmost love for you.  It's a journey for both of you.

I found this saying in some papers of mine and wanted to tell you:

"Just knowing that someone is thinking of you and wishing you well can make you feel a little better, make your cares a little lighter, your heart a little happier, and your day a little brighter.  I'm that someone.       Get Well Soon"

"Wishing you brighter days ahead and hoping you'll soon feel well and strong."

Daisy - may knowing that others truly care for you and wish you the best as you are dealing with this health roadbump help in a small way.

Sending hugs and prayers,
Bucky

[Meld256]

Our dear Daisy,

I'm sending you many soft hugs and hopes for better days.  You are one of our dear angels here~your encouragement and support of all of us is always so appreciated.

We all need help from time to time, and I just hope that the love we can send by way of this forum to you gives you some comfort.  Please keep us updated.  I pray that the scans will show some improvement.

Remember that you are one of our most special friends and we send you blessings and hope. 
Melinda

[gold55]

Dear Daisy, you are in my thoughts and prayers and I'm trying to pray harder for your recuperation!
I am relieved that you have such a dedicated husband.  Try to relax and let everyone else take on the stress.  So many love you and are with you during this trying time.  ((((((HUGSSSS your way))))))!

[shevonne]

I often think of you Daisy cause you were so supportive of me when needed. I definitely have you in my prayers!  Big Hug!!!!!!!!!!!

[A66eyroad]

((((Daisy))))

Holding you in the light.

[Daisy1234]

How wonderful it was to open this thread this morning and see all of the caring and generous responses!  You have warmed my heart so very much with your kindness.   

There is no doubt that there are alot of challenges in life, but as well, there are alot of blessings too.   I counted my blessings this morning and all of you were among them.

with thanks,

Daisy

[Scottietottie]

Hi Daisy 

I've in on this really late. Been off visiting my daughter and haven't been online.

((((( hugs ))))) to add to everybody else's.

Take care - Scottie 

[Persephone]

I'm sorry you are going through such a trying time.  I can't imagine your pain, frustration at the treatment and uncertainty.  The only thing I can do is share a different side of it.  I'm a very practical person, and since I'm not a doctor, magic wand waver or genie, sending you good thoughts and practical info are the only things I've got to give. 

I need to explain some background first, so bear with me.  My husband just went back to work after being at home for nearly 4 months.  He was at home because he shattered a complete disc in his back.  Two MRsI and two emergency surgies later they found that....Some of the pieces slid down and lodged in the spinal column where the spinal cord stops and the cord is replaced by a tangle of nerves that resemble a horse's tail.  If he had shattered the disc above, he would have been paralyzed and unable to walk.  He has caude equina syndrome.  Very simply put, he is paralyzed from about mid gut to thighs (hence the term 'saddle anethesia') and has lost all function there.  His doctors have hope that things will heal, but it will be a minimun of 10 months to a year before his functions will be even be a third of normal.   

I can say with certainty that these has been the best months of my marriage.  It beats hands down even the beginning of our relationship when everything was new and exciting.  It hasn't been all great, though.  There were dark times early on that he didn't know if he wanted to live.  It is very humbling and even humiliating to be 38 yrs old or 93 yrs old and lose function of everything.  Also, during this time, my health got worse, my parents had health issues and they needed our help and our children, at times, drove us nuts with some interesting behavioral issues.  Just figuring out our new normal and learning how to communicate correctly took up a lot of physical, mental and emotional energy. 

The point I want to make is this....Time together, even in the darkest of times, is an awesome gift.  Most couples don't spend that kind of time together until retirement.  I was able to see a side of my husband that I had only caught glimpses of during vacations.  I had always thought out marriage was good as it was.  I learned a few things about him that I wish would disappear, and I also learned new things about him that made me fall in love all the more.  Instead of just saying our marriage vows, we learned how to live them.  Doing that made sitting on the couch together and holding hands while watching bad daytime tv a fun date.  We started sharing and experiencing every day things in a deeper way.  The crazy thing is we didn't tour Italy to get closer, we were just two people in pjs feeling like crap but having a good time.

I understand that you feel like you are burdening him.  My parents, my husband and I, we have all been in the 'needing help' position.  We have all felt the guilt that comes with that position.  It takes courage, respect and trust...courage to admit that you can't do it all or even a quarter of it and that you need help.  Respect meaning that you openly talk how it makes you feel and then the other person explains  how they view and feel about the situation.  Then make a daily life chart listing every single daily chore.  Write who does what next to each chore.  Understand that in doing this, you may not be able to put your name by a lot of items.  You may also see that some items aren't really that important.  However, it is a honest black and white account that no one person is doing everything and that you are being helful.  Then, the hard part...trust that you aren't being viewed as a burden.  That last one is the hardest one for me.  No matter how many times someone says "it's okay.  I've got it.  You just rest." you won't believe it until you stop seeing yourself that way.

While you give so much comfort to others, it takes great courage to say that you are having a bad mental day and you need a little help.  Let us return all that you give so freely...Lean on us as much as you need....I can 'carry' you for a bit; I'm having a good muscle and joint day.

Persephone

   

[Katybarstool]

Daisy

You are a very special lady and have a very special husband too. You are both in my thoughts and prayers.

Persephone, hugs to you and your beloved you. You sound an awesome team.

God bless
Kathyx