Could Use a Hug Today

[Daisy1234]

Hi everyone,

Been hitting some major health roadbumps lately.  As some of you kind people may remember, I'm in the middle of chemotherapy for 2nd time around for treatment of Non-Hodgins Lymphoma caused by my severe Sjogrens. 

Things are not going so well for me with the effectiveness of the treatment.  I had severe reactions to the first 4 months of chemotherapy and so the chemo was stopped for a month and a half to give me a break and then was restarted in the middle of January 2012 and is ongoing.   Just was at the cancer clinic, and I'm down 8lbs since the end of February (am already very slender so don't have any weight to spare) and all of my B symptoms (those related to the lymphoma) returned early in March and are continuing. 

Being sent for some additional CT scans to see what's happening, that is if they can determine that from a CT.  A PET scan is very hard to get approval for where I live.   My health seems so precarious these days and my other Sjs related issues are aggravated by the chemotherapy and so its like I'm in a constant bad flare. 

My wonderful and caring husband took a year off from his job as of the first of January to just stay home and take care of me so I really shouldn't complain so much, but I am starting to get really concerned now about my longevity (I'm in my mid 40's) and I don't want to burden him further by laying this all on his shoulders as he is so very good to me.

Just needed to get this off my chest and I really could use a hug from the special people in this forum who understand what its like to wake up every day with this disease.

Daisy

[Sleepy In Seattle]

****HUG!!!****

SENDING EVERY GOOD WISH to you....

[eyeamdry]

Daisy, blessings to you and prayers for better health.  What a wonderful husband you have.  Please do not feel concerned that he is doing "too much" for you.  That's what partner's are for.  You would do the same for him, I'm sure and he knows that.  I also have a wonderful husband, but his care for me is more doing chores that i can't do.

Please stay with us and post how you are doing.  Lucy

[susan]

Dear Daisy,
Your thoughts are always expressed so well when you post.
I am so sorry to hear that your treatment is not going well, and can imagine that you are indeed fearful about your long-term prognosis. I think that it is therapeutic and very brave to express that---for you and for others here, myself included, who may have to walk the path you are.
Your calm, deliberate manner have inspired me! I am not surprised that your husband is caring for you in the way that he is----you come across in your postings as a very special, precious person.
Although your worst fears may be realized, it is also possible that a different outcome will present itself. I think you will have to cling to that as long as you can, because it is possible.
Please know that I will be thinking of you, praying for you and your husband.

[4Kids]

Daisy,

You are such an inspiration. I always look forward to using your posts. I am so sorry you have got such an unfair amount of challenges. Although we have never met, I feel you are someone I would love to be friends with.

Hugs, love, peace and prayers to you.

Jackie

[Carolina]

Dearest Daisy,

Sending you love and hugs.

The disease sucks, but you are not the disease..........

I hope you can find something pleasant or funny to be part of your day.

Bless your husband, let him love and care for you.

And know we love you.

Hugs

Elaine

[lindaneall]

Dear Daisy,

I have been thinking about you and wondering how you have been doing.  I am so sorry to hear of how rough things have been and was hoping to hear better news.  I am so glad that you have such a loving and supportive husband.  What an incredible blessing.  I am praying for you, and truly hope that things will turn the corner shortly.  Please do keep us posted.

[quilt4fun]

Daisy,
   Sometimes it's hard to understand why things happen the way they do----I will be praying for you.  And a big hug. 

[Crymeariver]

Many hugs Daisy. I'm so sorry your lymphoma relapsed and seems difficult to treat with the Sjs.   I truly hope your upcoming scans show at least partial response to the chemo treatments. 

Remember everyday that lymphoma is a very treatable cancer and there are many different treatment options available if one doesn't work. 

Best wishes to you and your husband. 

[Carebear]

Dearest precious Daisy,

I hope you can feel my arms wrapped around you tight.  I am so sorry that this disease has dealt you such a blow. 

It's spring time here on the Canadian prairies, and soon I'll be seeing the daisies in my garden.  And it will remind me of you.  Take care, friend.

[Cheryl]

Hugs and prayers for you, Daisy
Cheryl

[artsyamerican]

{{HUGS}} for you.  I pray things resolve soon! BTW - I did not know there was a connection between Sjogrens and Lymphoma. 

[Belsey1]

Praying for you Daisy.  As Carolina said, let your husband love and care for you.  I am sure he didn't make the decision to take a year off from work without much deliberation.  He is now where he wants to be.  Appreciate him, as I know you do, and count him among your blessings.  Hope his comfort and care makes the difference in your journey.

[mshistory]

Oh Daisy. I am sending you the warmest thoughts and gentlest hugs. You are such a sweet, caring spirit and I am so sorry you are struggling so much. I have been keeping you in my prayers and will continue to pray for a recovery for you.

[lori]

lifted you inprayer.

so glad you have your hubby to take care of you.

((((((hugs)))))

lori