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Started Cellcept

Started by Woolygimp, April 02, 2012, 02:15:48 PM

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Ceceraven

#15
April 05, 2012, 01:49:53 PM
    woolygimp, I am so glad you are happy  :) with your doc!


                                      Be good to yourself,   Ceceraven

anita

#16
April 05, 2012, 01:57:18 PM
Woolygimp,

I too had a very quick response to cellcept.  I noticed a huge difference in about 2 weeks (at 1gm/day).  Sadly, I got an unrelated, possibly life threatening, infection and had to stop.  I never did restart it, but may consider it at some point again. 
52 yr old SjS, APS w/strokes, Autonomic Neuropathy, PN, Nephrogenic DI, (CVID) IgG def., Cushing's, Asthma, Gastroparesis.  Sero-neg w/+ lip biopsy.  Meds: IVIG & pre-meds, Arixtra, Aspirin, Plaquenil, Cardizem, Toprol XL, Domperidone, Nexium, Midodrine, Symbicort, Fentanyl, Percocet, Zofran

Woolygimp

#17
April 11, 2012, 03:55:04 PM
Still doing great.  Been very active the last week and going on 4-5 hours of sleep on some days, and waking up refreshed.   Normally, I'd sleep 8-12 hours and wake up almost like I had never slept to begin with.

I do want to say that Cellcept isn't the only thing I'm doing to treat this.  I'm on a gluten free, dairy free, soy free diet, prednisone (tapering), Plaquenil, and vitamins. 
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