depression... esp during a really bad day

[valene2009]

i have been in my pjs all day and its so pretty outside and warm.. yest i did a few thngs-went to a craft fair and out to lunch w/ my mom and friend and came home and slept over 3 hours..then i had to make myself get up cause i knew i wouldnt be able to sleep through the night if i didnt.. i could barely move..

just venting everyone..  i hate being so depressed and not feeling good. and i want a new left eye... it is so dry and hurts.. just needed to vent.thanks.. tired of all my bad days.. and i know being in this funk just makes me feel worse.. so what to do?

[MissyLouWho?]

We all go through this from time to time.  Mine was yesterday and the day before.  Today is good.  Feel better Val!  Tomorrow is a new day    (((HUGS)))

[valene2009]

thanks missy.. i needed that..

[GeorgiaGirl]

Yes, tomorrow is a new day!  I hope yours is much better than today! 

[Luna]

We deal with so much pain and discomfort on a daily basis, that when we get a flare, we do get depressed. I believe it is only normal. It brings us down. Making yourself go and do things is good. You seem to know how to handle this. Im glad. I hope you feel better soon.

Luna

[valene2009]

thanks everyone... love your name Luna... reminds me of a girl from a soap i used to watch.. very cool name..
you are right.. i should have gotten dressed and at least went to a discount store or something.. just to get out... o well.. we all have our days huh.

[Piebird]

A note to anyone and everyone. I suffer from depression. If you feel it too Please come and vent. We will listen and support you while you need it. Tomorrow isn't always a better day. Some of us have a progressive illness. However, With support, time, and understanding it is worth living.

[meow]

Some days just hanging in there is all we can manage. I come here when I feel depressed, too and all of these wonderful people are supportive and funny and taking everything philosophically. It is extraordinarily heartening.

I also see people with way more problems than me. I am working full time, and doing almost all of the things I ever did. Slower, dryer and tired-er, but still doing. Makes me very very grateful.

This forum and these people are an oasis in the SJS desert.

[Madison Granny]

I think a person with SJS can help but be depressed some days.  All the aches and pains we have to enkure is more than we can take sometimes.  And after feeling pretty good for awhile and then all of a sudden you feel lousy who would not get depressed easily.  I know I do.  I was doing good but in the last few days my feet had started to hurt badly and I may having a tooth go bad and all of a sudden colon troubles.

[valene2009]

thanks everyone and esp Piebird.. i couldnt agree more..tomorrow is always a new day but not necessarily a better one.. thanks for letting me vent.. i cant vent anymore to my mom-she cant handle this-i have written other posts on this ..it just upsets her too much-its been 5years for me..  she is a good mom but cant handle it-she has epilepsy, breast cancer survivor and used to get migraines since age of 12.. 
my sis is there for me -but she is a social worker and listens all day long to people & has 2 small kids..

thank God for this support group.. I love you guys for trying to help..and you do help by listening.

[Piebird]

Hugs to Val

[CathyO]

There's always a crappy tv show or something on, I can look at them and say I fell like heck but they've got it worse! Like that tv show where they get the blood results and they aren't the baby's dad they thought or something.  Zombieland was just on, that's a good movie, pretty entertaining. 4 Humans drive around and kill zombies with big guns. I've been watching a lot of Science and Discovery Channel. I like the one called "Oddities" there's some wierd stuff in their shop and lots of people! THere's a guy obsessed with bones. And there's the former model, former mortician, and now a clothes designer, she comes into the store to buy stuff. The sword swallower came in, that was a neat trick. History Channel is good, I feel like I'm learning something. If I'm achy and sore it gets my mind off my pain and feeling crappy and sorry for myself and kills some time.

[quietdynamics]

I think it would be "abnormal" not to get down.

But, Val I am so happy you got to go to a fair and have lunch....wow. Of course you were tired! Did the fear come at the possibility you would not be able to sleep? I know for me once the cycle goes wacky ...I get really upset (it can put me into mode = flare). I hate waking up late.
I was just telling my daughter (18yrs) that I hate this rut. I do know that sitting in the sun or just an errand in the car helps me. If you sit for 10-15 mins. with you head so that the sunlight can enter the retina (but, not looking at the sun....just gaze in the suns' direction) your brain creates serotonin and endorphins. Music does the same thing. LOL so sometimes I use both!!!
This does not work through a window.  And if you walk same thing (my goal for the spring....talk about self-medicate)

[valene2009]

yes music usually does cheer me up.. i love it!
I cant really look in the sun even w/ my dark shades. im very photosensitive but i try to at least open my door and step out for a minute.. now when it gets super hot here i cant -like 110.. too hot.. and i hvae passed out.. such issus.. You know what---i could and just spray myself with a hose in my backyard... i have to stop saying "i can't " and focus on what "i can " do.. gosh just writing this made me realize that!  thanks!!!!

i think i slept somuch cause my allergies are very bad here-eyes so dry and itchy and headaches every morning-tree pollen.. but the good news is i get my 6 year old niece from school today from 2:30 til after 5pm!  she is somuch fun~!

[Belsey1]

The depression is the pits...many days, like you, I can not make myself get out of the house. I have found though, if I can at least get in the car and ride around for 10-15 minutes I feel remarkably better.  doing this, you don't even have to get out of your PJs if you feel like you can't.  Maybe when you return you will feel well enough to put on some real clothes.  If not, at least you will feel some better. 

Hang in there...as I give you advice, I don't heed myself at times. 

I understand the Momma thing too.  My mother is no longer living, but my daughter (34) wants to hear nothing about my SJS...partly because she doesn't want to admit I am sick and the other part, I think, is in shame as she has told me for the 3 or 4 years prior to my diagnosis that I was a hypochondriac...not just to my face, but in front of her friends, family etc.