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Video - A Life In The Day of Sjodry...

Started by SjoDry, February 08, 2012, 01:59:18 PM

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SjoDry

Hi all.

I decided to make a video about one of my typical days.
Can you relate?

http://www.youtube.com/watch?v=3p4LWmPSgio

stephL

Wow that was outstanding. You're very talented to be able to make your point so well. Thank you, I enjoyed the video.
"Unlike weakness, fatigue can be alleviated by periods of rest." -Wikipedia: Fatigue (medical)

Jellyb

I loved it. It was beautiful and funny and the music was perfect. I am going to show it to my daughter and my husband too!

Thank you :-)

Diane54

Sjogren's diagnosed Dec 20, 2010, Hypothyroid, Diabetes 2, Autoimmune Hepatitis, Mitral Valve  Prolapse, Gerds, Antiphospholipid Syndrome,  Synthroid, Paxil, Prilosec, Evoxac, Plaquenil, Tramadol, Simvistatin, Restasis, Baby Asprin, vitamin D, Januvia, Amlodipine, Gabapentine

TripleC


  Fantastic !!  What a nice job you did and exactly what a lot of us go through day after day ....

SjoDry

A perfect example of my foggy brain...the title was supposed to be:
A Day in the Life of SjoDry..Hahaha ;D

Duchess

This was so good. Funny, but oh so real.

Thank you much.

Duchess
58 y/o, Sjogren's, Lupus, Raynaud's, Mitral Valve Repair, Asthma, Myofascial Pain. Plaquenil, Inhalers, Ibuprofen,Exovac, Vitamin D, Vitamin B-12, Omega 3, Eye Drops, Quinipril, Massage therapy.

Seeker

Every day is an adventure, waiting to happen.

Cheryl

Great video!  I didn't even notice the title blooper  :) 
Cheryl
Chat co-host on Thursdays at 8:00 Eastern time

malew/sjogrens

Very well put together. This is totally how I feel. Especially about the worrying about the future. I often worry how this disease will progress and if I will be able to work.

Patze

Outstanding SjoDry!  Sure does describe my days and nights! 


Patze
Our home page  http://www.sjogrensworld.org/index.html
Live chats  http://sjogrensworld.org/chats.htm

Everything has beauty, but not everyone sees it - Confucius

The important thing is not to stop questioning ~ Albert Einstein ~

Sero Negative Queen

Doxie

Wow, I love your video, and can really relate!

Jenny

Good description. Could have been my story too.
65 year old female with back, shoulder, neck and knee pain, dry mouth, losing teeth, dry sinuses,Blood test positive for Sjogrens. Fibromyalgia, Osteoarthritis .
Maloxicam, Lisinopril, Norco, misc.vitamins
4 discs in low back fused. Shoulder replaced 2015 & 2017 Need knee replaced.
4 hand surgeries

MissyLouWho?

Thank you for that!  So well done, too!  I left it up on the computer and told my hubby to watch it.  He said he'd watch it "some other day".  He's not very comfortable with my diagnosis yet and doesn't like to talk about it.  He gets annoyed when I don't get things done or need naps so often because he doesn't understand what is happening to me.  He tries to be supportive, but is still skeptical.

I told him it was a funny video about SJS that someone posted on youtube so he'd watch it.  But my motives were to get him to understand SJS a bit better.  I went in the bathroom to put in my eyedrops and listened.  I heard the music playing and waited a minute to come out.  He didn't even look up so I know he was hurrying to read it all. After it was over he just said "Wow.  That's YOU.  Did you make that?" I laughed and said "no but it's funny how so many of the things I complain about are the same things that someone else goes through, huh?"  He just have me a"hmmm..." like he was rethinking his position that maybe I'm not blowing this out of proportion like he previously thought...  Thanks for helping me bring my hubby around!

Liz D.

That was great!!  You got so many of our problems to the fore in a such a short, simple way.  I loved it!

Liz D.
60 year old female
Sjogrens Syndrome (diagnosed 2004), Hypothryoidism, Asthma, Osteoporosis
Meds:  Plaquenil 200 mg; Levoxyl 100mcg; Evoxac, Symbicort, Flonase, Protonix 40 mg.,  Prozac 40 mg. Naproxen 500 mg., vitamins, calcium, flaxseed/cod liver oil, L- lysine, iron