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testing for celiac

Started by lori, January 19, 2012, 01:50:34 PM

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lori

dr. told me to eat gluten 5 days before endoscope... well i started to eat ssoner than that and had so much pain in my gut i gave up and went back to gluten free.... someone posted on anotehr thread you have to eat gluten 90 days before....

so is it worth it to start ona high level of gluten for 4 days or is it useless at this point???

i m dreading the paina dn bloating thats gonna happen.... :(

lori

MissyLouWho?

Hi lori, the reason for so much gluten is to make sure the spot they biopsy will have villi damage.  When my daughter had it done a few years ago, it was 2 weeks of gluten filled foods before the endoscopy.  But she was 15 months old.

Hope this helps  :)

cargillwitch

the gastroenterologist who did my endoscopy wanted a full months worth of " plenty of gluten" when I inquired as to what that would look like he stated at least four pieces of bread and a large bowl of pasta daily.I had been gluten-free for 2 years prior and had resolved many issues but gave it a go. I lasted three days.The bloating, cramps and nausea came back full force. I decided that having an "official" diagnosis was less important to me than being as comfortable as possible.Either way I would continue to keep gluten out of my diet.
In light of this my biopsy came back "inconclusive".I however, have concluded that gluten and I have permanently parted ways!
47 female, Sjogrens ,Raynauds,degenerative disc disease.Rheumatoid Arthritis, gastroparesis.

Seeker

Howdy lori, Sorry you are having such a time of it.  It seems  you have a hard choice to make.  You can either go through the pain of testing or go back on a gluten free diet.   Many people  go on the Gluten free diet in lieu of the testing.  It can take several weeks of Gluten free before a person will see any results.  On the other hand if you go through the testing they can see what kind of damage has been done to the villi.  Here's the conundrum,  if you go gluten free, your villi will heal and a test will show negative results.  If you eat gluten, you will damage your villi again and your test will be positive. You need to ask yourself if going through all that pain is worth it.   

Just to let you know, people with Sjogren's and Thyroid problems, have a higher risk of having Celiac. 


Seeker
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