UPDATE.....major lupus flare......near death

[ohiolady]

I am so very sorry for you, your niece and her family.  It must be doubly hard to hear she did not have the care she should have gotten.  My first cousin died from lupus at the age of 23.  We were the same age, only a month apart.  It is so very tragic.

Sending you a big hug.

Anna

[Joe S.]

I am so sorry to hear that she is dying in such a stressful state.

I have been told that Lupus is no longer a 5 year diagnosis to death sentence. Those that live the longest are those that take sovereignty over their health and life. I know gals that have died in the five years under doctor care, and those that have lived longer with alternative care.

[Corella]

My thoughts are with you, your niece and your family. xxxxxxx

[Parched]

Season, 

I am so very sorry.  It is heartbreaking to hear what you, your family and her dear children are facing..

My thoughts and prayers for you and your family..

[4Kids]

I am so very sorry.    Please hug her kids for me 

[Daisy1234]

Season,
Oh how I was so very sorry to learn the news that lupus is going to take your dear neice's precious life from herself, her children and her loved ones.

I have sat where you are, except in my case it was my 1st cousin who had the lupus flare. 
I cannot bring you comfort but in an effort to help, will say that at that time, as my cousin slipped into permanent unconsciousness, I tried to stay connected with her by physically touching her. Touch and hearing are the two senses a person retains longest. Even when they cannot speak, they can be spoken to with a sound or a caress.  If it is permissible, I would encourage the children to do that.

I'm certain a caring person such as yourself already knows that one of the most thoughtful ways to reach out to a dying person is by not saying or doing anything. By just being there you communicate "I will not desert you." By sitting or reading a story with the children quietly in the same room with them, you communicate love and dedication.  By staying beside them when they need you but can no longer respond, your message is clear: "I am right here beside you and I will always care."

With much compassion,
Daisy

[Meld256]

Dear season,

I'm so sorry to hear of your dear neice's fight with Lupus has come to this.  Dear Daisy has some wonderful advice and words that I can never express so well.

Please know that we are all with you in thought and spirit; my prayers are with you and your family.
Melinda

[anita]

Please know that I am thinking of you, your niece, and her family.

[KatieB]

I'm so sorry.

[Bucky]

(((Season))) - I am so sorry to hear this news about your precious niece. 

I know your heart is breaking right now as you see how your nieces appearance has changed because of this lupus flare, and how her body is reacting.  I was so hoping her new doctor could have found something that would work for your niece to turn this all around. 

It makes me sad that your niece didn't get the medical treatment she has needed these past two years.

I too think that the hearing is one of the last senses that leaves a person when they are dying. When my mother was unresponsive and I sat next to her bed, I told her the doctors had done everything they knew how to help her and that she was a hospice patient - her eyebrows went up as if to say "what?!".  I knew she heard me.

Keep talking to your niece - tell her you love her and she's not alone.

It's hard for any children - young or old - to lose their mother.  I'm so sorry.

Keeping you, your niece, her family and all your family in my prayers.

Hugs,
Bucky

[kellyptyler]

This breaks my heart. I'm praying!

[lindaneall]

Dear Season, my eyes filled with tears as I read your post.  I am so very sorry for the heartache you all are going through and will remember your family in my prayers.

[Cricket]

Dear Season

I am so sorry for what you and her children are going through. 

Tell her you will always watch over her children, I know that would be the greatest gift anyone could give me at that time, but I imagine you already have.

Keeping all of you in my prayers.

[GeorgiaGirl]

I am so very sorry for your entire family, Season.  Prayers for you all, especially the children in the difficult days (and years) ahead, may they find comfort and peace. 

[tracyj]

You and your family have my deepest sympathy.