Awwww....your not sick!

[artsyamerican]

Wow.  A friend of mine I rarely hear from...unless she needs something...just called.  She asked me to babysit her three children on New Years Eve - all night - till the morning! I finally mustered up the energy to say "no...I can't...I'm sick."  She started laughing! "Awww....your not sick!" 

Really people? Just because I don't want to go around looking like a zombie everyday of my life...doesn't mean I feel okay!!! ERRRRR!

Gosh....

[Narablueeyes]

Like my friend from Mississippi would say, "doncha just wanna jack a knot on their little pea brained head!!!"  LOL!  Ignore her.  She's clueless and shallow.

[Duchess]

Exactly!!

I aim to look good too except on the days that I feel really bad.

For someone to tell you that you are not sick - oh no!! I cannot type the first thoughts that entered my mind.

You don't have to try to convince her that you are sick. You did the right thing by saying no, I can't do that. End of conversation!!

Happy new years eve in PEACE


Duchess

[KellyG999]

The nerve of some people never ceases to amaze me. Funny how she only called when she wanted something. REAL friends call to say hello and ask how you're doing once in a while. Had she done this, she would KNOW you have a chronic illness.

Sorry - but don't give it another thought. Not worth it!!

Hugs,

KellyG

[artsyamerican]

So...I just wrote this letter to let off a little steam....what do you think?

A Letter to Family and Friends

Please excuse my Sjogrens?.I may ?look? okay some days but behind my smile you have no idea what battles are being waged.  Every day is a crapshoot and I never know, from day to day, how the Sjogrens dice will fall.
?   Will today be the day my eyes are so gritty I can?t see to drive?
?   Will today be the day my mouth is so dry my tongue sticks to the roof of my mouth and it?s an effort to talk?
?   Will today be the day my ears feel like they are going to implode and just hearing any type of noise is unnerving?
?   Will today be the day I have to cancel plans with a friend because I don?t have the strength to leave the house?
?   Will today be the day the glands in my neck are so swollen and heavy ? it?s an effort to hold my head up?
?   Will today be the day I have to stay in a dark room all day because any type of light sends me reeling into a migraine?
?   Will today be the day I have deep uncontrollable coughing?
?   Will today be the day I come down with a virus because my immune system is too busy attacking me and fails to attack real invaders?
?   Will today be the day I have to lay down all day because every joint in my body is painfully inflamed and I can?t walk without assistance?
?   Will today be the day I drop everything I pick up because my hands are too weak to grip?
?   Will today be the day I can literally see my hair falling out?
?   Will today be the day my blood pressure is so low I?m afraid to stand up.
?   Will today be the day I realize how crappy I feel and I break down and cry
?   Will today be the day someone says??awww?you look fine?.you?re not sick!?
Or will today ? be one of those rare blessed days ? where I actually feel pretty darn good! I can walk, I can talk, I can see, I can hear, I can breathe, I?m not dizzy, and I?m happy! It?s going to be a great day.  These are the days I cherish and want to share with family and friends.  Those other days ? I still need you ? but please excuse the Sjogrens- it?s left me quite a mess

[A66eyroad]

Laughing? Really? And this is supposed to endear her to you so you'll do her a HUGE favor and keep three kids overnight in your home?

What a dope. Who would say that to another person? This chick is a real ignoramus. I, personally, would write her off.

This is one of those times I would pull out my often-practiced-in-front-of-the-mirror line: How nice of you to say!

Only YOU know you're being facetious.

[angielyn]

I'm sorry to hear you had to deal with this  I completely understand though. I just went through sorta the same thing with my mother over Christmas. I see her maybe 2x's a year. While an aunt and myself were talking about her health issues and mine my mom chimes in saying "I'm glad I don't have all your health issues how do you work" WELL... That instantly angered me. I completely understand she's my mother and I am suppose to respect her but shesh, the woman never has anything nice to say to anyone. I of course came back with "Ya know I'm also glad your not me! Feeling like your going to die and never knowing what to expect day to day sure isn't a joy in the park and excuse me... why do you think I don't work". What urks me like your friend is she doesn't talk to me or bother with me yet she can cut me down or whatever it is she's attempting to do. By the way she did not say a word back to me she walked away. UGHHHH My aunt just looked at me and said ignore her. It's so hard though.

I'm learning to chalk these people (including my own mother) as people I do not need in my life. I have enough down days I don't need them making me feel worse.

[Joe S.]

"Spoon Theory"

[LisaMarie]

I would have said, "You're right.  I'm not sick.  I just don't want to babysit for you."

Would have shut down the conversation real fast

[Narablueeyes]

I would have said, "You're right.  I'm not sick.  I just don't want to babysit for you."

Would have shut down the conversation real fast

ROFLOL!!!  Good one! 

[angielyn]

I would have said, "You're right.  I'm not sick.  I just don't want to babysit for you."

Would have shut down the conversation real fast

LOL

[Jellyb]

I love your letter Arsty, I am going to copy it and put it on my fridge.

Good one Lisamarie!

[irish]

Atsy, Great letter!!! You need to send it to all your relatives.

Also, I think that any friend who says that to you is not a friend at all. I would not EVER babysit for her. She doesn't have a clue. IRish

[Corella]

I have had a similar comment said to me to which I replied 'To the uneducated on this illness, I can see why you say that but you might want to read up on this disease before making such patronising judgements' 

Sounds harsh? Perhaps but as I am in a bad flare at the moment, I have absolutely no time for those that choose to make uneducated comments to me which serve no purpose other than to make me feel bad.

You did right to say no, if you make yourself sick through looking after her kids, will she spend the next few days/weeks/months caring for you and paying for your medication? I think not.

In your world, you must come first - Sjogrens may be an unwanted lodger in your body that you have no choice but to please in order to maintain a certain balance of health but when it comes to people making demands on your time to please them - you have the right to say no.

Hope you have a lovely New Year - chilling out and putting yourself first.

[A66eyroad]

Corella, I've copy-and-pasted your wonderful sentence into a word doc and I will practice this one in the mirror. Thanks!