major lupus flare........near death

[Jorja]

Season,

I said a prayer for your niece as soon as I read your post, this morning.  Please keep us posted.

Blessings,
Jorja

[mshistory]

Also saying a prayer for your niece - please keep us posted on how she is doing.

[gurs]

As we know, these autoimmune diseases are VERY unpredictable and deadly...wish doctors and others would spend more on researching this than other things...plus, the fact that most of us have chronic suffering that never goes away.

One minute we can be feeling fine...next, we feel like we got hit by a truck?

My prayers to her-your entire family...Miracles do happen!! keep the faith.

Gursie

[jazzlover]

Praying also, season!! So sorry to hear this!! How old is she?

[season]

Thanks everyone for your kindness.

She is still in the Trama Unit hooked up to everything. I don't know the medical terms but her blood was taken out and cleaned and put back in. She is also on dialysis. Her doctor seems to know-his-stuff which is great. He mentioned today that he wanted to start her on chemo and rituxab.

I asked him what were her chances and he said he had only one other patient that was as bad as my neice and he managed to bring her thru it. He said my neice was one sick little lady. She is 38 yrs old.

He talked to the family about Lupus and Autoimmune Diseases and how bad everything can get from a major flare. He said it wouldn't be easy to get her back to where she needed to be. He is also a bit mystified and puzzled as blood clots keep popping up.

He was very dissapointed in how her previous doctor was treating her and the lack of medication that she needed.

Thanks again for your support. 

[Sadie963]

Season,

Thanks for the update. I know this is extremely difficult for you and your family.

It's great that her doctor has a lot of experience and has successfully helped patients having serious complications from autoimmune diseases.

I continue to keep your niece, your family and the medical people helping her to recover in my prayers.

Take care,

Sadie

[gurs]

sounds like she is in good hands right now, and getting the care she needs. I think the blood-cleansing is called
Plasmapharesis....

Wondering what meds she was on (if any) and if she had any symptoms? these autoimmune diseases are just plain
evil..they love to hide out and keep calm, then all at once, seem to attack.

Again, many good thoughts and prayers are with her.

Gursie

[Daisy1234]

Season,
Thank you for letting us know what is happening with your neice.  It must be very traumatizing for you and all of her family right now to have to deal with her being so very ill.  I will continue to pray that her doctor finds a way to bring her thru this horrible flare and back to stabilized health. 

Sending gentle hugs,
Daisy

[Meld256]

Season,

I'm just reading what a scary time your neice and family are dealing with.  It sounds as if she is in good hands now, and her doctor is doing everything he can.  I pray they continue to treat her aggressively and bring her through this flare and back to stable health.

Please remember we are all here for you and your family. Keeping positive thoughts for you all.

Melinda

[harrigan]

Glad to hear she has such an excellent Dr working with her and explaining things to you all.  Still a very worrying time for you - my thoughts are with you.  Hope the New Year brings good news for you all.  Keep posting Season,
xx Ailsa

[Katybarstool]

Season

Still keeping you all in my prayers.

Kathyx

[engy]

Season,
I'm sorry to hear about your niece. I will say a prayer for her & you too.

Carie

[season]

We got some bad news today.

I will post an update.

[Belsey1]

Praying for all who know and love your niece.  Praying for the doctors and nurses caring for her.

[jazzlover]

PRAYING!