Relentless headache....

[quietdynamics]

If anyone can relate to these experiences and can give insight I am very thankful.
Currently I have a headache for approx. a week.
-started in the left temple area....and travels across (as I type it is from temple to temple and the glare from the laptop is very uncomfortable. And there is the occasional blunt pain in behind my left eye. Pressure and applying cold helps. And of course at this point I am truly physically exhausted.

Headache History:
- 2 yrs ago the relentless headaches started. (never had a headache before). At this time I was physically leaning to the left and falling to the left. One morning I woke up (had been having the headaches for days) and when I sat up my right eye (vision) would drop from looking straight to the 5 o'clock position...correct to straight and drop again....this happened a few times and I had someone drive me to the ER.  Tests, MRI ---> inconclusive but not a stroke.
- continued nausea, visual trailing (like when you are in a car and think it is rolling back???) When driving stopping at a red light and not being sure where I am. (I reduced driving by 90% and stay local....miss being a free soul and adventuring) My daughter said she was afraid I was going to forget her name...and that I wasn't driving right.
- few months ago went to ER. I was wiping the kitchen counter and everything visually shifted 45 degrees to the right. This happened a few times and an aura. Tests OK, no stoke, vision in right eye really bad...but the ER was considering admitting me, Follow up with Neurologist (who I will call tomorrow), more test but so far nothing showing.
-Now the present. Headache started last week. Slept 14 hours last Sunday into Monday....Wow!!! And it just took me almost an hour to type this...thank you for the spell check....

When I mentioned this to the rheumy she said it is not Sjogren.   But, I did read a study that DID mention a connection. Have to stop now as the headache is near a 9 rating,my entire forehead from temple to temple feels like it is being crushed and I actually feel like crying. I am going to take Advil, and apply cold.

FYI: We have not yet had the heat on (I am always hot, others can touch me and feel heat and I feel better in temps of under 65 degrees) and since this has happened in all 4 seasons...

As I wrote when I started any input is appreciated. And if this helps someone reading this...that is a good thing. I will check back latter...wishing all the best.

[engy]

I'm sorry I do not have any answers but I have had the same headache as you have just described for 5 days. 

I hope you get some relief. No pill has helped mine.

I have no headache history.

Good luck, Carie

[arina83]

I once had a 7 day migraine. Nothing other than that.

Hope the neurologist can help you.

[Nat]

So sorry you are dealing with this. Migraines were one of my first and very worst symptoms. I too had them for days on end. You are correct that migraines are associated with Sjogrens. Here is some info on this.

http://ard.bmj.com/content/48/4/312.abstract

The culprit is high levels of an amino acid called homocysteine. If you check my past posts, I have posted a great deal of information on this. Homocysteine destroys the endothelial cells. These are the cells that line your entire circulatory system. Studies show it is directly linked to Raynauds, MS, Scleroderma, Migraines, diabetic neuropathy, vision problems, RA, hypothyroidism and heart disease. It also interferes with the metabolism of magnesium. I can post studies if you would like to see the direct connection to any of these diseases and homocysteine. It is important to resolve this. For instance, a study published in the Journal of Internal Medicine found the risk of having a heart attack is 60% higher just a year after a patient is diagnosed with RA. The following abstract shows the relationship between patients with rheumatoid arthritis and increased levels of homocysteine. This leads to increased mortality related to cardiovascular disease. It is titled: "Abnormal Homocysteine Metabolism in Rheumatoid Arthritis." If you view my past posts, you can see why homocysteine is elevated and what you can do about it.

[quietdynamics]

Engy... I am sorry you are in the same or similar place.

I took 3 (three)Advil and am the headache has lessened. And I feel soooo dry I am drinking a lot of water. Physically I am so weak in my legs and arms and shaky ; I just went to open a box and do not have the strength to do it....so I figured I would sit and check the post. I put some music on thinking it would help....but, it is like I can feel the sound waves in my brain and the glare from the laptop is still quite bothersome. It feels like all my brain neurons are in hyper mode...even the humming of the refrigerator is annoying ... There is a constant high pitch sound...like I can hear the electricity in the house.

Re: Taking 3 Advil. I had a miscarriage years ago (a few decades...time flies....whoa) And after the procedure I was having pain. The Dr. told me to take   3 Advil; as that dose is at a prescription level. 

Ok...wow this takes forever to type and the Advil has REALLY helped.
I will copy what I have written in this post and take it to the Dr. I hope he will see me quickly. I was determined Disabled and medical insurance will pay for a driver to take me to appt.

[quietdynamics]

Nat thank you. I have read some of your posts before and I thank you.

I would appreciate if you could provide links here ....as it is difficult to search at the moment.

[Nat]

I still haven't figured out how to post more than one link at a time. I am so glad you are feeling better though. Here is a study on Raynauds and homocysteine.

http://www.yourhealthbase.com/database/a97c.htm

[Nat]

Here is one on arthritis.

http://www.ncbi.nlm.nih.gov/pubmed/9125255

[Nat]

One on Scleroderma.

http://www.jrheum.com/abstracts/abstracts03/298.html

[Nat]

Diabetes

http://www.ncbi.nlm.nih.gov/pubmed/11318838

[Nat]

Multiple Sclerosis and Depression

http://www.annals-general-psychiatry.com/content/7/1/17

[Narablueeyes]

I did a search on homocysteine and copied and pasted all I found.

https://sjogrensworld.org/index.php?action=search2

[Nat]

Here is another one on MS that states, "Thus, we found a significant relationship between MS and vitamin B12 deficiency..." Low B12 leads to high homocysteine.

http://www.ncbi.nlm.nih.gov/pubmed/19153046

[Nat]

Thanks Nara. Here is one on hyopthyroidism.

http://www.ncbi.nlm.nih.gov/pubmed/10646653

[anita]

Quietdynamics,

I think following up with your neuro is the smart move and I hope when you call tomorrow they will get you in soon.  Migraines can be associated with many things, so you need to have it properly checked and not just assume it to be homocysteine or even Sjogren's.

If you search you can find articles saying that cheese or hot dogs cause migraines.  I'm not saying to believe this.  My point is that you can find an article saying just about anything.  So it's best to just see the neuro and have it checked.  They will hopefully find the correct cause and treat it accordingly.

Please keep us posted.  Hoping you feel better.