I'm going to special Sjogrenscenter, yes!

[Heather]

Do you know there's also a great Sjögrencenter in Utrecht? I went there two years ago and there's no waitinglist.

[soycoffee]

this is great news!
aw i was working during the vacations in cologne when i was a student and came back to ireland via Amsterdam, where i wandered for three days with a loaf of bread and a pack of salami!
shipped all my money home before me i loved it, absolutely.
would love to go back for a visit.
i was captured by holland.
i went to the Lupus Centre in Tooley Street, London and was seen by Prof. Graham Hughes, aka 'hughes syndrome; which is named after him.
he diagnosed me instantly with the schimmer test, think thats how its spelt and then it was confirmed through bloods.
i was so grateful to meet someone who didnt just say 'all in the mind'
i had to get a consultant here to sign to send me over, for i felt i would die if i was left as no one knew what was wrong.
i go back to the lupus centre yearly, and all the time they say 'oh My! do you remember when you came here first? you were a mess!'
i was and in a wheelchair, and couldnt get out of the wheelchair, now i walk in on sticks but i am very grateful for professionalism.
no one should be passed by when very ill and eveyone knows their own bodies, too well, to be passed over.
best of luck and hope the wait isnt too long.
i have a new worry, a lump in my breast which will be examined more fully on monday, so i am now a bit anxious on that.
maybe when over all that, i will trip to amsterdam eh!
xann

Hi, Annken
Thanks for your post. When you and I are over all the woes of lupus and Sjögren's, we'll meet Gonzo in Amsterdam!

[smallfry]

I am  so pleased for you, sounds like it will be worth the drive good luck with your visit.

Take care
Cheryl

[meow]

Back from the Navajo Nation....It turned into over 1200 miles. We drove NW to Cortez CO, then out past 4 Corners and south to Monument Valley, through the Navajo, White Mt Apache and San Carlos Apache Reservations, all mountains and forests, huge canyons, no cell phone coverage for hours...back east through the Gila Wilderness, to Silver City, then south to Deming and I-10, 3 hrs to El Paso from there. We had a wonderful time. I found a small (2"x2") broken piece of pottery on a graded road, which I took ( not supposed to but I left something in exchange), and found out this week that it's from the pueblo 3 era--1150-1350. How cool is that?

[Narablueeyes]

Back from the Navajo Nation....It turned into over 1200 miles. We drove NW to Cortez CO, then out past 4 Corners and south to Monument Valley, through the Navajo, White Mt Apache and San Carlos Apache Reservations, all mountains and forests, huge canyons, no cell phone coverage for hours...back east through the Gila Wilderness, to Silver City, then south to Deming and I-10, 3 hrs to El Paso from there. We had a wonderful time. I found a small (2"x2") broken piece of pottery on a graded road, which I took ( not supposed to but I left something in exchange), and found out this week that it's from the pueblo 3 era--1150-1350. How cool is that?

Cool!!