sore tongue

[Nat]

Here is some information on the increase in cancer risk associated with B12 and folic acid supplementation.

http://www.reuters.com/article/2009/11/17/us-cancer-folicacid-idUSTRE5AG5NU20091117

There is an Internet group called "Curing Autoimmune and Mimics" that is based on this information. The members are using diet to replace the missing pancreatic enzymes and heal their GI tracts. Many of them are seeing very dramatic improvements. Anyone is welcome to join, and all of the information is free. If you scroll through all of the posts, there is a great deal of information posted. I did not start the group and I do not know the person who did. I do not post on the site, but my daughter sometimes does. (Naturemommy) I think a support group is very helpful if you decide to replace your pancreatic enzymes through diet. Some of the foods are not very mainstream. For instance, homemade kefir is truly a miracle food when it comes to restoring beneficial bacteria and yeasts. It also contains enormous amounts of enzymes and B12. Plus, the proteins are already partially digested so they will not create an immune response and you will have immediate access to amino acids. It cannot be store bought though. The pasteurization process destroys all of the 60 living enzymes, denatures the proteins and wipes out most of the beneficial bacteria. Kefir is simple to make, but as we all were, you will be intimidated at first.

[lolo1979]

Nat -
You state above and have also stated in many posts that nearly all our problems are attributed to our inability to make pancreatic enzymes. My question would be - how do we correct such a thing?  I'm sure you've probably posted it before, but what are your thoughts regarding WHY we lack the enzymes?  Genetics? Poor lifestyle choices? Bad luck?  It just seems like all the information is useless to us if we can't correct it anyhow.  Anyway I don't want to hijack Lea's thread but I haven't figured out how to private message someone yet. I'd love to hear your ideas on "fixing" it. Maybe a new separate post or if you could send me a message. I actually just figured out how to check messages but still don't know how to send a message to a member (like how to find their info to send to). 

Lea - Sorry to hijack your thread!  So in regards to your tongue ... I began having issues with my tongue where it would burn when I ate certain things, and in general it just didn't feel right. I went on plaquenil about 2 months ago and it has improved drastically. Have you looked into plaquenil yet?

[Nat]

Hi Lolo,

I have posted many studies that show Autoimmune sufferers lack proteases. If you click my profile, you can go through all of my posts and some of your questions will be answered.

Many things in our modern society kill enzymes. I think I posted some information on the well known CFS researcher Dr. Cheney and his findings that the first mass outbreak of CFS in Lake Tahoe was linked to high levels of  fluoride in the water, as Lake Tahoe lies within a volcanic zone. He states in his paper on these findings that fluoride is a potent enzyme poison. ( And we brush our teeth with it and drink it daily.)

I also posted a study that shows pesticide use is linked to autoimmune disease. Pesticides are poisons and the very dictionary definition of a poison is that "it kills enzymes". There are 50 different pesticides sprayed on the average peach.

Nitrites kill enzymes. Hot dogs, lunch meat and other processed meats contain them. A large study done at the University of Hawaii found you will increase your risk of pancreatic cancer by 6,700% if you eat foods that contain nitrites.

Conventional drugs and antibiotics are some of the biggest culprits. The top 3 drugs known to induce lupus are all enzyme blockers. Just one course of an antibiotic can destroy much of your beneficial GI bacteria. The average person has 3 to 5 lbs. of beneficial bacteria. (or should have) There are thousands of different strains. Man has not even identified them all. Trying to replace them by eating yogurt or taking probiotics in a pill will not restore your gut to its original condition. That is like killing all of the living organisms in a lake and then adding back trout and walleye and a few other fish. Or killing all of the organisms in the soil and then adding a bottle of "probiotics" to restore it to a healthy vital state. Remember, there are thousands of different stains, most of them not even identified. And each and every one of them is there for a reason.

Most of our diets are not based on whole living foods that  contain these enzymes. Unprocessed (raw) milk contains 60 living enzymes. Pasturized milk contains none. Raw fermented sauerkraut contains tons of enzymes. The kind on the store shelf contains none.

Most of our animals are not raised on pasture anymore. 95% of them are raised on concrete. So our eggs, beef, chicken,milk etc. will have no B12. NONE. And B12 is necessary for every cell in your body. B12 is made by organisms in the soil and an animal must have access to the soil in order for it to ingest B12.

I could go on and on. Replacing pancreatic enzymes is not difficult.  You will also need to avoid all the things that kill enzymes and start eating foods that contain B12. (pastured animal proteins) Getting your B12 level back up will take some time. In my previous post on this thread, I mentioned a support group that has been started on doing all of these things. It is called, "Curing Autoimmune and Mimics." There is plenty of information there to get you started. And if you go back through my previous posts, I have posted some info on my diet.

[lea78]

Hi Lolo, i have not been given the option of any medication other than artificial tears and saliva, i suppose the doctor must have thought my symptoms were mild enough for now not to need any thing else.

[wendyoh]

Part of the disease process of sjogrens involves the inability to metabolize B12. Here is some information on how a B12 deficiency can lead to a sore mouth and tongue, periodically accompanied by a bitter or metallic taste.

http://www.cigna.com/individualandfamilies/health-and-well-being/hw/medical-topics/burning-mouth-syndrome-nord234.html?redir=/healthinfo/nord234.html

Studies show that sjogrens patients  lack B12. The problem is in the metabolism, not the amount consumed, either in supplement or natural form. In fact, a recent study in Norway found that if you take B12 and folic acid in supplement form, you will greatly increase your risk of cancer. Having high serum (blood) levels of B12, does not correlate to high cellular levels. You can buy all the flour you want to bake a cake, but if you don't mix the flour with baking soda or sugar and have an oven to bake it in, you will never be able to make a cake.

B12 is also responsible for maintaining your myelin sheath. Without sufficient amounts, your spinal cord will begin to degenerate. In fact, the cause of spinal cord degeneration according to the National Institutes of Health is a B12 deficiency.

It is also necessary to maintain your autonomic nervous system. Nearly all sjorgens patients exhibit autonomic dysfunction. (The autonomic nervous system also controls the salivary glands.) One of the neurotransmitters that regulates the autonomic nervous system is acetylcholine. Acetylcholine is derived from choline. Choline is derived from B12 and folate.

The most accurate test for a B12 deficiency is elevated levels of homocysteine. B12 recycles homocysteine. Without it, your homocysteine levels will rise and destroy the endothelial cells. (The cells that line all of your blood vessels). Study after study links elevated homocysteine to COPD (lung disease), migraines, vision problems, Raynaud's, neuropathy and heart disease.

Lack of B12 is not the only problem. B12 is ONLY found attached to dietary animal proteins. I have posted a study that confirms the METABOLISM of B12 is dependant on "appropriate pancreatic enzymes." Without these enzymes, you will never be able to absorb B12 into your cells. You cannot find these enzymes in a pill or bottle. The specific one found lacking in a lupus study I posted is DNase1. These enzymes (called proteases) also break down dietary proteins into essential amino acids. Without essential amino acids, you will not be able to make dopamine, tyrosine, tryptophan, serotonin, melatonin, adrenaline or noradrenaline, or either of the thyroid hormones, thyroxine or triiodothyronine. Lack of these essential amino acids (which have been found lacking in studies) leads to the brain fog, insomnia, fatigue, anxiety, and depression often found in autoimmune sufferers. 

Mountains of evidence and studies from around the world show us clearly the cause and ultimate solution for autoimmune disease. No evidence whatsoever would lead us to believe that the immune system is ever attacking normal tissue. All of the evidence shows (from the abnormal peptides discovered in diabetes and rosacea to biological evidence,that cannot be disputed, found in numerous spinal fluid studies, that the immune system is  targeting abnormally made peptides. (peptides are just short chains of amino acids. An autoimmune sufferer cannot make normal peptides because they lack amino acids) or amyloids. (Misshapen proteins)
I even posted a picture of the abnormal proteins being targeted by the immune system in lupus.

I think it is time common sense and science joined together to solve the mystery of autoimmune disease.

This guest member "Nat" has a lot of info I am finding that is useful to me--it looks like he may not be here anymore

does anyone know what his book is? I will go thru all his posts later today hopefully to see if can ferret out

also does anyone know what he recommended we do for enzymes to deal with issue of not being able to tolerate most substances? it is not easily clear to me what action we can take in his opinion that might help with the flares we have....

thanks anyone who remembers him and that would be greatly appreciated by me as am in flare and most chemicals (supps meds foods) are making it worse lately....

[irish]

This is an old treatment that people did years ago that may help some of you with your sore mouth. Try swishing Mylanta or Maalox. You can either spit it out then or swallow it. These 2 products are found at a pharmacy and are used for heartburn.

Actually the Maalox/Mylanta will sort of neutralize some of the acid in your mouth from saliva, etc and this can help to decrease pain. Doesn't work for everyone but people used to do it more. Now we don't use those 2 products that much because we are taking the spendy pills for our refux and GERD. Good luck. Irish