Received Test Results Today

[becky]

Good news is that I tested negative for Lupus and autoimmune thyroid.  Bad news is - it is primary Sjogrens.  I guess, like the Doctor said, it had to be something autoimmune with an ANA result of 1:1280. 

So begins my Sjogrens journey.  I will be depending more on this website as I learn my way.

Thanks again to everyone.

Becky

[Carebear]

Hi Becky,

It may be small concession to you right now, but least you know what you are battling. 

Take one day at a time, Becky.  Expect to feel a lot of emotions right now, but remember that we are all here for you. 

[Meld256]

Becky,

Well, your wait on those results is over, and now you have some answers.  As Carebear said, expect a lot of different emotions to come out.  It is very normal to feel relieved to know what it is, possibly worried about your future health and what will happen, a bit angry why this happened to you, just a bit overwhelmed or all of it at the same time! 

Remember, we are all with you on your journey.  We're either going through the same beginning as you, a little further along, or old hands who've dealt with this a long time.  There are lots of ways to manage this, and I hope this site helps you.
Please keep posting and keep us updated.

Take care,
Melinda

[theosof]

To reiterate- at least you know what you are fighting- better than not knowing. At least you can now make a plan of action. Emotions will be all over- be gentle with yourself. Let your family and friends support you- they may need to feel needed too. Keep us informed- good luck

[becky]

Thanks everyone.  Yes, I am trying to take all this in.  So many people don't know what Sjogrens is.  Myself included.  I had not heard of it before experiencing the effects of it.

This site is an amazing source of information and support.

[really?]

its amazing what you feel when they can finnaly put a name to something,, like your finnaly validated,, thank goodness,, I am happy for you,, not that you have it,, but that you have a NAME for it,, not some doctor telling you,, its not this and not that,, so its nothing,, good luck,, although I really hate to say that,, luck is almost not getting hit by a train, good luck doesnt apply when your sick,, you either get better or worse,, no luck invilved,, God I hate that phrase,, good luck,, it even sounds stupid,, oh me,, here I go off the main track again, derailed,,

[sunnybunny]

becky,
that's what FINALLY got me refered to a Rheumy, after having
Sjs symptoms along side the Fibro for sooo long at that point.

The positive ANA with the high titer like yours.

I mean, why on earth refer someone to a Rheumy on symptoms alone....(duh).

validation meant alot to me as well.

that 'technical-medical proof' is the ammo we need sometimes to
deal with some difficult people we inevitably encounter out there.

unfortunately, i have had to include some doctors in that group over the years. lol

[Joe S.]

Becky, please read "Spoon Theory" if you have not read it yet. http://butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf

Find what works for you.

Welcome to the forum there is a lot of good information here.

[lynnmarie219]

Becky,

Coming into this late, but I also wanted to welcome you to Sjogrens World!

I hope you continue to find this place useful and have some fun with many new friends along the way!