Plaquenil and skin discoloration

Patze · July 07, 2011, 02:35:44 PM

Yeah, can I join in with the "spotty crowd" too?

I have the brown spots turning up all over the body, and my arms are both brown and white spotted...an odd sight.

I have the brown spots especially on my neck and it gets embarrassing sometimes (you can watch people look from your face down to your neck and back up, ugh $:-\$ ).

Okay folks, what do we name this group? "Spotties R Us?"

Have Spots Will Travel? Too generic?

Patze

Bucky · July 07, 2011, 09:27:49 PM

Tonight, for the first time, I had someone ask about my neck. My BIL asked me about it. I told him it's been like this for at least a year, maybe two years and it's caused by the medicine I take and the sun. He said he never noticed it before (probably, because 95% of the time, I'm wearing my hair down and it kinda hides it).

Patze . . . . hmmmmmm, what do we call ourselves?!?

We need a photo gallery of our spots.

Bucky

Meld256 · July 08, 2011, 12:04:21 AM

Bucky, maybe we can get a photo gallery together. Better seeing something than trying to explain.

Patze, I like your idea about a name. Hmmm...I have no thoughts about a good name right now; I'm sure someone will come up with one. Spots R Us is pretty good.

BUSYLIZZY · July 08, 2011, 06:30:34 AM

I like Spots R Us. Sounds like we have a fun group. Hope everyone has a good day!

annette2 · October 08, 2011, 05:57:08 PM

I guess I am 4 months too late on this. I also had a rash on my neck that was blotchy and bumpy. I saw a dermatologist and she just dismissed it with - Oh that's poikiloderma, and the GP told me OI should have asked her first. She agreed with the derm

Here's a link to an article on it http://emedicine.medscape.com/article/1120079-overview

Annette

gold55 · October 08, 2011, 07:01:27 PM

Many years ago I had to take a short bout of Accutane and I got hyperpigmentation on my face so I suppose once I begin Plaquenil I'll be lookin like a Dalmation again!

It also brought out a rash type thing on my arms......like my old ...oh what's that allergy stuff called that you get on your arms and it itches like crazy??? Well, the rash stuff went away when I stopped the med but I had to use that bleach cream on my face for the big brown spots...it finally all evened out. It's not being vain to not want to resemble a Dalmation!

gold55 · October 08, 2011, 07:04:02 PM

ohhh the rash was eczema-like!! hey, speaking of Dalmatians (I now have spelled it correctly), what ever happened to Doxie?

susanep · October 08, 2011, 07:15:03 PM

All of you are cracking me up with the spotty Dalmatian thingy.

I can say that, because I am spotted like one for sure. Both of my arms have the white spots. I guess the rest of me is brown then.

I will see my rhuemy this month, and will be asking him about it. I can't account for how I spell anymore, and I not too long ago was a teacher. I am not sure if I can say my abc's correctly now.

Take care all of you spotties!
susanep

gold55 · October 08, 2011, 07:30:42 PM

When I first heard about this my Rheumatologist was making me think I'd be blonde and tan.....probably to ease my pain and fear of taking Plaquenil!!! Poor sales job....now you guys have brought me the truth
SPOTS R US and HAVE SPOTS WILL TRAVEL to my doctor is tan and blonde!!!
I really thought there had to be some bonus to getting this disease. Now that we're autoimmune I don't even think us aged women can get "a light lift" of our saggy skin! I doubt if any of that is allowed with Lupus or Sjogrens. Oh well, whose got the cash anyway! My husband loves dogs so a senior Dalmatian I will be for him forever

susanep · October 08, 2011, 07:49:24 PM

gold55 count me in SPOTS R US.

I use to read about taking colloidal silver to get over colds and things, but I would also read if you over did it you could turn green. And to think I worried about that. No green, just spots. hehe...

susanep

gold55 · October 08, 2011, 08:10:53 PM

If green were consistent I might choose it over spots of any color

Yea, I think of the things I worried about prior to Sjogrens.....it all seems so stupid now.
I shouldn't have had a care in the world! Now I'm nearing retirement and wanting to relax and not worry about work, finances, etc etc....and I get sick so now I worry about sickness and paying for doctors and medication and spots!

grafxmkr · October 11, 2011, 01:57:19 PM

I too have spots. I started getting them after about 8 mos of Plaquenil. They progressively get larger, darker and in more places (I have two perfect circles between the girls). My Rheumy said he never saw anything like it before and told me it was hormones (as he says everything is... even bruising - DORK!) I'm attaching my face (even the crazed-looking one) Sorry, LOL!

Meld256 · October 11, 2011, 02:37:02 PM

grafxmkr,

That's too funny about your Bermuda Triangle on the forehead.

We must keep our humor! You're a lovely lady, spotty or not.

I have a bit of the Dalmatian look. A few white spots on my arms, along with a few darker tan ones. And they have shown up places that I do not have exposed to the sun.

I have some freckles anyway (thank you, Irish grandfather) and so they blend in a little.

I've decided I'll slather up with the sunscreen and if I have to choose between a few spots and less fatigue/joint pain, I think I'll be a happy Dalmatian!

gold55 · October 11, 2011, 07:35:27 PM

Hi Grafx,
You are a very beautiful girl so no need to worry about anything on your skin. I have no hormones left so perhaps the plaquenil will not affect me in this way.....there's gotta be some kindof bonus for my retirement years! Thank you for posting your adorable pics

Jill

grafxmkr · October 12, 2011, 06:45:36 AM

Awww thanks for the kind words on my pics

I do have a sense of humor. If I wasn't going as a woods witch for Halloween, my second choice was a leopard. I was going to outline all my spots and color them in. Luckily they're fairly symmetrical so I think it would work!

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