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Started by engy, May 04, 2011, 09:15:52 AM

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engy

Hello from Northeast Ohio!  I have been diagnosed with Sjogren's for a few years but my doctors would never do anything about it.  I have been very sick with many autoimmune diseases and dysautonomia and now have a new set of doctors (some specialists at Cleveland Clinic and also an Integrative Doctor). 

I have a new Rhuemy that started me on Plaquenil a month ago.  Since I also started some supplements at the same time (I know, I know) I'm not sure which is starting to help me feel better. 

I'm so glad to have found this support!  I have a wonderful husband and eight year old daughter who are so supportive of me.  I feel very blessed and lucky even considering my unlucky health issues.  I will soldier on!!!

Carie
DX:Sjogrens w/mild Lupus overlap,Hashi,Celiac,Raynauds,Sm.Fiber Neuropathy,POTS,Fibro.,CFS,OI & other dysautonomia.
No thyroid
Fish/Shellfish Allergy

RX:Plaquenil,Synthroid,LCarnitine,CoQ10,ALA,Dribose,Tumeric/Curcumin, Milk Thistle,AdreneVive,Fish Oil,Flaxseed Oil,Magnesium,B12 shots,vit D & C

Joe S.

bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
Lisinopril, Amlodipine, Pantoprazole, Metformin, Furosemide, Glimepiride,
Centrum Silver, Cinnamon, Magnesium, Flaxseed, Inositol, D3, ALA, ALC, Aleve, cistanche
Reiki, reflexology, meditation, electro-herbalism

Cheryl

Best wishes, Carie, and welcome to Sjogrensworld!
Cheryl
Chat co-host on Thursdays at 8:00 Eastern time

Katybarstool

Hi Carie

Let me also welcome you to the family.

Kathyx,


nancylee

Hi Carie. I am northwest Ohio. ( greatlakes) welcome welcome

Scottietottie

Hi Carie  :)

Welcome to Sjogren's world. It's good to here that you are being treated having not been initially. Plaquenil can be pretty effective as long as you can tolerate it. I've been on it for 7 years now and believe it's been helpful.

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!

hikerknees

Hi Carie,
I love supplements!  What are you taking?  I take plaquenil as well, but would never drop the others.  Welcome to the site, I was just noting that a lot of us seem to be in or from Ohio.  Nice folk, tee hee.
sue

engy

Thanks everyone for the welcome  ;D

Hikerknees, I posted the supplements I take in my signature, it's quite a list!

Funny, I noticed many from Ohio too!
Carie
DX:Sjogrens w/mild Lupus overlap,Hashi,Celiac,Raynauds,Sm.Fiber Neuropathy,POTS,Fibro.,CFS,OI & other dysautonomia.
No thyroid
Fish/Shellfish Allergy

RX:Plaquenil,Synthroid,LCarnitine,CoQ10,ALA,Dribose,Tumeric/Curcumin, Milk Thistle,AdreneVive,Fish Oil,Flaxseed Oil,Magnesium,B12 shots,vit D & C

lynnmarie219

Welcome to Sjogrens World!

I'm happy to hear that you have a new set of doctors that you feel are actually going to listen to and help you...keep us posted on how you are doing on the plaquenil. I have taken it for years with no problems!

Patze

Hi Engy,

Let me also welcome you to the SJS World and family!

I'm so glad to hear about your new doctors; good doctors are sometimes a challenge to find.  Also happy to hear about your supportive family!

Take care of yourself -

Patze
Our home page  http://www.sjogrensworld.org/index.html
Live chats  http://sjogrensworld.org/chats.htm

Everything has beauty, but not everyone sees it - Confucius

The important thing is not to stop questioning ~ Albert Einstein ~

Sero Negative Queen

Rachel F.

Hi-
How do you like the Cleveland Clinic? I live in Western PA and a friend had mentioned I might want to check them out some day...
thanks!
Rachel F.