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Started by cport, April 15, 2011, 01:20:12 PM

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cport

April 15, 2011, 01:20:12 PM Last Edit: April 15, 2011, 01:28:46 PM by cport
Hi there,

I use facebook a lot to let people know how i am feeling on every different day of the week and it helps my friends and familly know what i am going through. I do feel like i'm moaning most of the time though so have decided to set up a page called Sjogren's syndrome so i have my own little page to go to and moan to my hearts content x I love the fact that i have all you guys to turn to here for advice and information but i will use my site for all the whining and moaning of the everyday mundane things like not being able to get out of the bath lol.

Thank you for always being here Sjogren's world...I tell everyone i can about you x x x

Dolly Dimples

#1
April 15, 2011, 03:58:02 PM
  CPort, I am sure that all of us here do not mind the moans, or the  complaining of our fellow sufferers..

                After all if we dont hear about the downside of our complaint, then the site would not be needed much.

            We want to hear how people feel, we want to compare our feelings, and we want to be here for one and all who suffer from this curse.
             So dear Cport, by all means, have yourself a special page on your facebook, but dont abandon us when you need a shoulder to cry on.
                               we need each other through it all,   Dolly

                                       

Joe S.

#2
April 16, 2011, 07:14:39 AM
Just FYI,

It may be best for those of you that are still working not to post on facebook. A number of employers are using these posts are reasons to dismiss employees. Insurance companies are using them as a basis to deny claims.

bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
Lisinopril, Amlodipine, Pantoprazole, Metformin, Furosemide, Glimepiride,
Centrum Silver, Cinnamon, Magnesium, Flaxseed, Inositol, D3, ALA, ALC, Aleve, cistanche
Reiki, reflexology, meditation, electro-herbalism

CAT1962

#3
April 16, 2011, 11:21:10 AM
I have a FB and it is set to private...I even made another one to check it and make sure. No one can see it. I love FB. Nice area to vent, keep up with family, friends far away. Where is the site? Have a  FB link to your page?

cport

#4
April 17, 2011, 01:28:50 PM Last Edit: April 17, 2011, 01:31:57 PM by cport
i can't seem to do the link i'm useless lol.It's called sjogren's syndrome and has a pic of Dr sjogren on it.
I post links etc and just fiddle about on it x Anyone's welcome to like and join the more the merrier. It is nothing like this place though. This is my home for advice and help. Facebook is just a little project x

cport

#5
April 17, 2011, 01:33:46 PM
Dolly,
I'd never abandon here i need it to much. Facebook is just my little project but here is my home. I love all you guys an dcould never do without you all x
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