Graphic details

[flutterfly]

i LIKEY the poo threads...'cause that might be the only time i see ~POO~ for um maybe 3 or 4 days!!!   

it is what it is!!

i LIKEY u 2 my sweet pixie friend shani!   

~*flutterfly...back on boards!*~

[Blue Kat]

It it helps others to feel that they're not alone, then the "graphic details" being shared have a place here.  If anyone feels uncomfortable about it, then just move along and forget it.  Simple as that.   

[BonusMom]

I assure you, I NEVER had any issues with bowel movements until this insidious disease called Sjogren's Sydrome took over my life.  It is a very real complication of this disease.

I also have gastroparesis, another gift of Sjogren's Syndrome.  So sorry, if the thought of continuous vomiting/non-stop nausea offends you, but feedings tubes are a reality for many of us with gastroparesis.  Unpleasant yes, but we need to get nutrition somehow.

For some, SjS has "attacked" their lungs, CNS, eyes, mouths, etc.  For me, it's my GI system and my mouth. We tend to read/respond to the posts most applicable to our particular issue(s).

My grandmother died from an impaction and thanks to Irish, I have a better understanding of the importance of good intestinal health and that's not something I'm going to get in my 10 min visit with my HMO doctor.

Please understand that while the topic may not apply to you, others may appreciate the content and you can choose to simply not read it.

[gphx]

Hello 'Sarah'. You say you've been on this board for years and yet you post using a 'Guest' id, a characteristic of a 'troll', someone whose sole purpose is to stir up trouble, often in an anonymous manner. With any luck the moderators will verify the IP address of this and your primary id and ban them both.

[LizPetillo]

i LIKEY the poo threads...'cause that might be the only time i see ~POO~ for um maybe 3 or 4 days!!!   

Yep .... sometimes the only time I see it for 7 days.
(a bit frightening when that happens!! al sorts of scenerios go through my head)

[Babs659]

I think it's inappropriate for anyone but the moderators to post what other members should or shouldn't discuss.  If you take issue with a particular post there is a button that says "report to moderator" in every post.

It's then up to the moderator to PM the offending person, if they feel it's warranted.

End of discussion.

[Spring]

Sarah and all,

These boards are here for people to seek help from each other.

Sarah, your initial post is NOT helpful; it is critical and should not have been posted in the first place.
It was not in any way asking for help or designed to help others.
Perhaps you had some other reason to post it; please refrain from making critical posts in the future.

Spring

[Meld256]

Thank you, Spring. 

We all have enough negativity in our lives. We do not need any more.

Sometimes what we deal with is gross, disgusting and what amounts to "our lives". I feel so fortunate to be able to discuss whatever we need to here.
Have a wonderful day,
Melinda

[Mudpup]

I feel sad, that the one place where we feel we can truly be ourselves and open up about our health issues, pleasant or not so pleasant, we have to sugarcoat everything so as not to offend or upset people. I don't particularly like reading about stuff so graphic, but Guess What? it is real everyday life, it happens, if there is something I'm not comfortable with or reading about it, then I skip it, and move on. If I ever have something to say, I could Never hide behind an other ID, I liken that to when you see on the news all these extremist and rebels who are here to say what they think & change the world, but they hid behind masks or those balaclavas.  If life was Roses & Candy we wouldn't be here in the first place. If we have to stick to topics like dry eye, and our hair falling out, then this site would not meet peoples needs would it?  I can't get that personal about certain things that happen to my body, but I commend anyone that can. Because that person feels comfortable enough with us to open up about it. Ok I have said my piece Big hugs to everyone. Muwah  

[Calli66]

I can't talk to my family about any of the SjS symptoms and details, much less the graphic ones---they're not interested, and yes---they can get offended. Thanks goodness for this valuable forum where we're free to share all this!!!

C

[Diane54]

I say "POST ON".....being new to the disease I need to learn all I can from people that share the same issues as I do. I feel more informed and less intimidated when it comes to see my doctor! (Tommorrow is my first Rhuemmy appointment!) In fact, the other day I had a very bad day...alot of complaints ....muscle and bone aches, eyes burning etc and telling my husband about it....normally he is very sympathetic and interested but that day he said..."Do you realize I have been home for a total of 45 min and it has been non stop about the issues you have been having?" I felt bad and guilty....so I say thanks to this site and ALL postings....it is a place to be informed, vent , and support!

[Mudpup]

I agree with you Diane and someone else said about until they have walked in our shoes. most people have limited. Sympathy/empathy for us. So after our support their is exhausted then we come here for acceptance and understanding.  The name Sjogren's World is so fitting, because there is the real everyday world then there is the world we live in and that is the world of Sjogren's.  Brightest Blessings To All xx

[jaygee]

I have so learned so much from the great (and sometimes graphic) information that people share on here.  I have never been offended by the depth of detail, as it is just real life, for some of us.  I am grateful that people are brave enough to share such personal details, in order to help others.   xx

[Jules48cats]

Sarah 
Sorry this disease comes with a lot of gross symptoms  and I for one value this site as it is a place where I don't feel so alone and abnormal.   
We are not controlled by anyone and no one makes us read things that offend our sensitivities. 
So like someone else said Don't read it if it offends you.
Jules

[irish]

When I started the thread about constipation I knew that it was going to bring out a lot of "feelings", etc. Talking about a bodily function is something that people avoid like the plague.

However, with all the gastroparesis that is developing on some of you I thought it was appropriate to talk about the subject. Some of the stuff that we go through with our "systems" is strange, scary, unheard of cause nobody talks about it and we can be scared to death cause we don't know which way to turn.

I thought it was time to bring this out in the open. Some of the bodily function stuff is more of the every day garden variety problems but sometimes there is a very fine line between the garden variety and a really, down to earth medical emergency or life threatening condition.

The only way to hear about it is to talk about it here. You are right when you say that you won't hear about it at the doctors office as we are afraid to mention this type of stuff to the doc. It is right up there with telling your kids about sex.

If there are any other issues that come up that need to be discussed to help improve your health care I will do it again. I can't stand by and let people suffer from something that is a potential health hazard. As an old grandma RN I don't diagnose or prescribe but try to help sort out symptoms and advise people to see the doc. I can also describe certain scenarios that could develop and leave it in your hands as far as deciding what to do about the situation. Irish