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Sjogren's survival kit?

Started by doodlebug, December 14, 2010, 05:57:25 PM

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doodlebug

I left mine at home today and I thought I'd ask what you carry in yours.

I have-
Hard candy
lip moisturizer
lotion
eye drops
sun screen
eye glasses cleaner (because my skin flakes and makes them dirty)

And of course I always have at least one drink if not two.

Joe S.

SPF 30 clothing, water bottle, and supplements.
bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
Lisinopril, Amlodipine, Pantoprazole, Metformin, Furosemide, Glimepiride,
Centrum Silver, Cinnamon, Magnesium, Flaxseed, Inositol, D3, ALA, ALC, Aleve, cistanche
Reiki, reflexology, meditation, electro-herbalism

Patze

Oh boy, let's see what I carry (in my huge bag! ;))....

Hard Candy
Mints
Lip moisturizer
Hand/body lotion
Sun screen
Sun glasses
Meds & vitamins (always carry a couple just in case I wind up going out and not being able to go home to take them)
Bottle of water
Bandaids (always cutting my hands and don't feel it ; only notice when the blood gets on things)
Tissues
Two kinds of eye drops

I think that's about it....

Patze
Our home page  http://www.sjogrensworld.org/index.html
Live chats  http://sjogrensworld.org/chats.htm

Everything has beauty, but not everyone sees it - Confucius

The important thing is not to stop questioning ~ Albert Einstein ~

Sero Negative Queen

harlin

Patze
Sounds like my bag. Yes, I carry all these also.
Can't leave home without them.
Love, harlin

kellyptyler

eye drops
nasal saline
chap stick
hand santizer
lotion
sun glasses

navydad

A gun?,,,


no,, just half empty bottle of warm water,
at least 3 sweaters,, all wore at same time,
Heavy winter coat,, over three sweaters,,,
Gum
Did I mention Gum?
Extra reading glasses,,
Artificial tears
Gum
Fleece lined Jeans,
Gloves, mittens,,
Gum,
Hand warmers

Havent had to use any of it,, I dont go out when its like this,,,

jordozmom

I know this probably isn't supposed to be funny but it is cracking me up that we all have the same "kit" with the same items in it!  I have friends who laugh their butts off at me with my lotion and lip balm - other people just don't get it!!! All I know is that if I was ever stranded on a deserted island I couldn't live without my handcream and lip balm.  I mean I have bottles and tubes and sticks of that stuff stashed EVERYWHERE!!!  I put lip balm on probably 20 times a day - no kidding.  The other day I had taken my lip balm out of my purse and forgot to put it back in and about had a stroke when I went to look for it.  My lips were sticking to my teeth they were so dry (SEXY - I know!)  Here's mine:

hand lotion
lip balm
sunglasses
gloves
bottle of water
SJS, Raynauds, Distal Renal Tubular Acidosis, RA, peripheral neuropathy, COPD, RLS, leaky heart valve (caused by SJS), Lichen Sclerosis.
Plaquenil, Salagen, Sodium Bicarb, Klor-Con, Ambien, Methotrexate, COQ-10, VitD, Multivitamin, Omega 3, B12

DragonflyC

I'm obsessed with Bion Tears preservative free drops right now.  I used to laugh at myself for having a "favorite" eye drop--I'm such a Sjoggie!--but, seriously, this is good stuff.

Other than that, lotion, lip balm, water bottle, sugarfree gum, sunscreen, hat/gloves/puffy coat in winter or big hat/cover-up/sunglasses in summer, and my "eye treatment" (an eye mask that I heat in the microwave and use to loosen the gunk in my eyes twice a day--Jordozmom, you are so right about SJS being a sexy disease).

williak

lotion
lip balm
lip moisture
sunglasses
keep  a pair of gloves at my desk in case my hands get cold
eye drops
When I go to the breakroom, i always carry two drinks back to my desk - I'm the two fisted drinker!
Sjogrens, RA, Chronic Kidney Disease, several types of dermatitis, Granuloma annulare, plaquenil, pilocarpine, restatis, clonezapam, cymbalta, methotrexate, humira, dexilant lutein, flax seed oil

williak

I forgot to list gum.  i usually havr at least two flavors.  My favorite is Bubblemint.
Sjogrens, RA, Chronic Kidney Disease, several types of dermatitis, Granuloma annulare, plaquenil, pilocarpine, restatis, clonezapam, cymbalta, methotrexate, humira, dexilant lutein, flax seed oil

Patze

Hey Navydad, did you carry gum? ;) :D  Yeah, I saw that smile!!!

Yeah, I keep a sour brand and also a mint variety so I don't offend if I don't have too!


Patze
Our home page  http://www.sjogrensworld.org/index.html
Live chats  http://sjogrensworld.org/chats.htm

Everything has beauty, but not everyone sees it - Confucius

The important thing is not to stop questioning ~ Albert Einstein ~

Sero Negative Queen

warmwaters

eyedrops
antacid
lip balm
sun glasses
ibuprofin
inhaler
sunglasses

everything except the sunglasses and lip balm in a ziploc bag. The other two in the other pocket.

Often also have - hard candy, gum. And backup clipon sunglasses in purse, and glove compartment of all cars in our family.
Primary Sjogrens, dx June 2009, Immunoglobulin deficiency, axial spondylosis arthritis, IBS, autonomic neuropathy
Omeprazone DR 40 mg, mobic 15 mg, Plaquenil, LDN, B1, B6, B12, D, fludrocortisone, gralise, various inhalers

brownskin510

I don't have a SJS survival kit, but it sounds like a good idea; one that I will start to incorporate into my daily life because my lips and mouth are constantly dry, and my eyes are always blurred

Carolina

eye drops
lip balm
water bottle
Tylenol, Excedrin, Benedryl
eye spray (Nature's tears)
hand lotion
Sun Screen
Sun glasses
Gloves (in pocket or on hands)
case and batteries for hearing aids
antacids
Female-Elaine,83-CVID-pSJS-WMD (Eylea)-COPD-Inter. Cys-PN-CAD-Osteoarth-SFN-Erythromelalgia-SIBO-PMR-Adrenal Insufficiency-Hearing Loss-Achalasia-Bacteriurea-Power Chair-IVIG Gamunex 50 gm-Medrol-Wellbutrin-Buspar-Gabapentin-Atenolol-Salagen-LDN-Lipitor-Premarin-Nexium-Om.3-Repatha-KLOR-CON-Maxide

Cinnamon Girl



2 bottles of water
gum--3 different flavors always
hard sugar free candy -- mint & butterscoth & lemon flavors
halls lozengers
eye drops
lip chapstix
salagen & other meds incase I get delayed
list of my medications and list of my health diagnoses
my inhalers
and a prayer
and a guaranteed ride home....cause I dont drive....