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You know you have Sjogrens when...

Started by wiccagal, October 24, 2010, 04:15:50 AM

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wiccagal

Your handbag contains more lip balms moisturizers and chap sticks than a chemist

You are the first person people at work turn to for painkillers.. and you can accommodate for  most requests

You have more sugar free gum in your, bag, purse, pockets than an Orbit gum factory

You have a deep sympathy for the Tin Man and wonder why that idiot Dorothy, doesn't buy him some Biotene

Your bathroom cabinet looks like a pharmacy

Your drinks come in pint glasses and there is always at least two on your bedroom side table

when you rummage though your handbag you pull out at least 5 different painkiller packets which all are half empty.. and have to stuff the wad of tissues that just fell out back into the bag.. after you move the vials of eye drops that are currently obscuring your view into the bag...

and now your turn...


Rhonda

You have to plan your day around your aches and pains and rest periods.....

You have to check your calendar before you schedule anything to make sure you don't have a medical appointment that same day.....


Great post!  I look forward to others' responses! 

Katybarstool

Wiccagirl

I know exactle where you are coming from! My workmates come and ask me all sorts of medical questions - particularly if they are going for some test or other - they know that I've had most of them!  They also know where to find painkillers, heatpads and such like when they need them.

Also, when you go into hospital and the junior staff ask you about ALL your ailments, and what your meds are for. Feels like I'm the weirdo, who would make a good case study!

Well, we might as well put our experiences to good use :)

Kathyx

Pisces24

I have a tote that I carry along with my purse to work.

Other than consumables for lunch I almost swear I got a pharmacy in there.
I have tylenol, ibuprofen, immodium, pepto, tube of antiseptic and bandages.

Work place just don't have that available anymore to employees.
When I had to take an early lunch once to get to the store for immodium, I learned.

An I once used to kid my mother that she had everything imaginable in HER purse. LOL  ::)
How times change!   :D :D

Patze

And have three different type of eye drops just in case.

Open up a drawer on your desk and have more types of OTC pain killers just in case (embarrassing when the boss is looking for a pen).

And there is always an extra large full drink on the desk every day (I swear, it never gets empty - always refilling it! :D).


Patze
Our home page  http://www.sjogrensworld.org/index.html
Live chats  http://sjogrensworld.org/chats.htm

Everything has beauty, but not everyone sees it - Confucius

The important thing is not to stop questioning ~ Albert Einstein ~

Sero Negative Queen

Bucky

You do a mental check-off list before you leave the house:  eye drops - check, kleenex - check, chapstick - check, pills - check, jacket/sweater - check.  Don't forget the water.

You back down the driveway and run in the house because you forgot to bring along your bottle of water.   ::)

Bucky

Come sit a spell and join in live chat - we serve non-fattening, zero calorie goodies while discussing all kinds of things.  ;D

http://www.sjogrensworld.org/chats.htm   (find our chat times here!)

Rhonda

when people ask you why your eyes are so red?

or when you have a nosebleed out of the blue because your nose is so dry

or when you feel frustration when someone tells you  how tired they are... and you think "tired? you don't know tired..."   

newhorizons

#7
Just happened yesterday... 8)

Hurried out to go with hubby in car with my little sachall, you know, bag of goodies in hand.How you spell the bold word?

Got in car and hubby heartily laughed and said, "Honey, you have your sunglasses on upside down!"   Truly, my no-brainer...

LAUGHED, AND SAID BACK TO HIM, ONLY SJOGGIES DO SUCH DUMB TIHINGS!!  HE SWEETLY SMILED!! AND, WE WENT ON OUR WAY... ;D

I just had a 2 hour nap and for the 'life' of me, I'm GOOFY!!!! Going to go out and walk around outside a few minutes and see if my 'head will clear;! Can't even type, have to look at keys...

I  HAVE SJOGREN'S AND I'LL NEVER FORET HOW TO SPELL SJOGREN'S!!!

Lordy oh Lordy, LOL, Joy


wiccagal

people ask you if you want food with your gravy or sauce...

Joe S.

When your Dr tells you that you were referred to him for Sjogren's and instead of saying I have what, or yes, or what's that, you think that sounds right.
bkn C4 & C5, herniation's 7 n, 5 t, 4 l, Nerve Damage
Lisinopril, Amlodipine, Pantoprazole, Metformin, Furosemide, Glimepiride,
Centrum Silver, Cinnamon, Magnesium, Flaxseed, Inositol, D3, ALA, ALC, Aleve, cistanche
Reiki, reflexology, meditation, electro-herbalism

DanzGrl

#10
When your boss laughs at you because you have 4 different types of beverages on your desk.  She calls me double-fisted all the time now!
Told my husband I was going to buy a dorm room size refrigerator so I could have cold water, restasis and probiotics in our bedroom.
I also considered putting a case of bottled water in the decorative part of my night stand.

jordozmom

Walgreens calls and asks if you can bring some of your medicines back because they've run out.
You have to spell your disease and medications to nurses (sometimes you even have to tell them what the disease is).
The list of medications you take is longer than your Christmas Card list.
There is a 50/50 chance you attend any function you RSVP to.
You can pronounce complex words like Hydroxychloroquine with no problem.
You know what ANA stands for.
You buy Ibuprofen in gross.
You can pretty much tell anyone your Vit D, Potassium, Calcium and ANA levels at any given moment.
Your insurance provider sends you hate mail.
You can recite the Family Medical Leave Act word for word.
SJS, Raynauds, Distal Renal Tubular Acidosis, RA, peripheral neuropathy, COPD, RLS, leaky heart valve (caused by SJS), Lichen Sclerosis.
Plaquenil, Salagen, Sodium Bicarb, Klor-Con, Ambien, Methotrexate, COQ-10, VitD, Multivitamin, Omega 3, B12

jordozmom

P.S. Wiccagal - this just made my day!!!  Thanks for the laughs!!!
SJS, Raynauds, Distal Renal Tubular Acidosis, RA, peripheral neuropathy, COPD, RLS, leaky heart valve (caused by SJS), Lichen Sclerosis.
Plaquenil, Salagen, Sodium Bicarb, Klor-Con, Ambien, Methotrexate, COQ-10, VitD, Multivitamin, Omega 3, B12

quilt4fun

you go to a wedding carrying that cute little black bag with what you really might need---the rest is in the car, just in case!
Age 73. PSS, Gerd, Kidney stones,  dry eyes, dry skin, borderline high cholesterol, osteoporosis. lung scar tissue, calcinosis cutis.                Taking:  Plaquenil, Meloxicam, protonix, potassium citrate, ,calcium+D, Livalo, genteel PM,  Dry Eye Omega.and ,Xiidra and Restatis

Blue Kat

You can't plan much of anything in advance because you don't know how tired or achy you're going to be that day/evening.