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Am I the youngest person here with Sjogren's ??????

Started by momomom, February 19, 2010, 08:10:28 AM

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ghostkiwi

Quote from: momomom on February 20, 2010, 02:08:49 PM
So I guess I'm not so unusual after all. Quite a few people here below the mean age. You know I can't help but wonder............ WHAT do we ALL have in common that could help us figure out why we all have Sjogren's (or other manifestations of autoimmune attacks)? I spend a lot of time just analyzing the whole thing trying to come up with a universal explanation. There are some good theories but still I wonder. I really hope a cure is discovered or at least a cause in my lifetime. I know my mind won't let me stop trying to figure it out.

That's a good question that I think about all the time. As a child I would be sick all the time and I was tired all the time to the point my family swore I must have had mono. Meanwhile my twin sister is at the peak of health.

Quote from: sbw32wooten on October 06, 2014, 01:02:15 AM
I'm 22 years old... I've recently been diagnosed with sjogrens... I'm feeling pretty lost on how to cope. And it's been extremely difficult trying to finish out this last semester of college... I'll be graduating in December... hopefully

I highly recommend signing up with your schools office of disability to get some extra time on assignments and have your assignments and exams spaced out.

I'm 22 and was diagnosed at 19 during my sophomore year of college and I know just how hard trying to make it through college with this can be. I've found that you sorta need to just accept that you have a lousy disease and that being sad for yourself will only make you feel worse(especially if you have difficulty making tears). Yeah, you will probs have to change your lifestyle and may possibly not be able to things you used to which I know totally sucks especially at such a young age. Try not to think about it getting worse though cause stressing will just make it worse. Just try to live your fullest life with as few limitations as possible. Remove all the stresses in your life and just do you and try to be happy with what you have and what you can do as opposed to what you can't.
30years old, Sjogren's, Syncope, chronic parotitis, Anemia, Pinched nerves in Neck, arthritis, Plaquenil, Methotrexate, Evoxac, Triamterene-HCTZ (for potential Meniere's Disease), Vitamin B 5, Iron Supplements, Restasis, Lotemax, artificial tears, traumeel, arnica

Scottietottie

We had a mother who came here for information when her 4 yr old was dxd with SjS.

I think she ended up setting up a Facebook Page.

Take care - Scottie  :)
http://sjogrensworld.org/   (our home page)
http://www.sjogrensworld.org/chats.htm   (find our chat times here!)
https://kiwiirc.com/client/irc.dal.net  (way to chat + nickname and #Sjogrensworld)


Never do tomorrow what you can put off till the day after tomorrow!