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Always feeling cold

Started by jaygee, February 13, 2010, 02:39:34 PM

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beej

An old flame years ago told me that I was great with any temperature, as long as it was exactly between 74 and 76 degrees....  ;D

babycakes

navydad

its interesting what you said about small fiber neuropathy as i have been told i dont have any nerve issues which i just dont understand.  I have constant numb hands, pins and needles etc etc which seem to be getting worse.  Not to mention the temp stuff, freezing cold and then sweating!!  im definately going to mention a punch hole biopsy to my rheumie next time as i know there is something up.

thanks annie

harlin


Me to I am freezing, It doesn't help that the snow is piling up also.
I get so cold then I might have a hot flash. then cold again. Usually sit in front of fireplace wrapped in a blanket. This morning I put cuddle duds on under my sweats.
Will we be cold this summer??
harlin

Epson

The winter doesn't both me at all, I freeze all year long :D Summer, spring, fall, winter, it's all the same to me.  I'm convinced that it is either chemical or autonomic.

Joy Cox

When your hands and feet are cold, are they also sweaty???? Mine are.... ::)

Patze

Hi Joy,

Mine used to sweat at the drop of a dime.  I've always had cold hands (at least since I was in my teens), but when the hot flashes stopped, so did the wet hands.

Hang in there lady!  By chance, have you spoken to your doctor about it yet?

Take care of yourself -


Patze
Our home page  http://www.sjogrensworld.org/index.html
Live chats  http://sjogrensworld.org/chats.htm

Everything has beauty, but not everyone sees it - Confucius

The important thing is not to stop questioning ~ Albert Einstein ~

Sero Negative Queen

Joy Cox

Yes, Patze, Rheumie says cold hands and feet w/sweat are from Raynauds. While Neuro says its from P. Neur.  ::)

Just depends which doc you're having an office visit with that day.  Who knows  ??? Just live with it!!! ;)

Patze

Our home page  http://www.sjogrensworld.org/index.html
Live chats  http://sjogrensworld.org/chats.htm

Everything has beauty, but not everyone sees it - Confucius

The important thing is not to stop questioning ~ Albert Einstein ~

Sero Negative Queen

roetta

I have this too. I am always freezing! It's not as bad in the summer, but heaven forbid a cold breeze should blow across me!!

My GP and my rheumy both agree that it is autonomic nerve dysfunction. I have trouble regulating body temp, heart rate and blood pressure. They thought it was damage from Guillain-Barre but they say it could just be Sjogren's. Not much they can do about it though.

warmwaters

For those who like the thermal underwear - there are also a silk version of thermals - LL Bean sells them, and other "outdoorsy" companies do too. They are not glamorous, but the nice thing is that they are very thin and light, so they don't make you feel bulky. When I used to live in New England, they were a staple in my wardrobe in the winter, because we didn't heat the house above 63. So I'd have on my silk thermals, cotton turtleneck, wool sweater, and polar fleece jacket. Perfect! Went well with my fingerless gloves so I could type.  ::)
Primary Sjogrens, dx June 2009, Immunoglobulin deficiency, axial spondylosis arthritis, IBS, autonomic neuropathy
Omeprazone DR 40 mg, mobic 15 mg, Plaquenil, LDN, B1, B6, B12, D, fludrocortisone, gralise, various inhalers

Patze

Hi Lizzy,

Yeah, I've had some arguments with endo's over the years, and this was one bone of contention with one of them.  I would shake so bad, and my temperature would fall below 95 degrees on a four minute thermomater.  When I would mention this to the endo, he would tell me that it's not the Hashimoto's. ::)  Hummm, once he upped the dosage, my temperature started to climb back up to 96 plus, and the wild shaking stopped.  My temperature still falls from time to time, but not nearly as bad.

Yeah, sometimes I have to wonder how bad it would have had to be if I hadn't pushed the issue.

Take care of yourself -

Patze
Our home page  http://www.sjogrensworld.org/index.html
Live chats  http://sjogrensworld.org/chats.htm

Everything has beauty, but not everyone sees it - Confucius

The important thing is not to stop questioning ~ Albert Einstein ~

Sero Negative Queen

RobinBat

beej
Newbie


    Re: Always feeling cold
? Reply #15 on: February 15, 2010, 05:42:03 AM ?   

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An old flame years ago told me that I was great with any temperature, as long as it was exactly between 74 and 76 degrees....   


Beej, My husband says the same, or close to it. Says I have a 2 degree tolerance...2 up or down and I am hot or cold! Sad thing is he is right!!!
Robin


clarestella

I am always cold too.  I have Reynaud's and my fingers and toes feel like blocks of ice a lot of the time.  I have lost a lot of weight since I developed Sjogren's so I thought that was the main reason.  There's no fat on my body anymore to keep me warm.  Well, some fat.  I also layer my clothes and have an electric throw on my sofa.

navydad

I know that your body temp drops from cold,, but is there any medical evidence that says ,, say your sitting in the living room,, is it just possible for your temp to just drop to around 94 or lower,, is it the autonomic system doing it,, and do doctors admit it even exists

eyeamdry

and do doctors admit it even exists---------------

I always ask what my temp is after the nurse takes it.  Usually it's 97.2 or something and I don't usually say anything.  One time recently, it was 96 and I said something and the answer was "this is very common."  Yeah, if you have DSS.