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Covers on, covers off, sweater on, sweater off . . . repeat 100 times . . . .

Started by Bucky, October 11, 2009, 01:09:20 PM

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Bucky

EVERY day throughout the day I play musical sweater.  One minute I'm fine, the next I'm freezing.  As soon as I go get my sweater on and get it adjusted . . . presto, I'm hot and off it comes.  Do this about 100 times a day.  Okay, 100 times is a tad bit of an exaggeration . . . it's really 99 times!!   ;D

I wish I had some footage of me attempting to sleep . . . I feel like a fish out of water.  Crawl in between the sheet and comforter, pull my afghan up . . . ahhhhh, time for sleep.  Wait, I'm hot . . kick off the covers.  Snap, crackle, pop of leg and arm joints as I roll onto my side.  Lay in this spot for a few minutes and I'm freezing and put all the covers back on.   ::)  Repeat this about 100 times a night.  Ok, maybe only 98 times!!   ;D  I can't get a comfortable position between my hip, knee, shoulder or elbow not wanting to be laid on.  Flip, flip, flip, flip all night long!  I feel like a fish out of water flipping over and over and over and over.  No wonder I wake up exhausted as I haven't had much quality sleep all night.  I go to bed tired and wake up tired.  Sigh!

Last winter I developed the lovely Raynaud's and just last night my feet were freezing!!!  Had to get up and put on a pair of socks.  Sigh . . I have a feeling we're in for a l-o-n-g winter!!  Better have my sweater, covers, socks, gloves, hat and anything else I can find to put on and take off frequently nearby!!

Bucky
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harrigan

Oh Bucky - I know I shouldn't, but I had to laugh!  You sound just like me.  I can go from birthday suit in front of the fan to thick jamas, socks and extra fleece, wrapped up like a swiss roll in the same night!  One minute socks are a life saver and the next they are like an acid footbath and I can't get them off my poor claustrophobic feet fast enough!

Hope you sleep better tonight Bucky XX Ailsa
Female, 54
Diagnosed with Sjogrens March 09; Rheumatoid Arthritis February 2010
Meds: abatacept, Methotrexate injections , Folic Acid, Amitriptyline, Ozepramole, Tramacet, Glandosane & Viscotears.

Patze

Ah Ms. Bucky,

Welcome to the burning and freezing club!  Yeah, joined that critter several years ago, and it looks like this winter is going to be  a dozy too! 

Yeah, I used to always have an extra set of sheets/jammies/socks/etc. ready every night because I just don't know how bad it the night would be.  Lately, it's starting to even out.  I still have really cold nights, but the ultra hot ones are becoming fewer and fewer.

Hang in there lady, it'll get better.

Take care and here's to warm toes tonight!

Take care -

Patze
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jaygee

You could be describing me, too !

More recently, since I have been on a painkiller, I am not doing this too much during the night.  However, I have spent most of this evening wrapped up in many layers of clothes with the heating on, whilst hubby say's its roasting  ::)

I keep getting the cold water pouring over me sensation tonight  ::)    xx

tedebear710

Hi, Bucky -- I've never met you, but we sound like twins.  What is it with our internal thermostats being so messed up?  It's so very frustrating.  I hope that Patze is right and this will eventually go away.  My sleep is disruptive enough without the temperature issues.  It's like that old saying, 'there's no rest for the weary.'  Anyway, hang in there.  I hope it gets better.
Hugs,
tired Tede

Patze

Hi Tede,

I had the rolling sweats for several years, and it's only been within the last three to four months that I'm finally getting some much needed relief (better than what it was before that's for sure!).

Hang in there and I hope that it ends for everyone soon!

Take care -

Patze
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Everything has beauty, but not everyone sees it - Confucius

The important thing is not to stop questioning ~ Albert Einstein ~

Sero Negative Queen

eyeamdry

Bucky and everyone........I think I belong to this group too.  It's now below 30 degrees at night in Michigan, so winter is setting in.  My feet are cold, my shoulders are cold etc.  Then all of a sudden, I'm hot and it's off with the sweater and sweats.  Sometimes I wear doubles to bed.  I'll wear a cami and pants and then put sweats over them, or flannel jammies.  If I become hot, I then pull off the sweats and I'm reasonable warm the rest of the night (unless I get too hot.)  Time to get out the winter jackets, gloves etc.  Lucy

Jag

Oh I would think this is funny... but it's not!  ::) I go through the same thing. I know it's not menopause, but I can sympathize! I have hot flashes I think because of my thyroid, but maybe not.  ??? I can go from cold to hot several times a night and all day, too. As soon as I change into something lighter, though... I'm back to cold again. Yes, the Raynauds certainly seems to play into that to some degree. Isn't this lovely?? We don't play with the thermostat here.. it stays where I need it to be! I have a fan that I'd love to have blow on me all night, but my littlest birdie sleeps in our room and she hates the noise of the fan... so it stays off so I don't have to listen to her cry!

Poochie

Hi Bucky,
Sheesh! it sounds like what I go through all the time also.  Including the gift of Raynaud's for Christmas last year. 

I have spent this entire day going from heavy robe to heavy sweatshirt and sweat pants, then back to cotton slacks and blouse.  Then back to the sweat gear.  At the moment I am wiping sweat from my face and neck.  Thank goodness I only sweat from the shoulders UP. 

I also do the flip flop all night with shoulders and hips that complain every time I turn.  Now my cardiologist informed me the nightly tachycardia is the SVT returning.  Happy, happy, Joy, joy,  :-\

That saying goes so well for us "no rest for the weary".  Every time I think there isn't anything else that can go wrong with my body............................WHAM!  something else turns up.

Hang in there gal, I hope it subsides soon for you.  ;)

Hugs, Pooh

babycakes

hi bucky

another yes from here, you are describing my night time routine to a T.  Complete nightmare, covers on and off all night long.  Also happens in the day. bundled up in clothes on a reasonably warm day then sweating profusely, strip down and off we go again. 

annie

Nans

>>>Now my cardiologist informed me the nightly tachycardia is the SVT returning.<<<

Hi Pooh,

Is the SVT at all related to your SjS?

I'm a member of the Covers on, Covers off club too - much to the chagrin of my dh!

lynnmarie219

Count me in too...covers on...covers off...etc...etc all night long! I cant get it figured out...lol! I also do the same with the heat/AC controls....up down...up down...never get that right either....the fan also goes on off...on off...

Well I think you all get the idea!!!  :D

Katybarstool

Please can I join your gang? During the day, I can be sleeveless and warm at the top end, and freezing at the bottom end. Today it was 15 degrees and I wore for work: tights, thick socks, trousers and boots, and my feet were still cold. Last night in bed, my top end was lovely and snuggly, and my feet were burning so badly, they were dangled out of the duvet to keep cool.

I just can't work my body out. Whoevever said the internal thermostat is broken is soo right!

Kathyx

Dolly Dimples

           Me too! 
                  This is a club that I really diden't want to be a member of...

                    Already got the thermals out and on.. and yes ...I just know that this is going to be a very long winter indeed.
                                                       Brrrrr, Dolly.
                   
               

Bernice

Ladies, You're singing my song! All night long I fan the covers. I fan the sheets just right so that a good breeze get in under the sheets to cool entire body! Then I get cold. This can wear you out! Yeah I will get up the next day feeling like I haven't slept all night because I haven't!

Bernice