Covers on, covers off, sweater on, sweater off . . . repeat 100 times . . . .

DragonflyC · October 13, 2009, 06:07:29 AM

Same for me. I'm pretty sure it's my thyroid (I have Hashimoto's), though the "broken thermostat" seems to come along with several AI conditions.

roetta · October 13, 2009, 07:56:20 AM

At my house they say..."Mom's having trouble self-regulating again." Hehe

Cheryl · October 13, 2009, 03:29:44 PM

Ditto to all of the above, except that I don't have Raynaud's.
Cheryl

Jeri · October 13, 2009, 08:30:18 PM

Thank you all for letting me know that this is normal. Well normal for us. Long past menopause and couldn't understand why the hot flashes were back. The heating pad and i have become best friends on off on off. Thought there was something else going wrong. Relief to know others are sharing in this thermostat control problem.

eyeamdry · October 13, 2009, 09:07:38 PM

In Michigan, it's cold already. Highs about 15@ below normal. Nights are below freezing and highs in the daytime mid 40's. Brrrrrrrrrr. We're hunkering down. Lucy

Patze · October 14, 2009, 04:09:18 AM

Yeah, I know what you mean about cold nights as it's getting a bit nippy around here as well. Now to figure out why the old temp drops a lot and I get very sleepy, weird.

Patze

Cheryl · October 14, 2009, 11:18:45 AM

Patze,
Maybe you're hibernating?

Cheryl

jordozmom · October 14, 2009, 11:21:08 AM

The timing of this note is unreal! I have Raynauds and often times my feet or hands would get really cold when the rest of me is just fine. A while ago I started having problems going to bed at night. The house would be freezing and would hurt my joints, but then once I got into bed I would be hot and couldn't cool down. I'd have the windows open in the middle of winter! Now in addition to all that, I've started having random hot flashes. I thought, I'm only 38 so surely it isn't menopause, so then I did a pregnancy test!!! I don't get it. One minute I'm chilled and the next my face just gets really, really hot and I could crawl into my freezer! LOL! You just have to laugh at this disease - it is so ridiculous!!!

Patze · October 14, 2009, 05:19:45 PM

Hi Cheryl,

You're probably not far from the truth, but that darn alarm clock keeps making sure that I "don't" hibernate!

Patze

lynnmarie219 · October 14, 2009, 07:29:33 PM

Hibernating sounds like a good idea to me!!

tuckerdog · October 14, 2009, 09:44:47 PM

I asked the rheumy at the Houston SJS meeting about this problem. I am freezing then boiling too but I no longer sweat very much so it is really hard to cool off.

He said - this is probably sjs (not thyroid - my thyroid is also messed up). He said to tell my rheumy about this problem (which I already have - he just shrugged his shoulders) THEN HE WILL PROBABLY SEND YOU TO A DERMATOLOGIST. I wonder what the dermatologist would do.

He also said that since some SJS people lose their ability to sweat we have to be very careful about heat stroke.

Tuckerdog

Grandma · October 20, 2009, 10:17:34 AM

I am doing this too...didn't know it went along with this...just figured I was getting old. I hate it these days when people say you are only as old as you feel...ooooooo not a good thing to say to me right now
Do any of you that work full time have any tips on how to get through the day when you are just barely dragging through it? I don't have children at home any more...it is just me and my sweet husband. He is supportive and helps me out so much. I have to work...that is not an option...and I try hard not to complain to him too much about it...I have to work and I don't want to make him feel worse than he does about all this. I figure it is just a matter of finding out how to manage the day better. Any tips that any of you have please let me know...and if anyone figures out how to regulate this hot/cold thing...I am open to that too!!

harrigan · October 20, 2009, 10:34:27 AM

Hi Grandma - I work too and the things that make it bearable for me are lots of layers. I can move through light top, jumper, cardigan and jacket in a single lesson and back again before the bell goes.

I teach in the hottest classroom on the planet, I swear. There is very little circulation of air as windows only open about 8cm at the bottom (and the pupils complain they are cold!) I have a fan which I turn on and off about 10 times a day; an icepack for chilled water bottles; a foodflask for hot soup; extra socks for emergency chills... Everything and anything that makes the day at work feel better.

It's also good to feel you have an ally at work who you can have a moan to without feeling bad. It doesn't do to tell everyone everything, but really helps to know there is someone there who knows what you are going through just to turn up every day.

Good luck XX Ailsa

bloodless · October 20, 2009, 12:18:14 PM

I'm a hot and cold critter too! What's really weird is now I can be both at the same time. I'll be burning up, sweating and my hands be so cold I have to sit on them to keep them from hurting. Do you guys think it's a SJS thing or one of the many chemicals they pump in us to keep us going?

jaygee · October 20, 2009, 01:53:17 PM

Quote from: bloodless on October 20, 2009, 12:18:14 PM
I'm a hot and cold critter too! What's really weird is now I can be both at the same time. I'll be burning up, sweating and my hands be so cold I have to sit on them to keep them from hurting. Do you guys think it's a SJS thing or one of the many chemicals they pump in us to keep us going?

I hear ya bloodless! I will complain to hubby that I'm burning up, but if he touches my hands they are freezing - weird, eh? xx

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