Stairs

[Katybarstool]

Lucy - thank you! Your explanation helps a lot. I can't normally swim, because the chemicals don't agree with me in the public pools, so I rely on air filtration pools or sea water to swim in.

Bernice - I know what you mean about humour, it's a bummer though when it's not intended, isn't it.

Happy Saturday girls.

Kathyx

[Katybarstool]

Seems the rheumy took my muscle concerns seriously. Today an appointment came to have an EMG at the hospital on 4 January.

In the same post came a letter telling me that Urodynamic tests are also being organised for the bladder/cystocele problem.

Tomorrow, I have the pleasure of the nurse showing me how to use a rectal irrigation kit. I guess I'm keeping lots of medical people in work  

Kathyx

[JannaLee]

This is very good news!

I look forward to hearing the results of the EMG, and I'm delighted to hear your Rheumy is looking into this issue!

Love to you little Kate!

Janna

[Chickpea]

Hey Kathy - you get all the fun!  How about sharing with the others?

Let us know how it goes tomorrow.

Thinking of you - Chickpea

[Patze]

Good luck with the nurse and the irrigation kit tomorrow Kathyx!


Patze

[Dolly Dimples]

  Hey Kathy, so sorry to read of your new problem.

   Have been off line a while so have missed lots of news..

     I do hope that all comes well  for you in the not too distant future, you seem to have had an avalanche of worry these past months!

         Your Right!   It certainly is a BUMMER!!

                                                     All my good wishes to you and all our peeps here. Hope you all have a happy Christmas,
                                                             and a great New Year !

[navydad]

Seems the rheumy took my muscle concerns seriously. Today an appointment came to have an EMG at the hospital on 4 January.

In the same post came a letter telling me that Urodynamic tests are also being organised for the bladder/cystocele problem.

Tomorrow, I have the pleasure of the nurse showing me how to use a rectal irrigation kit. I guess I'm keeping lots of medical people in work  

Kathyx

If the EMG cmes back normal,, coonsider getting a punch biopsy done to look for small fiber neuropathy,, EMG wont show a thing if the small fibers are involved

[Katybarstool]

Hi Dolly

Welcome back! The nurse arrived as planned yestrday, and introduced me to the 'kit'. It wasn't as embarrassing as I thought it would be, and one of the most important things I learned is not to expect the 'effect' to be immediate. It takes a little patience, and I imagine, a little practice to know when things are 'done'

Navydad, thank you, I will certainly bear that in mind.

Kathyx

[Patze]

You know Navydad, I never thought about asking for a punch biopsy to look for neuropathy after a "negative" EMG.  I'll have to ask for it when I get the next EMG done in the spring.


Patze

[harrigan]

Oh Kathy - well done you!  Hope it really helps XX  By the way, how did we get from the topic of 'Stairs' to where we are now?

[Joy Cox]

Yes,    about stairs? Has someone already had to much eggnog? 

[Katybarstool]

Eggnog - no, a wee dram of whiskey for me.
Stairs - bowels, just a short leap from one to the other

Kathyx

[Patze]

Hey, it (hiccup) works for me! 


Patze

[Rhonda]

I too, have a terrible time with the stairs.  I avoid them as much as possible.  However, tonight we went to Christmas Eve Church services with some friends.  They wanted to sit up i the balcony and for the first time my husband saw me try to maneuver the steps.  He was startled to see how hard they are for me.  He stayed right behind me to be sure if I felt backwards  he could help me. But, I could tell he was shocked to see how hard they are for me.  I have SJS and RA - I hate to see how I will get around at age 60 if I am already hobbling at 50!  It is really kind of scary!

[harlin]

Yes I also have a time climbing stairs. My thighs are so week by the time I reach the top I have to bend over to regain strength. It takes a few minutes but it finally comes back. I let my primary dr and rheumy know but neither was concerned. Going down is ok but up is a problem.
I am 56 and have had this problem for awhile but Drs aren't concerned. Is this part of Sjogren's or Fibro??
I to wonder what life will be like at 60. I am closer than I care to be.
harlin