solutions for burning pain?

[hoping]

Those with peripheral neuropathy, burning pain hands/feet, what works for you?

Caspaisan cream/Zostrix?
Compounded creams?
Anodyne Infrared treatments?
Meds? Neurontin, Lyrica, Cymbalta, Tegretol, Lidoderm-- any others?
Vitamin B?
Accupuncture?
Other?

These are all things I've tried at some point or another.  Did not give accupuncture a fair shot and thinking might try it again, however at $100 a pop, I might not be able to afford many sessions.

Karin

[lesmom]

Hello, Karin

I got some relief from the neurontin and the cymbalta for awhile, but not so much now. I am hoping to get more of an answer from the rheumy when I have my 1st appt. July 29. I do go to the chiropractor sometimes just to make sure that I can keep nerves from being pinched. Sometimes if I take a warm bath for a bit that gives me a break from it for a bit. I also go numb along with the pins and needles/ burning feeling. It is a miserable feeling.

I hope that you can find some relief soon.
Take care,
Leslie

[Katybarstool]

Hi Karin

I take amitrtiptyline for the neuropathy and amlodipine for the Raynauds. Sometimes it's hard to tell which condition the burning comes from. The drugs don't completely control the symptoms, but they certainly make them more bearable.

Kathyx

[eyeamdry]

I feel a massage is good for what ails me.  When I'm feeling really bad and can't do a thing, I go schedule a massage.  I might do this two or three times in a row.  It doesn't cure anything, but does help me feel better.  Lucy

[SLEEPY101]

over the counter tiger balm gives me some relief. Also antinflamitories also help.

I take cymbalta,nuerotin,celebrex,plaqunil, percocet,selaxin and evovax for mouth dryness

also ice packs help i prefer them over hot packs

[lighthouse33]

Nerve Support Forumula - been taking this for two weeks.  Seem to be seeing some relief.  But it may take two or three bottles before it starts working.  Everyone's neuropathy is different.  I will take any lessening of the pain I can get even if it isn't 100%. We will see what happens.

Exerciser 2000 Elite - this is for neuropathy, joint pain, arthritis, fibro and a host of other conditions.  Have to wait three more weeks to try it.  Wish I could have it now but it will be a birthday present.  At least that is what I have requested.  My mom can use it for her edema.  

I also use ice on my ankles every night.  From what I've read online you shouldn't use ice for neuropathy, but it does give me relief from my ankle pain.  

[hoping]

I use almost exclusively ice.  Seems to help numb the pain for a little while or at least I feel cold vs. burning for a bit.

Karin

[wordnerd]

You might want to ask your doctor about Lidoderm patches.  They really do a great job for severe localized pain.  I've used them on my hands and feet when they were burning.

They were originally designed for nerve pain from shingles... so they might work well for you for this if its in just a few spots.

They aren't very sticky though so you have to tape them on with extra tape or hold them on with gloves in the case of your hands.  You can also cut them up into smaller bits to spread out the number of places you can relieve out of one patch.

Hope this helps!

-Lauren

[Epson]

I use Cymbalta and have started using Biofreeze for joint and back pain in combination with prescription painkillers.  The Biofreeze does not irritate my skin like so many of the other creams and rubs do.

[SLEEPY101]

lidoerm patch does help. I love you can use three at a time and plus cut them up.

don't get them wet they make a glooey mess

[camj]

Chiropractic adjustments have helped, plus I notice if I eat sugary foods it will make my neuropathy worse. Use biofreeze and ice also.

[hoping]

I do use the Lidoderm patches at night on both feet and on hand secured with tape.  Know Biofreeze feels good, have used it as a PT on patients on occasion (years ago), but never thought to buy/try it.  Does it freeze/numb out the area for very long?

Thanks for all your suggestions, keep 'em coming.  I'm sure this thread is helping others with neuropathy.

Also, do you find your burning pain to worsen after activity, that night or next day.  I planted a few small flowers into two pots, did a bit of crochet, typing, and put dishes in dishwasher and from just that I'm paying the price. 

I think I'm going to search more deeper into small fiber neuropathy.  My neurologist suggested a specialist/colleague in Milwaukee, WI.  He said that this was their specialty.  But even if I'm diagnosed with it, the same treatments apply.  Just not sure if it'd be worth the trip and how long it would take to even get in.

Karin