One Happy Day!

[missyb]

Yay for you! good job!  Congratulations on everything!

[hoping]

Thank you all so much, your support and info. has helped me so much.  I've gained more and more insight thru the kindness of folks on this board.  Also, e-mailing Linda from the show Mystery Diagnosis was helpful, as well as all the Medscape searches I did.  FYI info on Penn Sjogren's Syndrome Center outlining Diagnostic Criteria is at http://pennhealth.com/rheumatology/presby/sjogrens/hi_diag.html  The entire site is worth searching.  The other article outlining criteria but more in depth stuff, is at http://www.medscape.com/viewarticle/493493_print written by Dr. Vivino who heads up Penn's Center and is nationally known as expert on SjS.  Another doc, both a rheumy and neurologist is Dr. Birnbaum who I'd love to still see because of his background with transverse myelitis and SS.  But no trips are really in my budget.  He can be found at http://www.hopkinsmedicine.org/neurology_neurosurgery/experts/  then search his full name: Julius Birnbaum.  The web page phone numbers are wrong.  Dr. Julius Birnbaum's office number is 410-614-1196 and will go directly to his assistant Bethany. 

Thanks for all the advice on Plaquinel, am taking at breakfast and at dinner.  Why with yogurt, just curious?

For those of you on Cellcept, was it not covered under insurance?  Doctor said it is way more expensive than Immuran.  Is one better than the other?  Probably just try this and see how you do on it and I'm okay with that.  It's this wean off Prednisone and go see a shrink attitude that I could not accept.  I almost had myself convinced that I truly was psychotic.  Terrible that someone should be forced to hear that so much.

Take care all, keep giving out great pearls of wisdom.
Karin

[kimbo]

Karin,

Great for you!!!!

Great information you provided. And thank you for sharing your journey with us. You will help other sjoggies on their path as well.

I think the yogurt helps coat your tummy and neutralizes any harsh affects on your tummy. Its a POOH recommendation that has worked for many on this forum.

Keep sharing and informing.  Blessings, kimbo

[SassieCat]

There was a lady I worked with who had cancer in her brain.  She told me one  day that the more yogurt she ate before her chemo treatments the less sick she would be from it. 

I don't know if this helps or not, it just came to mind. 

Best of luck to you!!!
Sassie

[harrigan]

Chickpea, nobody ever told us about taking Cellcept without food.  Katharine's been on it 4 years now, she takes it immediately after breakfast.  Is that not ok?  She does suffer with nausea, wind and dizziness often.  Is this why?  Can't believe we have never had advice about taking the tablets, other than to take 4 x 250mg all at once.  Really appreciate your advice xx Ailsa