Anyone from Jersey?

[barc]

I'm desperately trying to find a doctor that will know enough about Sjs to dx me. If your in NJ,
would you mind sharing with me who you're seeing. This is so frustrating. One ENT and now
two Oral Surgeons see nothing and have told me to go to a Pathologist. The pathologist is on
vacation. Why is it so hard to get a diagnosis? I feel like I'm going crazy.. my lips are cracked
in the corners, swollen and my mouth feels like it's on fire, along with ulcers. I've been given
the name of a very good doctor in NC, but I'd like to see someone here if possible if it's going
to mean alot of visits as I only get to NC once a month and usually only for a weekend. Can
anyone suggest someone. Thanks, Barc   

[Babs659]

Do you have any other symptoms, or any positive bloodwork??  Any fatigue, pain, etc?  Just a dry mouth is not much to go on....

[barc]

My symptoms are mainly oral, however I did test positive for dry eye. The blood work came back negative but from what I'm reading, that isn't unusual. I have other auto immune problems as well.  I would say that's plenty to go on. This is the 3rd year with I've had this and each year it's becoming more frequent.  barc

[jonnell]

Im from New Jersey my four year old goes to Dupont Hosp in Deleware,  I hear they have a sjs clinic in John Hopkins  in Baltimore Maryland.