Low BP and General Malaise

[BonusMom]

I've been pretty quiet this weekend. I putzed around the house yesterday and took it easy. This morning, I felt "off". I took my blood pressure and it was 101/55 (laying down). I usually run 120/80. This is the second time I've had this happen. The first being right after Christmas while playing board games with the family. I started Plaquenil in January and Prednisone a week agolast Friday, so I don't think it's med related.

I got enough gumption to go to the market this afternoon and felt like I was going to pass out. It took a lot of effort just to get through the store and I was short of breath.

My rheumy and I had a phone conference Friday evening. I told her about my PCP's detection of wheezing and the chest xray (still awaiting results). She told me to keep her updated. As to the Plaquenil issue--I know she didn't realize that I didn't start the med until Jan 9. She asked when I was at the full 400 mg dose--Jan. 21--so I've only been taking the full amount for just 6 weeks. She asked me to add another 200 mg to the daily dose for 2 weeks (total of 400 mg) and to continue the prednisone.

Superman thinks my BP may be getting low because I'm dehydrated. I'm drinking 4-6 16.9 Propel's/water daily. But with the Sjogren's does it make sense that I would need to consume more water so that my insides don't get dehydrated?

My mom called this morning and said the same thing as DH. I told her about the PCP's discovery of wheezing. Mom mentioned that she had pleurisy once and it was paiful as all get out. I'm not having any pain, more like a dull ache. When I stretch, it does hurt the chest area.

I'm much too young to feel this darn old.

I don't know what to make of all this with the low BP; my PCP second guessing the SLE dx because of no organ involvament, chest/lung issues and the general malaise feeling.

Any ideas/wisdom to share?

[1mommyof8]

i have very low BP, like 90/50 most days, even on days i have been running around.. the docs always ask me if i am alive.. lol.. i say i think so.. and i have NO energy anymore when just a few years ago it was endless.. energizer bunny really..

Thanks again for bringing this topic up

[wednesday mc haggis]

wish i had some answers for you, i do know my BP runs 105/55   always has, my mum has lower blood pressue too, i dont know about the dehydration, i drink alot of fluids, never seems to make me feel hydrated, but when all your moisture secreting glands are under attack, i guess you wouldnt.

I feel short of breath somedays , docs have listenned to my chest , say it all sounds clear, no rhyme or reason to it either, can be sitting down and get a run of it, or on the go, other days breathing is fine, cant give you answers as to why , just im 37 and feel like im in my 60s, your not alone in that feeling

T x

 

[kim31072]

Sounds like Dysautonomic dysfunction...try increasing your salt intake and see if it helps.Dysautomonia(which I am not saying this is)is a fall in BP with movement(going from laying to sitting to standing)which often produces the "dots"in your vision,feeling light headed,often people will pass out(in order to "reset" theirself)so try staying hydrated and eating salty snacks,gatorade and see if it helps any.

Here is a link to Dysautonomiakids but it has expanations of what the symptoms and effects are. http://www.dynakids.org/what.jsp

[hoping]

Thanks for link on this, have been wondering what exactly Dysautomonia meant.  Figured it had something to do with autonomic system going haywire, but this gives a great explanation.

Karin