I,m feeling so bad again

[sandie_beach]

Hi Everyone,I,m sitting here just taking deep breaths because I feel sick and my head feels weird.I started takeing Meds in Feb of this year.And by the end of March I felt fine,the nausea was gone.I had more energy. Stupid me,,I felt so good,I stopped takeing the meds in September,I was working and thought I did,nt need them anymore. And I did,nt for awhile. Slowley I started feeling worse.I made a appointment with my Dr on the 9th. I guess my point is Please don,t stop takeing your meds even though you feel good. Its very tempting. Now,I have to start all over,I will suffer through this for about another month. I have learned my lesson. Take Care of yourselves.

[Katybarstool]

Sandie

You have my empathy. I know that when my asthma is doing well, I question why I need three inhalers, but I've never deliberately stopped them, as I know how ill I felt before it was stabilised.

Sometimes we get a false sense of security and, if your are like me, have wondered if these 'wandering' symptoms  of SJS have been all in my head. However, when it all flares up again, we certainly find out othrwise.

I hope your meds don't take too long to kick in.

Hugs

Kathyx

[Scottietottie]

Hi Sandie 

I'm really sorry you're feeling bad again but thanks for posting about not just stopping meds. We're on them for a reason! One of the things about the dx I found hard was the idea of meds every day for the rest of my life. That's just the way it is though. Aren't we lucky to have them? I bet not so many years ago people would get SjS and there just wouldn't be any treatment.

Hope you feel better sooner rather than later.

Take care - Scottie 

[Pooh]

Oh Sandie, I feel for you kiddo.  I did the same thing about 5 yrs. ago.  I just chucked all meds down the john because I had had it with being sick.  I figured the meds weren't doing any good, so why take them.  Boy, did I find out how wrong I was.

Hang in there, at least you know when you start feeling good again, you won't stop taking the meds that got you to that point.

Hugs, Pooh

[dbab]

I really can relate too.  I stopped taking my meds for a while too (before I was on Prednisone) and after a couple of days I thought to myself, "I feel really good... this was all just a crazy fluke, I'm not really sick at all!".  Didn't notice that I started popping advil until my husband caught me a week after I stopped my meds and asked how many was that today.  I went a few days after that feeling ok but then it all started creeping up on me again and it felt so much worse than before and got pains where I never noticed before.

I never did tell my doc (I didn't want to be labeled as a rebellious patient) and luckily within a couple of weeks or so of getting back on my meds, I started to gradually feel better but I really learned my lesson.

[JannaLee]

Yup, I've done it too and paid dearly for it.

It's funny how many of us have either done it or thought about it.

I know I keep thinking this all a bad dream or a big mistake.  I suppose my experience was due to denial.

[wen.uk]

Hi Sandie  sorry you feel so bad again, but hey just think when the meds kick in again you will feel so much better.  Every day's a school day with this illnes, we live and learn!!!

Hope you feel better soon.

Wen x

[Patze]

Hi Sandi,

I sure hope that the meds kick in for you really soon!  Hang tough!

Take care -

Patze

[peacefulstorm]

Sandie,

I pray that the process this time is fast and painless as possible for you! I agree about the meds!

I worry all the time about my teenager that is bi-polar, he has been on meds for it since he was 7, but lately he has been saying things that have me worried. He recently told me that he felt like he relied too much on his medication, I said, you can NOT stop taking them. He promised he wouldn't and I believe him, but it does scare me!