Flaring and miserable

[beverley]

Thank you everyone, I always feel better when I hear from you all.  There never seems to be anyone to ask anything.  My Doctor is lovely but he does not have any experience with SJS - and my rheumy is very good but if I try to get to see her I know it will be in three months and not now when I want to ask questions.

Scottie thank you for your suggestions, but unfortunately I am the person who pays all the bills in this house and I have already cut to 4 days a week which has caused some financial difficulties.  I cannot afford to do any less so I feel very trapped at times like this.

Can I ask you guys another question?  My boss is great, very supportive and I hate messing him about because when I am out it costs the school a lot of money.  He says things like don't come back til your sure you're well ....... and that's the problem!  I sit and do very little and I start to feel a bit better and then I feel I could cope.  I don't rush back which means I am home feeling reasonably well for several days and I think I am ready - so I go back and discover that I am not, and within a few days I crash out again.  Here's the question, how do I know when I am well enough to go back?  I really need to find a way to measure this, to be sure, because it's not fair on my class (they are fantastic kids), my boss or my colleagues who are so kind to me.  Everyone's going to get fed up with me if I go back, then go sick, go back, go sick ... you get the picture.  So, how do I know when I'm well?
Beverley

[pudmott]

You know Beverley i'd  like and answer to that one too. I've been on the same merry go round for two months now i feel well go to work get sick then have timme off feel ok and so it goes. Its just so hard to know.


Pud

[wen.uk]

Oh Beverley, I really feel for you at the moment and the worse part is knowing that there's nothing I can do to make you feel better except send you a big hug thrpugh cyberspace.

I'm just coming out of a bad flare and am due back to work tomorrow after 6 weeks sick leave.  I worked myself until I dropped, literally, as I too feel guilty at having to take time off work.

Now the good news - I now feel so much better - and so will you too, just give yourself time to rest and do what your body needs to do to recouperate.  I know it's an awful time and I'm thinking of you.

Wen x x

[Katybarstool]

Beverly

This may seem a silly suggestion, but when my hubby had been off work for a while and was frightened of going back, I suggested he start on the Thursday,just so that he had only 2 days to do before the weekend. It helped him greatly not to have to think of working 5 days straight away. A colleague of mine came back from sick and worked every second day for a little while, just to ease herself back in.

Could you consider some kind of phased return?

Kathyx

[beverley]

Thank you Kathy,

I'm not sure how feasible a staged comeback is because of school insurance, however your idea of going back in at the end of the week to ease in is a great idea.  I may well do that.

Beverley